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posted by MollyM
21 May 2022

Lymphoma of CNS

HI, Has anyone experience of this type of cancer? I know it is relatively rare. Has anyone suffered with bowel incontinence as a result of this cancer ? Was it possible to get a colostomy bag? Many thanks
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posted by MIKEWALSH
10 November 2021

Mouth cancer

Hello Folks, I had 35 sessions of Radiation and 6 Chemo for cancer in my 'lower back tongue leading to tonsil' which I finished in early October 2021. {last month}. I've lost 3 stone ( i.e40 pounds or 18 kg). I can only take Fortisip - liquid food and my taste has changed terribly. I feel that the mucus membrane is gone from my mouth and throat and so it's hard to deal with any food. I find it to be a lonely place as there is not much follow up from my consulting team which is because they presumably are waiting for the treatment to do its job for the first months. I'd love to hear from other people who have a similar experience to mine and if they have any advice regarding my worries about taste and eating and when I can expect results of treatment and anything else they might feel I should know. Kind regards MikeWalsh
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posted by Eamon R
12 May 2021

Pancreatic Cancer Support Group

Last reply: 6 months ago
Hi All I was wondering if anyone is aware of a support group, specific to Ireland, in relation to Pancreatic Cancer ? I had the Whipple Procedure in January of this year and am currently undergoing chemo post operation. Any replies or suggestions welcome Many Thanks
3 comments
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posted by IrishHiker
05 October 2021

Buddy system?

Last reply: 7 months ago
Hi I was wondering whether or not you have the ability to set up a "buddy system" for folks. I have an MPN, Essential Thrombocythemia and it would be nice to connect with someone else who has the same diagnosis.
1 comment
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posted by Hoof1
15 October 2018

FNA biopsy on thyroid -my experience and diagnosis

Last reply: 8 months ago
I'm describing my experience of an ultrasound guided FNA biopsy for anyone who would like information on it.  Although my 2 sets of blood results were within normal ranges, my doctor noticed a lump on my neck when I swallowed during a visit. Following a consult with an endocrinologist and an ultrasound I then went for the FNA biopsy. I am in my late twenties and had no symptoms at all associated with thyroid cancer. I would have been healthy and rarely needed to visit the doctor prior to this.  I had a good experience with the biopsy. The procedure was explained to me. My head was resting over a pillow so my neck was extended backwards. My whole neck area was cleaned with a wipe and alcohol rub (not very sure about the exact materials used) and a blue gown was put around me to protect clothing from the iodine put on my neck after the biopsy. I received a local anaesthetic (which was like getting the numbing injection in the dentist only in my neck). Felt like getting blood taken, only felt a pinch. After being left for a few minutes for the anaesthetic to take effect, I had to try and not swallow/move my neck, especially when the needle would be inserted into my neck ( I had one nodule/lump on my left side only). The gel was applied to my neck for the ultrasound to guide the needle. A countdown from 3 was used so I knew when the needle would be inserted. A slight pressure was felt where the needle went in but it didn't feel tight/ choking. I just knew it was there. I found it good to focus on a point in the ceiling to distract myself from it. The needle was inserted 3 times in total to get enough representative cell samples. A sticky plaster/bandage was placed over where the needle went in which I removed the next day. Felt fine after it, went home 10 minutes or so after the procedure.  For anyone wondering how it turned out, the diagnosis was papillary carcinoma. I'm having my left lobe of my thyroid removed in just over a week and have spoken to people who have had this surgery. Outlook is positive. Did have consult with surgeon and having vocal cord check, bloods and ecg prior to surgery. Don't forget to ask about risks with flying pre and post surgery just incase you are a high risk patient for surgery. Hope this post helps someone who is in a similar boat to me
3 comments
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posted by Paris2021
08 June 2021

Gastric mass

Last reply: 11 months ago
Hi my husband is waiting to get a biopsy on a 3cm mass attached to his stomach wall he has had ct and mri and barium swallow they are confused but said it is an oval solid with some dark thick fluid the tests also state that the mass is heterogeneous in appearance and returns an intermediate signal on T2 W I am really confused with these results cam someone shed a bit of light on them? Really appreciate it xxx
1 comment
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posted by Maeve
29 April 2021

Parotid Tumor

Last reply: 1 year ago
I've just been diagnosed with a malignant parotid tumor and to be honest until a few weeks ago didn't know was the parotid gland was. Is there anyone else out there going through this type of cancer? Id love to connect with people going through this too.
1 comment
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posted by AnnieD
12 April 2021

Driving after thyroid fna

Last reply: 1 year ago
Hi. I’m going for a thyroid fna to have nodules assessed. I have been told to not drive for 24 hours afterwards because I will have a local anaesthetic. But surely this is the same as a local anaesthetic at the dentist?? Anyone advice would be appreciated
1 comment
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posted by Amaru124
28 March 2021

Tonsil concerns

Last reply: 1 year ago
Hi, I am worried about my right tonsil. It seems to have got bigger recently but not swollen if that makes sense. It's opened up at the top and is when you compare both tonsils it's not even a defined shape, just bits of circular tissue. I have been having chest pains and pus pockets behind my tonsils so I have been on calvepen for 4 days and there is no difference. I am worried as there is a red nodule hidden above the misshapen tonsil, very sore and very hard to see. Also my soft palate seems like it is swollen and lower down and my uvula has a transparent coating to it. I am worried about hpv cancer of the tonsil as it is so odd the way it is growing so randomly and antibiotics are not having any effect. Any advice for this?
2 comments
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posted by Freckles
23 January 2013

Ocular Cancer (Melanoma of the Eye)

Last reply: 1 year ago
I have recently been diagnosed and have had Radiation treatment for Ocular Cancer (Melanoma of the Eye). I would like to hear from other people who have had or have the same problem. Regards
2 comments
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