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posted by biddyq
29 October 2020

TO STEROID OR NOT TO STEROID THAT IS THE QUESTION

My husband was diagnosed with osophageal cancer in Dec 19 had surgery in April and was told in June all looking good go home see you in six months. He continued to have pain and a small growth appeared on his scalp. We were told the pain was muscular and the growth was a cyst... in July having pushed for investigations ourselves he was diagnosed with stage 4 cancer with multiple metastasis in his bones. Th is is extremely rare which is why they dismissed the pain. this does not make it any easier. Anyhow three months on 14 weeks of chemo and he is so thin it is frightening, he has no appetite and his energy is fading fast. He gets steroids for the three days he is on chemo and gets good energy, then he is of them again, no weaning and crashes. He is under care of home care team and they are reluctant to leave him on steroids because of long term affects. He doesn't have time to have long term affects. He also sustained a radiation burn to the area around h is anus and though the skin is healing he still has a lot of pain. Any advice from anyone please. Please do not start telling me about small meals snacks etc I have been there done that. Thank you folks, I am coping most of time but at the moment watching him fade away is doing my head in and I don't feel supported by the home care team just now.
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posted by Marbel11
23 September 2020

Womb mass

Last reply: 05 October 2020 14:01
Hi all, I had a hysteroscopy 2 weeks ago today after being referred for extremely heavy periods. What they originally thought to be a polyp which they planned to remove in theatre (because of its size) was biopsied. I asked if they still intended to remove the polyp and the doctors reply was that it "isn't a polyp". I am regretting not questioning further what she thought it was but just wanted to get out of there to be honest. The consultant said she would call me by the end of last week (9 days after biopsy) if there was anything sinister, otherwise I would receive a letter with the results. I havent received any results so far which I'm hoping is good news but looking through the forum, 2-3 weeks seems to be a more realistic time frame for results. Are womb biopsys different? I have rang the hospital twice since Friday with no response from the unit because I'm still bleeding since the procedure & they said should only last 3-4 days so am slightly worried. Has anyone any experience in this type of situation please? Best wishes to all of you x
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posted by Tamz
10 March 2020

Worrying about nothing?

Last reply: 16 March 2020 16:02
I had an MRI on my lower back which shows arthritis and the GP said they also mentioned some thickening of the lining of my womb. Ultrasound last year for a cyst showed everything was fine. My GP told me that this was nothing to panic about, there’s no tumors or anything this is something that just needs follow up and I may need a D&C. I looked back at my dates and noted I was ovulating around the time of the MRI. Regardless, I am In panic mode. Am I worrying for nothing??
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posted by smcpadden
05 December 2019

New Here

Last reply: 10 December 2019 10:52
My father was diagnosed about 4 years ago with lung cancer. He’s also suffered with emphysema for longer. He managed at home for the past few years with my mothers care. Over the past few months his health had deteriorated. Upon our last appointment they told us he wasn’t well at all and could be a matter of weeks. He was admitted to St Mary’s yesterday and was in good spirits that they can fix him. We know at this stage there isn’t a lot they can do, but are going along with his expectations things might get a bit better. It’s been a sad experience that comes in waves. He’s very much still with it mentally. I just wanted to share and perhaps here from others who have had this experience.
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posted by Galwayauldwan
25 November 2019

The Terror of waiting

Last reply: 26 November 2019 10:09
Hi all , I hope its OK to post here. My Hubby is 59 and last Thursday he had a scope procedure, they discovered a lump in his oesophagus. A biopsy was taken and a CT TAP scan was completed on Friday. So its Monday we are both in work in respective jobs . He was OK over the weekend -saying we dont know what it is ect. I am absolutely terrified - I have not told him this- I cant i need to be strong for him and our 2 sons (both grown up) So I'm posting here just so i can get it out. I have worked with Medical devices for years including esophageal stents so i probably have seen too much. so we wait. But I dont know how to wait without cracking up :( .
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posted by Armanda
16 September 2019

HER2 Positive Uterine Cancer

Last reply: 30 September 2019 09:36
Anyone getting (got) Herceptin infusions for type 2 uterine cancer? I just started and wonder how its working or not working for you? Thanks for your response.
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posted by aroche747
05 September 2019

osephageal cancer

Last reply: 06 September 2019 15:15
Hi there my mam has just finished her six week radium and chemo treatment for an 8cm tumour on her osephagus . it was treated with curable intent but since mam has finished treatment there doesent see to be an improvement in her yet is this normal she flew trough the treatment but appears worse since its finished.. The radium doc said it the radium would be in her system for 6 to 7 weeks we have a scan in two weeks we are very worried.
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posted by JOE MAC
15 July 2019

Chondrosarcoma

Last reply: 19 July 2019 16:45
Is anyone out there going through treatment for this cancer or any survivors out there? I got diagnosed with this cancer, the Tumour was removed, but the healing is taking so long, infection, MRSA, continues to need to drain. PAIN!!! and that's before follow up treatment, chemo or radiotherapy. Any help or thoughts or suggestions more than welcome. My email is Killasser@outook.com. Thanks Joe.
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posted by Lambo
18 January 2019

Follow up screenings

Last reply: 23 January 2019 12:00
Hi, recently had a diagnosis of head and neck cancer, and possible metastasis due to one lymph node being positive for tumor. Primary tumor resected with follow up radiation. Can people advise in such a case what does the normal follow up screenings consist off .?
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posted by Ailoco
11 October 2018

Vulvar cancer

Last reply: 09 November 2018 09:17
Hi I was diagnosed with Vulval cancer in Jan 2017, at the age of 39. I had a partial radical vulvectomy 4 days later. All going well at my checkups until my 18 month check. Seems there are some areas of concern again, although my consultant thinks that should treatment be needed after the biopsy it will be laser treatment. I know women with this cancer are very few and far between, and I am a member of 2 online groups but they are uk & america, so thought I would post here and see if there is anyone else in the same or similar position, closer to home. Btw I'm in Dublin
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