Look Good Feel Better is a charity that helps boost the physical and emotional wellbeing of women undergoing cancer treatment. Their dedicated team of volunteer make-up artists run workshops across Ireland where women undergoing treatment are invited to attend. During COVID-19 many cancer treatments continue and like all of us in these uncertain times they have found new ways of providing their workshops.
Their virtual workshops and informative tutorials will help you with some of the issues you may be experiencing as well as giving you the opportunity to connect with others. To sign up for a ‘virtual make over’ visit their website:
I have to get monthly injections of faslodex which up until now I was getting done in hospital by an oncology nurse. I also have a port which I understood needed to be flushed every 4 weeks in hospital. Just wondering in the light of covid-19 and avoiding hospitals if -
Firstly do I need to have my port flushed every 4 weeks and, if not, how often do I need to get it flushed? It can only be done in hospital as G.P. wouldn't have the necessary equipment.
Secondly, can my G.P. or practice nurse give me my faslodex injections? I assumed the oncology nurses were specially trained on how to administer these injections as they are intra muscular.
Hi, I was diagnosed a long time back with head and neck cancer and it has metastized, however, it was not squamous cell carcinoma but clear cell carcinoma.
My understanding is that this cancer type, rare as it is, is more commonly found in the kidney.
I constantly review different treatment options out there but thus far nothing has worked for me.
Latest update I have found is that a combination of Nivolumab (Opdivo®) with ipilimumab (Yervoy®) seems to have best response for RCC. (Renal Cell Carcinoma)
My query is this, looking at the HSE approved list of drugs, this combination is approved for use in patients with Renal cell carcinoma, and it's also approved for head and neck patients with squamous cell carcinoma
So, my head and neck is not squamous cell carcinoma, so I guess that rules me out on that basis, and even though my cancer is more associated with RCC, I am also ruled out of this combination treatment because my cancer is head and neck even though it's more commonly part of RCC.
Can someone please advise what are my options here and if I have this right.
I have tried taxol and platin, that combination didn't do anything, also tried sunitinib, which also did nothing, I am now on Xeloda.
Should this latest treatment not do anything then I want to raise the possibility of Nivolumab (Opdivo®) in combination with ipilimumab (Yervoy®) with my consultant, but want to know if it's reimbursable for my particular case.
Would appreciate any help from anyone out there who might know more on this subject.
Hi my name is Derek I am 58 years old I'm living with malignant melanoma and 3 brain tumors. 2 weeks before christmas I was having my first radio therapy and took a stroke the same Friday evening and didn't find out it was a stroke till the following Tuesday. Whole left side now paralyzed still living at home with home care help and my daughter Jayne and my wife olive. 4-6 months to live and very hard to live with. I was a cook for 31 years in the army. My last while has been tough great family support. Fighting cancer 17 years.
Hi I'm new to the forum. Not sure if Im on the right one, so Ive posted this to a few....My husband was diagnosed with FAP over 13 years ago and had an immediate preventative subtotal colonectomy with IRA. Wondering has anyone out there also been diagnosed with this very rare genetic condition and if so, if they'd like to share?
Hi, I wonder has anyone experience of this drug, I have been on it for about 6 weeks and while I have no dramatic side effects I feel generally unwell - tired, low mood, aches and pains. I know it's important to keep taking it but I would like to know if you get used to it and feel better over time