Community

I am stage 4 with as my consultant has said, He has very aggressive rapidly castrate-resistant metastatic prostate cancer. He has told me I will need Pluvicto now or in the very near future. We had applied to the Treatment Abroad Scheme as this treatment is not available yet in Ireland and were duly refused on the following grounds. "The TAS does have the remit to fund drug therapies" "The patient is attending as a private patient. The TAS covers public patients only" The application was re-submitted and again declined and this time for different reasons. Any Ideas on what I should do next, Rgds Peter

How long does it take to get back to peeing normally after surgery and catheter

Hi, I am low risk prostate cancer. I've had biopsy and MRI. Gleason 6. I think (!) that I would like a PSMA pet scan to give a better image of my prostate. If necessary, I could pay privately. How can I get PSMA pet scan?? Thanks folks,

Hi I've had a diagnosis of grade 4 prostate cancer. The good news is that CT and bone scans reveal it has not metastasized. Very relieved and hence considering my options optimistically! I'd be interested in hearing from anyone who has undergone a radical prostatectomy and their experience of managing incontinence and preserving some sexual function. Thank you

Hi there, I recently had a biopsy. I would like a SECOND opinion on this biopsy - totally independent of the first opinion that I recently received. How do I get a second opinion on a biopsy? Thank you.

My partner had brachytherapy for localised prostate cancer in October 2020. His PSA is now rising again and he has been offered Hormone Therapy. The cancer is still contained within the prostate gland. We have been looking at the possibility of a Salvage Prostatectomy in the UK. I would be most grateful if anyone with experience of either of these treatments could tell us how they worked out. Thank you.

Hi, I have just recently been diagnosed with with prostate cancer and have opted for for RARP, scheduled for early May. I am interested to know if anyone has experience of pre-operative physio? My main worry with the prostatectomy is the incontinence issues and I am interested in getting some specialist phsio support in advance to ensure I am effective in working on my pelvic floor. I will ask my consultant (by email as I dont have another pre-opp appointment booked) but wanted to know if there were any physios that might have some expertise in this specialist type of treatment with men pre and post prostatectomy. Also interested in any good resources on specific exercises programs . Thanks to all those who have posted on this forum, looking back at previous posts has been really helpful and encouraging for me as I deal with my diagnosis.

Since my first post last November, all was on course until December 2023. I had the usual blood tests and my PSA levels were on the rise again. I had been on Zytiga for some time but this drug was interfering with my liver function , so on to a different drug but this caused a lot of dizziness and lightheaded moments, so bad I refused to drive. So after a blood test in November my PSA had risen to 18 , it had been down to 0.75. Oncologist brought forward a PSMA petscan 4 days later and I was back in to see him 22 December. The news was not good, unfortunately your cancer is in the lymph nodes and the left lung and is now ' Incurable '. So now on another drug ,Daralutimide and hopefully this one can hold off the spread . So far no ill effects bar the usual ,tiredness ,fatigue . So now at Stage ivb prostate cancer ......the future ...lets see what it brings Peter

I had prostate cancer some years ago. And it was successfully treated by brachytherapy. Unfortunately it has returned. My consultant has now recommended testosterone suppressing medication followed by focussed, high-dose brachytherapy. There are risks of damaging side effects with this treatment. I am aware of newer, reportedly much less risky treatments abroad such as NanoKnife ( irreversible electroporation ) in the UK ( London)and elsewhere. This is not available here. Anybody out there willing to share their NanoKnife experience with me please?

Having been diagnosed with prostate cancer in February this year at the grand old age of 40, I had surgery in June. Cancer has officially gone, but its the after effects of surgery I'm struggling with. No more than the lack of elections, using the pump once a day for 10 minutes, have been a bit slack this week, only used it 3 times. The viagra isn't having any effect whatsoever, going from a walking erection to nothing is difficult mentally. To be honest the urge isn't even there anymore. I have full control of the bladder and use the gym around 3 to 4 times a week, I'm in pretty good shape physically considering what I went through, just this last hurdle to get over. I know it can take anything up to 2 years to get back to near where I was previously, I just suppose I needed to vent a little is all