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posted by Marathon Man
24 October 2013

Dublin City Marathon, Monday Oct 28th

Last reply: 24 October 2013 15:31
On Monday next, I will be running my fourth post surgery marathon. There will be many, many other Cancer Survivors running also. Please give us all the support you can! I hoping to raise a few bob for both the Irish Cancer Society and Cork ARC. However, my main goal is to give hope and inspiration to those dealing with Cancer. My Irish Cancer Society fundraising page: http://www.mycharity.ie/event/john_quigleys_dcm_run/
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posted by therailwayman
27 October 2013

bowel and liver cacer

Last reply: 14 November 2013 09:39
hi i was diagnosed with bowel cancer on the 12th of july 2011 about a month later i was told it had spread to my liver was a huge shock at the time is there anyone there that has been going through the same thing would be very grateful for any advice you could give me please
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posted by therailwayman
03 November 2013

tough at the moment

Last reply: 17 November 2013 02:46
hi i am feeling it very hard living with this cancer at the moment was flying for the last year an a half but over the last month or so just seem to have hit a brick wall i dont know why because the treatment is going fairly well just wondering if anyone else felt like this during their treatment
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posted by tracie33
06 November 2013

Liver GVHD post transplant - Myelofibrosis

Last reply: 19 November 2013 15:12
Hi Im wondering if anyone has experienced or is going through what I am at the moment as Im getting very down & frustrated. I am 33years old diagnosed with Myelofibrosis in March & had my bone marrow transplant. I had some GVHD which cleared & was finally discharged from St James after 2months. I then started to feel a bit weak & my skin was jaundice yellow so I knew sometthing wasnt right. Upon check up beg Oct was admitted for Liver GVHD & 1 month later Im still here. They said my Bilrubin is too high & need to wait for it to steady which so far it hasnt. Im receiving photopherisis treatment twice a week & still on lots of medication incl steriods. I cant sleep despite relaxants & sleeping tablets & I feel very low & depressed. Mainly because there seems to be very little progress & no idea how long I will be here. Its already been a month making my total 3months in hospital. Im sick of magazines dvds etc at this stage & dont know what else to do. I heard the liver is very slow repairing but just wondering if anyone else has has this GVHD & how they got on. Sorry for long explaination all new to this Thanks, T
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posted by ariole
28 November 2013

Lymphedema support group

Last reply: 02 July 2014 15:15
Hi, I was first diagnosed with Melanoma in July 2013 and have since had a groin lymph node dissection. Drain is out about 4 weeks but now I have a very sore swollen lower leg. My consultant thought maybe it was DVT but thankfully an ultrasound has eliminated that so now I have been diagnosed with Lymphedema. I was wondering are there any Lymphedema support groups in Ireland to discuss similar stories and tips on how to help with Lymphedema? Regards Worried
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posted by annieo
05 January 2014

feeling unsociable after recent recurrence...

Last reply: 24 January 2014 23:46
Hi, I have recently had more surgery for a recurrence of melanoma. It has been just over a year since my initial diagnosis and surgical treatment. I had my lymph nodes removed in my groin. My recent surgery was in early December. I found a lump in my groin which lit up on a pet scan and was removed. I don't know much about the results yet as I wanted to enjoy my Christmas so didn't ask many questions. I do know that, like many other cancers, melanoma is a big deal... I am due to see my surgeon next Friday and after that I have a follow up appointment with my dermatologist who will discuss my situation with me and tell me what is in store for me in times ahead. I did enjoy my Christmas, surrounding myself with family and home comforts, though I did have a lot of pain unfortunately due to arthritis. I realised a few days ago that I had made no effort to meet any friends over the holidays or do any socialising at all. (no-one made an effort to meet me either to be honest - cancer seems to keep some people at a distance, it seems). Anyway, I went out to meet some people from work lastnight. ( I haven't been able to work for over a year now with rheumatoid arthritis, melanoma also making an appearance along the way of course.) I found myself becoming very anxious all day about meeting them and this really surprised me. I went, thinking it would be good for me, but found that I came home early and was feeling very anxious, almost upset about the experience. I'm sure it was a mixture of emotions that came up for me. One, was that it brought home to me a huge part of my life that I have lost (I loved my job a lot and the people in it as much) and two., I felt like an outsider in their company. I'm sure they didn't notice but I found I had little to talk about that didn't involve doctors or pain, which has been a huge part of my life this past year. I tried not to refer to any of it but I did so automatically on one or two occasions. When I came home I was uneasy having spoken about my health. People, I feel don't want or need to hear my woes, especially when socialising. And I am also aware that cancer is something that a lot of people are not comfortable being around. I have suddenly realised since my recent surgery that my life has changed dramatically. I have been working so hard at staying positive and keeping that smile on my face and now I suddenly feel completely detached from the real world. I am beginning to not want to meet anybody who is not family or close friends. is this a stage i'm going through or should I be concerned? I'm hoping it is just part of living with cancer and that I will become sociable again in time. I hate the thought of having to endure counselling and face more emotional stuff but I really don't want to withdraw too much as I'm guessing that's a slippery slope ... Anne
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posted by thedibs
24 January 2014

TV Documentary for BBC NI

Last reply: 25 February 2014 16:26
My name is Eamonn and I'm making a new documentary for BBC Northern Ireland which aims to try and understand more about the psychological, physical and emotional impact that cancer can have on the someone suffering from the illness and their loved ones. We need people to share their stories as part of the film. Please let me know if this is something that you could help us with. Many Thanks Eamonn
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posted by Georgie123
24 January 2014

Taxol and herceptin

Last reply: 28 January 2014 10:47
Hi all, due to start new chemo drugs next week, taxol and herceptin, having weekly treatment, anyone had this, can you give any advice on what to expect. Thanks
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posted by happymum
30 January 2014

diagnosis

Last reply: 31 January 2014 09:33
hi everyone, me back again.i went in this week to meet dr. for my radiotherapy and while chatting he mentioned my diagnosis which he says is invasive ,on my biopsy i was D C I S. , now after surgery it,s invasive.i know it wont affect my prognosis ,which is excellent but it threw me as all the research i had been doing was on d c i s.I am meeting oncologist next week.Has this happened to anyone else and also can we get a copy of our pathology results, I know nothing about grade ,stage or quality of tumour.I do know size.I feel very stupid as I know very little about my illness!
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posted by BrianMacca
14 February 2014

Happy Valentines' Day

Last reply: 15 February 2014 21:15
Hi everyone, yes it is Valentines Day, this is my FIRST post as I have only joined this message board. My new resolution is to keep up the enthusiasm to contribute. For the past two years I have been receiving treatment for prostate cancer. I have remained upbeat about this but in the day centre I have not had much opportunity except occasionally to chat with a fellow surviver. These last two years I have been busy doing study, I am a general nurse and now when I go for treatment I am so to speak on the other side of the bed. Anyway, I know there are many people who must read these blogs. Just reading or listening is a gift in itself. I love writing, chatting, sharing things. I am not on any other blog as I want to give time to this site. Well if anyone wants to ask any questions or share some thoughts please do. Like tonight I am sitting in with my wife waiting to watch the Late Late show - I believe all about singles. Any way it is something to do together. I am on hormone therapy so not much happening in that department, nudge, nudge. If you are alone tonight and feeling blue well cheer up - there is always something really good around the corner. Good night.
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