Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by Rebelchick
08 July 2020

Renal Cancer

Just wondering is any one currently going through oral chemo for renal therapy. This is my second time round on sutinent (sinutab) - the side effects are very different from the last time round - just wondering are others going though the same journey .
Read the post
posted by Ava
02 July 2020

Vaginal Dialators

Last reply: 6 days ago
I heard Vicky Phelan say that silicone dialators are now available rather than the hard plastic ones that I received during my radiation treatment. How would I go about getting them?
1 comment
Read the post
posted by ICS Nurse Aileen
20 April 2020

Look Good Feel Better Virtual Workshops

  Look Good Feel Better is a charity that helps boost the physical and emotional wellbeing of women undergoing cancer treatment. Their dedicated team of volunteer make-up artists run workshops across Ireland where women undergoing treatment are invited to attend. During COVID-19 many cancer treatments continue and like all of us in these uncertain times they have found new ways of providing their workshops. Their virtual workshops and informative tutorials will help you with some of the issues you may be experiencing as well as giving you the opportunity to connect with others. To sign up for a ‘virtual make over’ visit their website: www.lookgoodfeelbetter.ie
Read the post
posted by Cathyhyn
17 February 2020

Hello

Last reply: 3 months ago
Is anyone using this
4 comments
Read the post
posted by MaryB
05 April 2020

Monthly Faslodex injections and Port flushing

Last reply: 3 months ago
I have to get monthly injections of faslodex which up until now I was getting done in hospital by an oncology nurse. I also have a port which I understood needed to be flushed every 4 weeks in hospital. Just wondering in the light of covid-19 and avoiding hospitals if - Firstly do I need to have my port flushed every 4 weeks and, if not, how often do I need to get it flushed? It can only be done in hospital as G.P. wouldn't have the necessary equipment. Secondly, can my G.P. or practice nurse give me my faslodex injections? I assumed the oncology nurses were specially trained on how to administer these injections as they are intra muscular.
2 comments
Read the post
posted by Cathyhyn
17 February 2020

Metastic breast cancer

Last reply: 1 month ago
I was diagnosed with cancer for the third time at Christmas . Am totally traumatised . Have had radiotherapy and am now on bone strengthening treatment every four weeks . Am very tired is this normal:
34 comments
Read the post
posted by happydays
04 March 2020

Zometa

I’m on monthly transfusions of zometa . Feeling bloated and puffy. Anyone else on this treatment . Thanks
Read the post
posted by Lambo
07 February 2020

Drug reimbursement, how does it work

Last reply: 4 months ago
Hi, I was diagnosed a long time back with head and neck cancer and it has metastized, however, it was not squamous cell carcinoma but clear cell carcinoma. My understanding is that this cancer type, rare as it is, is more commonly found in the kidney. I constantly review different treatment options out there but thus far nothing has worked for me. Latest update I have found is that a combination of Nivolumab (Opdivo®) with ipilimumab (Yervoy®) seems to have best response for RCC. (Renal Cell Carcinoma) My query is this, looking at the HSE approved list of drugs, this combination is approved for use in patients with Renal cell carcinoma, and it's also approved for head and neck patients with squamous cell carcinoma So, my head and neck is not squamous cell carcinoma, so I guess that rules me out on that basis, and even though my cancer is more associated with RCC, I am also ruled out of this combination treatment because my cancer is head and neck even though it's more commonly part of RCC. Can someone please advise what are my options here and if I have this right. I have tried taxol and platin, that combination didn't do anything, also tried sunitinib, which also did nothing, I am now on Xeloda. Should this latest treatment not do anything then I want to raise the possibility of Nivolumab (Opdivo®) in combination with ipilimumab (Yervoy®) with my consultant, but want to know if it's reimbursable for my particular case. Would appreciate any help from anyone out there who might know more on this subject.
2 comments
Read the post
posted by Derek.123
19 January 2020

Living with cancer

Last reply: 5 months ago
Hi my name is Derek I am 58 years old I'm living with malignant melanoma and 3 brain tumors. 2 weeks before christmas I was having my first radio therapy and took a stroke the same Friday evening and didn't find out it was a stroke till the following Tuesday. Whole left side now paralyzed still living at home with home care help and my daughter Jayne and my wife olive. 4-6 months to live and very hard to live with. I was a cook for 31 years in the army. My last while has been tough great family support. Fighting cancer 17 years.
3 comments
Read the post
posted by FAPHusband
28 February 2017

familial adenomatous polyposis

Hi I'm new to the forum. Not sure if Im on the right one, so Ive posted this to a few....My husband was diagnosed with FAP over 13 years ago and had an immediate preventative subtotal colonectomy with IRA. Wondering has anyone out there also been diagnosed with this very rare genetic condition and if so, if they'd like to share?
Read the post
© Irish Cancer Society 1999-2020 All Rights Reserved