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posted by Rolexwatch1
28 October 2021

Letrozole

Last reply: 12 days ago
Hi I have just finished Tamoxifen after 5yrs, and started on letrozole about 6wks ago. I have not had a period in over 6yrs since chemo, I had blood tests which showed I’m in menopause but this wk I have had heavy bleeding (I presume a period) has anyone else had this experience
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posted by Cancer Nurse
24 August 2021

Managing menopausal symptoms

  A brief post around managing menopausal symptoms during and after cancer treatment: Many women suffer from menopausal symptoms but in particular those who are on treatments to reduce the amount of oestrogen in their system. Symptoms can include aches and pains, hot flushes/night sweats, low mood and anxiety – among others. We have some helpful information on our website about the different symptoms of menopause nd some practical tips you might try (see the link below). Some symptoms can get you down. It can be hard to find the motivation to try and make lifestyle changes. This can be partly due to the menopause but can also be due to so many other concerns you have at this time. Making a phone call to our nurses, to your own nurse or doctor in your hospital, or to your GP, is the first step. There are some prescribed medications which may help with some symptoms. Many people will try all of the suggestions made to them and still struggle. Counselling and talking to others who have been through this may also help. I will include links on all of these supports below. I do hope we will hear from you as each person’s experience is individual to them and so often that one-to-one conversation can help. You can talk about what you have already tried and if it has or has not helped…and talk about other worries you may have that is making everything so much harder to deal with. Here is a link to our information on Managing menopausal symptoms. You can contact us on the Irish Cancer Society Support Line 1800 200 700 and speak to one of our cancer nurses or email us on supportline@irishcancer.ie You can also contact us at our cancer nurses at our Daffodil Centres located in 13 hospitals nationwide  see www.cancer.ie/support/daffodil-centres If you would like to speak to someone who has been through the menopause as a result of their treatment this can be arranged by our nurses. For more information on this see here:  Survivor Support programme. . The Society also funds professional one-to-one counselling and group survivorship programmes in communities all across the country. Contact us if this is something you might like to arrange. Take care  Cancer nurse.    
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posted by Irish Cancer Society
11 August 2021

Take a survey to help with our cancer research

Want to help out with our cancer research? If you or a family member Are waiting on cancer surgery, Have had cancer surgery within the last year, Or you are involved in the care of surgical oncology patients, Trinity Exercise Oncology Research group would like to hear your thoughts on exercise before surgery. You don't have to have experience with exercise to take part. Please feel free to share with any friends of family who you think may be interested in taking part. Link to questionnaire: https://nursingandmidwifery.fra1.qualtrics.com/jfe/form/SV_2hGvspwQsx9AqlU Contact: exerciseoncology@tcd.ie
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posted by el1981
07 June 2021

Hair loss

Last reply: 5 months ago
Hi I had my 1st cycle of TC chemo 16 days ago & my hair started to fall out in clumps on sat & now 2 days later I’ve barely any hair left …I won’t b surprised if I’m completely bald in 2/3 days …I’m absolutely devastated as I didn’t expect it 2 happen so quickly to be honest Thanks
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posted by AnnH
21 May 2021

Post mastectomy advice

Last reply: 5 months ago
Hi everyone, I had a single mastectomy on May 4th without reconstruction and was hoping someone could advice on where to buy some kind of really soft camisole/vest that will create a barrier from clothes but wont rub or move and irritate skin as I am very sore and sensitive.I dont want to wear a post surgical bra as I got a post op infection which as left me really sore. no matter how soft the shirts/ tops that Im wearing are as they move they are rubbing and causing painful irritation at least a bra would create a barrier but because of the infection I would rather wait until everything is properly healed. I am finding myself holding the material of whatever I am wearing away from my skin all the time. Is this just par of the course and something I just have to put up with? Kind regards, AnnH
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posted by davidmcnally97
22 March 2021

Hodgkin lymphoma

Last reply: 8 months ago
Hi I just finished 6 months of treatment for Hodgkin lymphoma. I’m 23 and in my final year of my engineering degree. I’m struggling to stay focus and can’t get any work done. I am still waiting on my post scans to make sure it’s gone. If anyone have any helpful tips or information that be great. I don’t want to defer or let this cancer delay my efforts in getting my degree. Thank very much and if anyone wants to talk about anything I am here too.
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posted by Irish Cancer Society
11 December 2020

Take part in a cancer research study about body image and lymphoedema

Are you over 18? Have you been told in the last 12 months that you have lymphoedema as a result of cancer treatment by a health care professional? If you have, our reseachers would like to hear from you! A team of researchers at DCU, funded by the Irish Cancer Society, are looking for people who have been recently told they have cancer related lymphedema to take part in a research study. The study involves filling out questionnaires on how you feel about lymphoedema, how it affects your life and your body image. Body image refers to the picture we have of our own bodies and the emotions and thoughts associated with that picture. For further details and more information, please go to https://www.facebook.com/Bodyimageandcancerrelatedlymphoedema or contact Emma Byrne at emma.byrne83@mail.dcu.ie  or from 9am – 5pm at the following number  083 0953847.
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posted by Irish Cancer Society
17 November 2020

Take part in a cancer research study about complementary or alternative medicine

The Clinical Nutrition & Oncology Research Group in University College Cork are conducting a national survey looking at what types of complementary or alternative medicine cancer patients/survivors are using throughout the cancer journey and how they feel about complementary or alternative medicine. They’re hoping to be able to use the responses to see how best to support patients who wish to use these therapies and how best to discuss this within the hospital setting. If you or anybody you know has had or still has cancer, and was treated in Ireland, they would love to hear from you. They are looking to hear from people who have used complementary or alternative medicine and those who have not. You can sign up for the online/telephone survey here and if you are interested, they will also be organising more in-depth telephone interviews to hear peoples' opinions on this topic. It takes 2 minutes to sign up and the online survey takes about 45 minutes but you will get an email link where you can access it as many times as you need to complete it, and your responses will be saved for you in between sessions. Contact erin.sullivan@ucc.ie or 085 133 3050 for more information.
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posted by carac
03 October 2020

How to know when your react to go back to ok

Last reply: 10 months ago
Hi I had triple positive breast cancer so gone through surgery (March), 12 sessions chemo, 4 weeks radiotherapy and ongoing herceptin and tamoxifen. Still having loads of fatigue, joint pain etc Just thinking about future and want anyone experience about when I could consider going back to work. It’s difficult in COVID times to get a real sense of how long this will take - just frustrated to get back to ordinary life again Any advice??
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posted by Cathyhyn
17 February 2020

Metastic breast cancer

Last reply: 5 months ago
I was diagnosed with cancer for the third time at Christmas . Am totally traumatised . Have had radiotherapy and am now on bone strengthening treatment every four weeks . Am very tired is this normal:
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