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posted by PN
21 December 2020

Bile Duct Cancer -Cholangiocarcinoma

Last reply: 23 days ago
Hi -I'm only writing this as I find it impossible to talk about it to anyone. I was diagnosed with cholangiocarcinoma in November 2019. I had surgery on the affected bile duct and liver re-section in December 2019. I've had follow-up scopes and bowel biopsies since then, with the most recent blood tests for tumor markers a few weeks back. As the blood tests are done in batches the results are due around now. I missed two calls from the hospital (I didn't have my phone on me) and I suspect the calls are related to the blood test results. I've deliberately not tried to ring back as I don't want to hear any bad news before Christmas. I'm due back in January anyway for more scans. I'm finding the stress very tough at the moment and I've had more or less no contact with anyone, outside my immediate family since the first Covid lockdown in March as I've been (lucky enough) to be working from home since then. Just want to get through Christmas and face up to it again in January.
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posted by Frodo
05 December 2020

Worried, awaiting tests (bladder, kidney?)

Last reply: 1 month ago
Hi, I am male, 46 and recently had visible blood in my urine (it occurred on one day and in two occasions of urination). Ever since, I have had frequent urination, pressure/pain in the bladder/abdomen and just generally feeling unwell. I went to my doctor the day after i had blood in my urine and he did a manual check of my prostate and said everything seemed ok. There was no sign of any infection but i was put on a precautionary course of antibiotics. My blood tests came back and my doctor said that they found no cause for my symptoms and has referred me on to a Urologist (who I am still waiting to see). I also had an ultrasound and all that showed up was a small kidney cyst that the sonographer said wasn't anything to worry about. I am up the walls with worry and am finding the uncertainty unbearable. I am tormenting myself on google wondering what kind of terminal illness could be at the root of this. I would really appreciate any feedback from anyone who has gone through this. Thank you
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posted by Emjsher
18 November 2020

Stomach cancer

Last reply: 1 month ago
Hi all. It's my first time here. My mother has recently been diagnosed with stage 2 stomach cancer. She will start chemo in the next few wks and have her stomach fully removed in a couple of months. I was wondering if there is anyone in the community here that has gone through this procedure? I think it would be really helpful for her to speak to someone who has been through the experience and come out the other side?
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posted by biddyq
29 October 2020

TO STEROID OR NOT TO STEROID THAT IS THE QUESTION

My husband was diagnosed with osophageal cancer in Dec 19 had surgery in April and was told in June all looking good go home see you in six months. He continued to have pain and a small growth appeared on his scalp. We were told the pain was muscular and the growth was a cyst... in July having pushed for investigations ourselves he was diagnosed with stage 4 cancer with multiple metastasis in his bones. Th is is extremely rare which is why they dismissed the pain. this does not make it any easier. Anyhow three months on 14 weeks of chemo and he is so thin it is frightening, he has no appetite and his energy is fading fast. He gets steroids for the three days he is on chemo and gets good energy, then he is of them again, no weaning and crashes. He is under care of home care team and they are reluctant to leave him on steroids because of long term affects. He doesn't have time to have long term affects. He also sustained a radiation burn to the area around h is anus and though the skin is healing he still has a lot of pain. Any advice from anyone please. Please do not start telling me about small meals snacks etc I have been there done that. Thank you folks, I am coping most of time but at the moment watching him fade away is doing my head in and I don't feel supported by the home care team just now.
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posted by Marbel11
23 September 2020

Womb mass

Last reply: 3 months ago
Hi all, I had a hysteroscopy 2 weeks ago today after being referred for extremely heavy periods. What they originally thought to be a polyp which they planned to remove in theatre (because of its size) was biopsied. I asked if they still intended to remove the polyp and the doctors reply was that it "isn't a polyp". I am regretting not questioning further what she thought it was but just wanted to get out of there to be honest. The consultant said she would call me by the end of last week (9 days after biopsy) if there was anything sinister, otherwise I would receive a letter with the results. I havent received any results so far which I'm hoping is good news but looking through the forum, 2-3 weeks seems to be a more realistic time frame for results. Are womb biopsys different? I have rang the hospital twice since Friday with no response from the unit because I'm still bleeding since the procedure & they said should only last 3-4 days so am slightly worried. Has anyone any experience in this type of situation please? Best wishes to all of you x
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posted by Hoof1
15 October 2018

FNA biopsy on thyroid -my experience and diagnosis

Last reply: 8 months ago
I'm describing my experience of an ultrasound guided FNA biopsy for anyone who would like information on it.  Although my 2 sets of blood results were within normal ranges, my doctor noticed a lump on my neck when I swallowed during a visit. Following a consult with an endocrinologist and an ultrasound I then went for the FNA biopsy. I am in my late twenties and had no symptoms at all associated with thyroid cancer. I would have been healthy and rarely needed to visit the doctor prior to this.  I had a good experience with the biopsy. The procedure was explained to me. My head was resting over a pillow so my neck was extended backwards. My whole neck area was cleaned with a wipe and alcohol rub (not very sure about the exact materials used) and a blue gown was put around me to protect clothing from the iodine put on my neck after the biopsy. I received a local anaesthetic (which was like getting the numbing injection in the dentist only in my neck). Felt like getting blood taken, only felt a pinch. After being left for a few minutes for the anaesthetic to take effect, I had to try and not swallow/move my neck, especially when the needle would be inserted into my neck ( I had one nodule/lump on my left side only). The gel was applied to my neck for the ultrasound to guide the needle. A countdown from 3 was used so I knew when the needle would be inserted. A slight pressure was felt where the needle went in but it didn't feel tight/ choking. I just knew it was there. I found it good to focus on a point in the ceiling to distract myself from it. The needle was inserted 3 times in total to get enough representative cell samples. A sticky plaster/bandage was placed over where the needle went in which I removed the next day. Felt fine after it, went home 10 minutes or so after the procedure.  For anyone wondering how it turned out, the diagnosis was papillary carcinoma. I'm having my left lobe of my thyroid removed in just over a week and have spoken to people who have had this surgery. Outlook is positive. Did have consult with surgeon and having vocal cord check, bloods and ecg prior to surgery. Don't forget to ask about risks with flying pre and post surgery just incase you are a high risk patient for surgery. Hope this post helps someone who is in a similar boat to me
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posted by Tamz
10 March 2020

Worrying about nothing?

Last reply: 9 months ago
I had an MRI on my lower back which shows arthritis and the GP said they also mentioned some thickening of the lining of my womb. Ultrasound last year for a cyst showed everything was fine. My GP told me that this was nothing to panic about, there’s no tumors or anything this is something that just needs follow up and I may need a D&C. I looked back at my dates and noted I was ovulating around the time of the MRI. Regardless, I am In panic mode. Am I worrying for nothing??
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posted by smcpadden
05 December 2019

New Here

Last reply: 1 year ago
My father was diagnosed about 4 years ago with lung cancer. He’s also suffered with emphysema for longer. He managed at home for the past few years with my mothers care. Over the past few months his health had deteriorated. Upon our last appointment they told us he wasn’t well at all and could be a matter of weeks. He was admitted to St Mary’s yesterday and was in good spirits that they can fix him. We know at this stage there isn’t a lot they can do, but are going along with his expectations things might get a bit better. It’s been a sad experience that comes in waves. He’s very much still with it mentally. I just wanted to share and perhaps here from others who have had this experience.
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posted by Galwayauldwan
25 November 2019

The Terror of waiting

Last reply: 1 year ago
Hi all , I hope its OK to post here. My Hubby is 59 and last Thursday he had a scope procedure, they discovered a lump in his oesophagus. A biopsy was taken and a CT TAP scan was completed on Friday. So its Monday we are both in work in respective jobs . He was OK over the weekend -saying we dont know what it is ect. I am absolutely terrified - I have not told him this- I cant i need to be strong for him and our 2 sons (both grown up) So I'm posting here just so i can get it out. I have worked with Medical devices for years including esophageal stents so i probably have seen too much. so we wait. But I dont know how to wait without cracking up :( .
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posted by Armanda
16 September 2019

HER2 Positive Uterine Cancer

Last reply: 1 year ago
Anyone getting (got) Herceptin infusions for type 2 uterine cancer? I just started and wonder how its working or not working for you? Thanks for your response.
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