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posted by Mrs_H
21 November 2021

COVID and School going children

Hello I have finished 4 x AC Chemo sessions and am starting weekly Taxol and others Chemo sessions from this week. My daughter is and there are cases of Covid in her school. The school are great and communicating with parents - so I kept herself off for the last 10 days. I also don't want her to miss out too much - and am in a quandry as to send her back in or not. What are others doing? Thanks
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posted by Tee
18 November 2021

Mam newly diagnosed and terminal

Last reply: 3 days ago
Hi I am hoping someone can help me. My mam went in for routine apt in hospital for her heart (she hasn't had one for 2 years due to covid). They found shadows on her lungs which was not like something that would be found in the lung. It was found to be breast cancer and she has spent last few weeks in hospital and was transferred to the mater and then released. We have now got word that she has apt in Tullamore hospital next week. She is on oxygen now and very weak. The original cancer was breast but now in lungs and lymp nodes. Can you please advis of what questions to ask the doctor at appointment..they have already told her that they will not be operating but that is all we know. Thanks for any advice just a bit lost
2 comments
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posted by Louisa
16 November 2021

Finished treatment

Last reply: 11 days ago
Hi, I'm just finished a year of treatment for breast cancer. After a tough road everything has gone very well and my oncologist said he is very happy with my response to treatment and seems quiet positive about going forward. I am of course very relieved and happy that my treatment has gone well, however I feel somewhat lost at sea. Its like the tsunami has hit and now I'm just in open water bobbing along, also the fear of it coming back is always there. Has anybody else felt like this following treatment and does time really help heal? Thank you x
1 comment
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posted by Twinkle3
13 October 2021

Current Wait Times for Symptomatic Clinic

Last reply: 11 days ago
I am just wondering what everyone's experience has been regarding waiting times to be seen at the Symptomatic Clinic? I discovered a lump on my breast about two weeks ago. I was seen by my GP a few days later and she agreed it needed to be assessed and sent a referral to the Clinic in Galway. I am reading about wait times of up to 8 weeks given COVID backlogs. Does anyone know if I am likely to be waiting that long? I have a very strong family history of aggressive breast cancer unfortunately so am absolutely worried sick. I also have private health insurance but not sure if this is something I can use to get an initial assessment or where? Any help would be really appreciated.
6 comments
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posted by mrsb
07 October 2021

DCIS - constant sweating

Last reply: 24 days ago
Hi all, I was diagnosed with early stage breast cancer in June 2020. I had a lumpectomy, 25 sessions of radiation treatment and am currently on Tamoxifen 20mg. I had numerous infections post surgery which delayed the healing process and I also have lymphoedema. I’m just wondering if anyone else has had issues with severe sweating? When it starts it’s from the top of my head to the tips of my toes and can last for some time and I’ve even had to change my clothes on numerous occasions because of it. I know hot flashes and sweating are a side effect of the tamoxifen but just wondering if what I’m dealing with is ‘normal’? It’s getting to the point now where I don’t even want to leave the house as I never know when it’s going to happen, how bad it’s going to be, how long it will last and I feel like I constantly smell as I can’t use any of the deodorants I used before being diagnosed. Thanks, MrsB.
2 comments
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posted by Dilly
11 September 2021

DCIS

Last reply: 2 months ago
Hi all, I was diagnosed with DCIS 10 years ago. I had 2 surgeries to remove it. Then I had my radiotherapy 30 sessions. Everything went like clockwork. Then my husband started having heart problems. Well long story short I start looking after him. This all happened at the same time as my surgery. Anyway I'm on a waiting list for reconstruction as I'm lopsided. Where would I get the bras and prosthetics. I can't wear anything tight. Thank you and I wish you all well on your journey.
3 comments
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posted by Freesia71
07 September 2021

Metastatic Breast Cancer

Last reply: 2 months ago
Hi Everyone. Wanted to share my story so far to see if anyone else is in the same position as me. I am 49 and in May was initially diagnosed with breast cancer. I was scheduled for surgery and after reporting a pain/lump in my neck got referred for a CT scan. The CT showed lesions in my liver so the unfortunate diagnosis of MBC came. I was on Ibrance, zoladex and letrozole for two months. Due to high liver enzymes I've been taken off the Ibrance. I am waiting to see the oncologist to see what's next. I went back to work and want to stay in work. I am finding the whole thing as nothing short of torture as it's on my mind 24/7. I was ok whilst I was on the treatment and I thought that everything was going well. How is anyone else coping with the diagnosis of MBC?
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posted by Mrs_H
01 September 2021

Waiting Times

Last reply: 2 months ago
I had a biopsy on July 20th, which showed grade 2, Her2 positive cancer, stage 2. Since then - nothing has happened... I am waiting. Is that normal for COVID times?
2 comments
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posted by claudia merfu
19 August 2021

Hysterectomy after breast cancer diagnosis

Last reply: 3 months ago
Hi, I'm 45yo, and in April i was diagnosed with stage 1abreast cancer , hormone positive and HER negative, i went through a lumpectomy with sentinel node biopsy, and nodes were clear, I'm on tamoxifen now, and my gynecologist is advising on a total hysterectomy with a dual oophorectomy. Is this a normal thing to do under the circumstances, i mean i don't want kids, nor do I have any, but the ovaries taken as well, seems ,to me obviously, a very extreme measure, and although I am aware that ovarian cancer might be in the books, it seems from the things that i read, that coronary artery disease,ling cancer and colorectal cancer might be following this procedure anyway....Obviously, my doctor would know better, as I read this information online, but I'm looking for a bit more information on the subject...has anyone been through a similar experience?thank you
2 comments
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posted by Resolute
10 August 2021

Letrozole

Last reply: 3 months ago
Hi there, following breast cancer, surgery and radiotherapy I did 5 years of Tamoxifen and I am now in my third year of letrozole .. Mensturation stopped completely when I started Tomoxifen but I now suddenly have some bleeding/brown discharge .. is this normal or so I need to make an appointment with my doctor?
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