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Rare Cancers February 28th is Rare Diseases Day. We would like to take a moment to highlight rare cancers. There are over 200 different types of cancer. Rare cancers are uncommon cancers, only a small number of people are diagnosed with these cancers each year. They are defined as rare when the amount of people who are diagnosed with it is equal to or less than 6 new cases per 100,000 persons in one year. Around 1 in 5 cancers diagnosed in Europe is rare. Having a rare cancer can be difficult to cope with as there may be less information available about your type of cancer. People with a rare cancer may also feel more isolated as they are less likely to meet another person with the same cancer. It is important to know that you are not alone, we can provide you with information about help and supports that are available for you. More information about rare cancers can be found on our website: Rare cancers | Irish Cancer Society. If you would loke to speak with one of our cancer nurses please call the Support Line on 1800 200 700, Monday – Friday, 9am – 5pm.

Hi I've a lesion on my kidney got a letter to attend a urologist in Dublin the waiting time is 6 months anyone else like this Christasse

Hi Looking if anyone has had a diagnosis of this particular cancer signet cell gastric adenocarcioma My husband had no symptoms just off food for 2 to 3 weeks was admitted to hospital in late September 2022 got a diagnosis of stage 4 signet cell gastric cancer 12 days later and died 12 days after that seemly this cancer shows no symptoms till your stage 4 . It has been so hard to accept that someone can be taken so suddenly really on the flip of a coin . Have looked for information or support group but their does not seem to be any. We as a family are heartbroken at how sudden the onset was and are looking for anyone who has had this or has information.

Has anyone else on this forum undergone radiotherapy, chemo and had a trachea tube fitted as part of treatment for throat cancer? I finished the treatment 12 months ago and had the trachy removed 6 months ago. Since then I have developed internal and external lymphodoema. I also experience considerable pain and discomfort. I cant seem to get any answers as to how long the lymphodoema will last and whether the pain is normal. Any thoughts welcome

Hi, I am 6 weeks after esophagectomy and still very weak and struggling to put on weight. Just wondering has anyone else experience with this? Have some other complications also. Thanks

HI, Has anyone experience of this type of cancer? I know it is relatively rare. Has anyone suffered with bowel incontinence as a result of this cancer ? Was it possible to get a colostomy bag? Many thanks

Hello Folks, I had 35 sessions of Radiation and 6 Chemo for cancer in my 'lower back tongue leading to tonsil' which I finished in early October 2021. {last month}. I've lost 3 stone ( i.e40 pounds or 18 kg). I can only take Fortisip - liquid food and my taste has changed terribly. I feel that the mucus membrane is gone from my mouth and throat and so it's hard to deal with any food. I find it to be a lonely place as there is not much follow up from my consulting team which is because they presumably are waiting for the treatment to do its job for the first months. I'd love to hear from other people who have a similar experience to mine and if they have any advice regarding my worries about taste and eating and when I can expect results of treatment and anything else they might feel I should know. Kind regards MikeWalsh

Hi All I was wondering if anyone is aware of a support group, specific to Ireland, in relation to Pancreatic Cancer ? I had the Whipple Procedure in January of this year and am currently undergoing chemo post operation. Any replies or suggestions welcome Many Thanks

Hi I was wondering whether or not you have the ability to set up a "buddy system" for folks. I have an MPN, Essential Thrombocythemia and it would be nice to connect with someone else who has the same diagnosis.

Hi my husband is waiting to get a biopsy on a 3cm mass attached to his stomach wall he has had ct and mri and barium swallow they are confused but said it is an oval solid with some dark thick fluid the tests also state that the mass is heterogeneous in appearance and returns an intermediate signal on T2 W I am really confused with these results cam someone shed a bit of light on them? Really appreciate it xxx