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posted by mairead33
01 April 2019

Ileostomy reversal

Last reply: 2 months ago
I am presently recovering from rectal cancer surgery December 2017 and had an ileostomy reversal in April 2018. As my bowel motions are still quite erratic I would like to connect with others who have had an ileostomy reversal experience to ascertain perhaps how long it took for the bowel motions to settle or what their experience has been. Thank you.
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posted by Irish Cancer Society
06 March 2018

Tell your bowel cancer story

Last reply: 2 months ago
If you or someone in your life has been affected by bowel cancer and are interested in sharing your story, consider becoming a media volunteer with the Irish Cancer Society. Sharing your story can help to raise cancer awareness, inform people about our services, appeal for volunteers, and bring reassurance to cancer patients and their families. After you express an interest in becoming a media volunteer, we would discuss with you how best to share your story, getting your permission before publishing or broadcasting.
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posted by ptfahey
02 September 2017

Lynch Syndrome

Last reply: 5 months ago
What is Lynch Syndrome? (Thanks to Sir John Burn Lynch Syndrome UK Conference 2015) We all inherit our DNA 50% from each parent. If we have LS then one of our repair genes is good while the other one is faulty. Think of the repair genes as two Doormen on the door at a night club. Nothing is going to get past them that shouldn’t. This is a person without LS Imagine one of the Doormen needs the toilet and walks off. We still have one doorman watching and keeping us safe. This is a person with LS Imagine the other doorman now needs to toilet and leaves. Nobody is now watching door. This is what happens when one good gene goes faulty for what ever reason. Anybody can just walk in now In brief, we only have one repair gene looking out for us and if it gets damaged in a cell we are left with no protection. See Lynch Syndrome Ireland Web Site + Facebook Page + Twitter
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posted by Geraldine 973
12 January 2020

Teachers and getting leave

Last reply: 5 months ago
Hi My mum recently diagnosed with stage 4 bowel cancer. We want to bring her home once she's done with hospital. Has any other teacher been in this position of caring for a parent and what did you do about getting leave from work?
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posted by Paulad
21 May 2019

Surgery waiting time

Last reply: 1 year ago
My daughter met with her consultant last week and we were told she will need a Colectomy , he said it would be about a month. Can any one tell me what the usual waiting time for surgery in limerick hospital is ? We’re very anxious for her to have it
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posted by KD
27 April 2019

Stage4

Last reply: 1 year ago
I have advanced bowel cancer. I notice online that there aren't as many posts although it's very common. I am only 42 and a mother of 4 who always ate well and excercised. I have a braf mutation which is aggressive and patches moved to my liver, intestine and one lymph gland. Only symptoms where when liver began to hurt as my bowel tumour was very narrow. Chemo has rid cancer on the gland but is proving resistant elsewhere so I'm now on Cetuximab still and tablet chemo. It would be good if there were more post out there so I added mine.
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posted by mairead33
01 April 2019

Ileostomy reversal

I am presently recovering from rectal cancer surgery December 2017 and had an ileostomy reversal in April 2018. As my bowel motions are still quite erratic I would like to connect with others who have had an ileostomy reversal experience to ascertain perhaps how long it took for the bowel motions to settle.
Read the post
posted by desperately se…
13 July 2018

After chemo where now?

Last reply: 1 year ago
My husband Tom (28) was diagnosed with Colon cancer in Jan this year. Thankfully the lymph nodes were clear despite initial fears as they were inflamed. Cancer was labelled 2B. It was a T4 tumour. The cells were moderate to poorly differentiated which are not the best kind. 6 months of Chemo is finishing soon. I am terrifed and unsure how to proceed. Tom's oncologist does not fill me with great confidence as we haven't seen him since January and there are some other worrying aspects of the care that bother me. I would appreciate any advice. What should happen at the end of chemo? I only know about the colonoscopy and the CT scan. Is there any blood test that can be done regularly or other things we can do to stay alert to cell changes. He tested negatively for lynch syndrome.
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posted by desperately se…
13 July 2018

After chemo where now?

My husband Tom (28) was diagnosed with Colon cancer in Jan this year. Thankfully the lymph nodes were clear despite initial fears as they were inflamed. Cancer was labelled 2B. It was a T4 tumour. The cells were moderate to poorly differentiated which are not the best kind. 6 months of Chemo is finishing soon. I am terrifed and unsure how to proceed. Tom's oncologist does not fill me with great confidence as we haven't seen him since January and there are some other worrying aspects of the care that bother me. I would appreciate any advice. What should happen at the end of chemo? I only know about the colonoscopy and the CT scan. Is there any blood test that can be done regularly or other things we can do to stay alert to cell changes. He tested negatively for lynch syndrome.
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posted by Elda
15 December 2017

Kras testing

Last reply: 2 years ago
Can anyone tell me if they test ur tumor for leas before begining treatment??? I'm due, to start chemo radiation after x mas I'm female 47 single parent of 3 boys 6/8/12 in cork,,,, low tumor, 2.5/3 cm T3 N2 M0 inside the anal verge so as u can imagine I'm anxious that this treatment works, so I can b reconnected afterwards
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