Community

Hi all out there with CLL just got my diagnosis 4 weeks ago I am in the wait and see group next appointment is the 19th of September then I hope to get what stage I am at I have been active all my life (68 years old) but over the last year or so I have noticed I was getting tired and not recovering well after cycling events that I have done for many years hope to connect with people that have already got there stage information and would love to share any news that could support and help each other stay safe and try not to worry too much life is for living so let’s get togeather and support everyone living with cancer

I just don't know what to feel I feel like im not in reality and in a few days I'm going to have a stoma bag an start chemo an radiation

Got my results this week. I have invasive ductal carcinoma, it was also found in the lymph node biopsy. I need to have an MRI, CT and bone scan this month to stage it. First line of action will be chemo, they are hoping to start this by the end of the month. Don't think it has hit me yet!

Hi I just had it confirmed today I have small cell lung cancer I I will need chemo and radiotherapy. I have a few practical questions. First one been a wig ware do I buy one in Dublin I'm not vain but don't want to fighting my children or grandchildren this soon chemo starts next week and want to be prepared for every outcome without giving them to much worry.im also incredibly worried about my husband he is my second husband and not the father of my children but they adore him even though they are very close to there dad so are my husband and I but my husband suffers from ptsd and bipolar he is also coming back slowly from a brain injury. I need some advice on how to cope with who is going to take over my home with him when I'm gone This is there family home and he has lived hear for almost 20 years 2 of my sons want to live and look after him and both get on really well with him and all the grandchildren adore him. Do I make a will or affidavit as its very important that he is taking care of and it would put my mind at ease. I kind of know my outcome as I've been with my brother and sister through chemo before they passed away 😢 and also another brother who decided against treatment I know chemo should buy me some time ⏲️ but probably not enough to organise things when chemo kicks in. I probably have a lot more questions but it's just sinking in a little and all the time in the world is such a short time now I'm not giving myself time to think about it I was quite positive up till today no I'm more worried than anything else. I would be grateful for any advice you can give me Thanks for taking the time to read this Paulax

Hello, I've recently been diagnosed with ocular melanoma, I know this is a more rare type of cancer and I'm struggling to find much support for this type. I'm currently being treated, I'm in recovery from my second surgery at the moment and I wanted to ask if anyone has been through eye cancer and has experience or could point me in the direction for help with dealing with it please. Thank you

I am a 34 year old woman, I was diagnosed with grade 2 breast cancer yesterday. I am having surgery to have it removed next week. I am expecting a call from the Cancer nurse tomorrow but I am just looking for suggestions for questions I should ask? It doesn't look like I should need chemotherapy as of yet but I am aware that can change once they have a look at the lump and surrounding tissue once it's out. Any suggestions welcome. Thank you.

I have been diagnosed with prostate cancer during the week. My consultant recommended two options: 1. Radical Prostatectomy or 2. Hormone Treatment for 4 months followed by 7 weeks radiation 5 days a week. The consultant is terse and not comfortable with patient communication- the review consultation lasted 6 minutes. I asked about my suitability for brachytheraphy and his response was "- it's not available in this hospital and it has fallen out of favour " and "it will render you unsuitable for later prostatectomy if needed". He favours Prostatectomy. I am to see him again in two weeks, however I am considering a change of consultant to someone who has better patient communication skills and who is willing to discuss other options rather than dismiss them. I have also explored NanoKnife and made contact with the King Edward v11 Hospital in London. They will review my histology report and MRI report (when I receive them). I have a Gleason 3+4, with 2 of the 14 biopsy samples being 5.1 (Grade Group 2) and MRI :PIRADS 4. I feel with such scores that I should have more options than radical prostatectomy. I plan to seek my histology report and MRI report from my current consultant tomorrow but I am unsure of the protocol. Should I ask my GO, whom I am also meeting tomorrow, to request them or request that they be sent to my GP.

Hi, I don't honestly know if I'm looking for advice, or if I'm just having a rant at the apparent shambles of care my mother has gotten since she was diagnosed with bladder cancer in the middle of March. Synopsis: - 14 March Tralee. diagnosed with bladder cancer - 21 March - 12 April ULimerick Hospital Consultation, and kept for test that they kept postponing until she said she was leaving if we they didn't do the remaining tests. (Over 3 weeks in Limerick for tests that should have been done in a week max, in my opinion). I've forgotten many of the dates in-between, but she began chemo with the idea that she would have surgery after, if she responded well, but it didn't work out for her as she was too wrecked after the chemo even when it was reduced. She wasn't coming around as she usually did after her final chemo treatment and as she wasn't getting treatment her weekly blood check had also stopped. -20 July. My dad took my mom to the GP as she was very very weak and GP left her home again don't even remember what his "diagnosis" was, if he had any. (This is the same GP that allowed 2 years of recurring UTIs go on without thinking further testing might be advisable). - 23 July. I called the ambulance, she wasn't eating, wouldn't take all her meds, was confused. Turns out she had Urosepsis and was in hospital for over a week. - 2 August. Discharged, without a care plan 🙈 (After I explained to numerous different medical staff that there was already a fully dependent adult in the household, so it has gone from a house where two adults cared for one person to a house where one person cares for two. (There are supports in place for the previous care situation, that's not what I'm talking about). We had to phone around and follow up to eventually get some care support ( Just once every second week, as that's what my mom wants, minimal intrusion. She is back walking around again. - 10 August (Last Thursday) Multidisciplinary team met with all of the updated test results. My mom followed up today, no response from the doctors involved, while she anxiously waits the next steps. What is wrong, why do we have to keep chasing up with people to get them to do their job and at least communicate what is happening. - 15 Aug (today) Phoned GP to get report from recent MRI, he is on holidays. Mom felt like she might be getting another UTI so saw one of the other GPs at her practice, was given 3 days of antibiotics, and a print out of the MRI. Why are all the communications so disjointed? How long should it take for somebody from the Multi Disciplinary Team to get back to us and tell us what the next plan is? The above doesn't include everything, but it's all I have the energy to write at the moment. There have been some great care staff in the hospitals, but they are all over worked. This state is a joke.

Hi, I’m starting chemo tomorrow. I’ve 4x ac & 4x t. Anyone else starting this month? I’m anxious and a little scared which surprised me as I’m 53! Best of luck to everyone starting & all those going through it as I type x

Hi, My sister has just been diagnosed with BC, we've an appointment with the consultant to get the biopsy results and treatment plan next Monday (3rd July) - are there any suggestions as to questions we need to ask, TIA, Scoilte Mc