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posted by emsarah11
12 January 2023

prosthesis

Last reply: 25 days ago
Good Afternoon, i have had a double masectomy, and have two prosthesis i find them very heavy and hot can someone recommend a lighter one please.
1 comment
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posted by libra1975
30 December 2022

Late effects radiotherapy

Last reply: 30 days ago
Hi everyone, I was just wondering if anyone else had a similar experience. I finished two weeks of radiotherapy the end of July this year. I had mild side effects, like itchy skin, redness, breast feeling hot. They disappeared about five weeks after. But for the last six weeks or so, it has come back stronger than before. I am still moisturizing twice daily and doing my exercises. But my breast has become slightly bigger than the other one, is painful, itchy red and sometimes feels warm. I was referred back to the breast clinic but was told it's from the radiotherapy and to take paracetamol. I honestly felt fobbed off by the doctor (not my breast surgeon). Has anyone advice on what product to use? I am using Aveeno at the moment. Has anyone experienced something similar? Its really getting to me now, and I don't sleep well, due to the pain. Thanks for any advice
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posted by Whatelse
25 October 2022

Colouring hair

Last reply: 3 months ago
Hi, new here. Sounds very fickle but finished chemo in the summer had surgery now waiting on radiotherapy. My hair thankfully has started growing but it is Silver/Grey..... not what I would choose. I wear a headscarf currently but I was wondering has anybody dyed their hair before the recommended 6 months or what did you use? I couldn't be in public with it as it is I'm in my early 40's. Thanks
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posted by claire cc
20 October 2022

3D Nipple Tattoo Recommendation

Hi everyone. I was diagnosed with breast cancer back in June 2020 and I had an immediate implant reconstruction in December 2020. I got upset daily when I caught a glimpse of my new breast in the mirror as they were unable to keep my nipple. I found a most wonderful and skilled tattoo artist based in Dundrum Hannah Vard Ryan. I went to Hannah twice the first time was in July of 2022. To say she is an angel on earth is an understatement - she completely puts you at ease and takes time to listen to any concerns/nerves you may have and discusses in detail the process. The first session took c. 2 hours and was not painful and I went home with a pep in my step. Seeing it transforming over a number of weeks was very heartening. She provides you with detailed home care and is always available if you have any queries. I had my second appointment last Sunday (great she works Sundays no need to take time off work :)) . I was in there for about an hour chatting away to Hannah while she worked her magic - when she completed the job and showed me the finished result in the mirror I was beyond emotional and feel like the old me is slowly coming back that is thanks to Hannah. She is an expert in her field the 3D effect is unbelievable. I would recommend Hannah to anyone she is so kind, considerate, professional and an all round lovely woman and I wish her all the best with her career she really is a gem and the light at the end of a dark tunnel for us all. As I said to her she is the full stop at the end of a very tough chapter. Happy to answer any questions anyone may have. Hannah can be contacted at www.hannahvardryan.com where she has numerous photos of her fabulous work.
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posted by Greenday
02 October 2022

Radiotherapy and Implants

Hi I am due to start 21 session so of radiotherapy next week. My margins were close and near the chest wall hence radiotherapy. However I was so disheartened to find out that capsular contracture is a possibility. Have you experienced this after radiotherapy or did you manage to avoid it ?
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posted by jonathanadler
12 September 2022

Do metastatic patients never fully get rid of the cancer?

Last reply: 4 months ago
I am a metastatic breast cancer patient, after 12 years remission from ER+, PR+, HER2+ my cancer came back as ER-, PR-, HER2+. It is a mass in my chest, in the lymph nodes of my right armpit and a tumour on my pancreas. However both my breasts are clear. I've been receiving Paclitaxel, Pertuzumab and Trastuzumab on the first week of each cycle, Paclitaxel on the second week and then a third week off. My recent CT showed things have shrunk a lot and after one more cycle of chemotherapy I'll start maintenance with just Pertuzumab and Trastuzumab every 3 weeks. I'm confused because when I first had breast cancer I was treated until it was gone, then put on Arimidex tablet maintenance. This time around I'm starting maintenance even though there is still some cancer left. My oncologist said it will never go away fully and this is what we do, but I just wanted to check if this is common? It feels a bit horrible still having it in me... All the best, Bernadette
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posted by twig88
12 September 2022

Starting chemotherapy

Last reply: 2 months ago
Hi all, I’ve been diagnosed with triple negative breast cancer and I am starting AC chemotherapy on Wednesday. Feeling quite anxious, nervous and frightened, if anyone has any advice or tips for me on what to expect/do. Thank you.
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posted by cal89x
10 September 2022

Question

Last reply: 4 months ago
Hi there, My mum had an appointment the week before last as she suffers with cysts a lot. On the day she was told yep her cysts were back and they were drained and not else was done or showed up on the mammogram or scans. She said her doctor did mention to a trainee doctor. this patient has been here before, knows the routine and something about coming back in 6 weeks. My mum then got a letter in the post 3 days later asking for her to come back in 6 weeks for another mammogram and ultrasound. Is this normal? Someone had mentioned that this was normal procedure if they didn’t get a chance to chat to you on the day and there is nothing to worry about. Thanks
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posted by Elpalda
02 September 2022

Amidex tablets and tofj

Last reply: 5 months ago
Hi, I'm 95% vegan and am trying to increase my protein. I started putting tofu into soup. I take 1mg of Amidex tablet every day. Is it ok to eat tofu when taking this tablet? Is there any food I should avoid? Many thanks, Elaine
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posted by jonathanadler
25 July 2022

Denosumab

Last reply: 6 months ago
Hi all, I'm a hormone receptor-negative, HER2+ metastatic breast cancer patient receiving Paclitaxel, Pertuzumab and Trastuzumab on the first week of each cycle, Paclitaxel on the second week and then a third week off. I have osteoporosis that predates this relapse and take a Prolia (Denosumab) 60mg injection every six months to protect my bones. This is my first injection while on chemotherapy and I'm wondering if it's safe? My doctor said it was fine, but didn't really stop to think about it and I'd value a second opinion if anyone has had any experience!
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