Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by surviving
13 September 2012

Bladder cancer

Last reply: 27 August 2015 10:02
Is there anyone out there who has been diagnosed with Bladder Cancer? I was diagnosed with this just last year - which came as a terrible shock to me. My husband and I were away from home at the time and I had an episode of very heavy bleeding which frightened me. (We spent almost an entire night in an A&E and I was told that this was a 'bladder infection,' given antibiotics and sent home for further investigation in my nearest hospital. The later diagnosis shocked me as I have never smoked even one cigarette in my life. (This, apparently, is the primary cause of this type of cancer.) I am female (just 58 at the time of diagnosis) and have always been very healthy and fit - don't drink either. I feel that this is an environmental issue (I live on the East coast) and would like to be in touch with others who have been diagnosed, with a view to doing my own research into the whole area of this type of cancer. As it is often referred to as an 'elderly man's' disease, I would also like to hear from women out there who have been diagnosed. The youngest lady I have been in touch with is just 25. Any response would be greatly appreciated.
2 comments
Read the post
posted by sprocket
10 December 2012

sarcoma in abdomen

Last reply: 27 August 2015 10:01
Hi, I am a 29 year old male, I had a sarcoma removed from my leg earlier this year, had radiotherapy. However I have had a recurrence in the abdomen, had ct scan and was told it hadn't spread and they are fairly confident its not stuck to any organs. Meeting specialist tomorrow but Just cant believe it came back again and that now I have to face chemo. Is there anybody who has had sarcomas and how have you dealt with them? Thanks
1 comment
Read the post
posted by lottie
23 January 2013

Oesophageal Cancer

Last reply: 27 August 2015 10:01
Hi all, have just joined the message board and have started this thread on oesophageal cancer. My husband was diagnosed a few months ago. It is a cancer which appears to be increasing in incidence, so I am sure that there are some people (patients, survivors, carers, etc.) who may wish to chat. I am happy to share our experiences thus far, and offer/receive any advice.
3 comments
Read the post
posted by ann
16 September 2008

THYROID CANCER

Last reply: 27 August 2015 10:01
Would love to hear from someone else who has experience of this cancer. Am due to start radio active iodine treatment in the following two weeks.
6 comments
Read the post
posted by northernstar
26 March 2013

Tongue Cancer

Last reply: 27 August 2015 10:00
hi, i have been diagnoised with tongue cancer and told i also have some in a gland in my neck. I am currently waiting on radium treatment to start. to say this is a shock is an understatement - i thought i had an ulcer in my mouth! has anyone been through radium on the mouth? what can i expect? any help/advice greatly appreciated...
4 comments
Read the post
posted by kimmyone
22 April 2013

Oral Cancer - Tumour on Tongue

Last reply: 27 August 2015 10:00
Hi, I was diagnosed in February last year with cancer of the tongue. Professor Stassen, St James, explained I would need surgery to remove the tumour. After discussions with Professor Stassen and Prof Hollywood, St, Lukes, I opted for chemo 5 sessions, and radiotherapy - 35 sessions prior to surgery. My husband (actually my ex husband, who has been by my side all through this, my rock) and I really hoped it would kill the tumour, (it didn't ) but it did reduce it. I eventually had surgery in November 2012. The theatre procedure was right total hemiglossectomy, a right modified radical neck dissection, and they did a reconstruction with left anterolateral thigh flap to reconstruct the right tongue, floor of the mouth. I was told I would not be able to speak after the surgery, but I may be able to make sounds. However, three weeks after surgery I did talk. My speech is no where like it used to be and I do tell people that I had an operation as it helps relax things. I had a great speech therapist who helped me improve. Also as I had radiotherapy before the operation it meant that the healing process was a lot slower and I now suffer from lympheodema as they also removed a number of lymph nodes from the right side of my neck. At the minute I attend a therapist who specialises in lymphatic massage. This whole cancer thing is very hard, everything in my life has changed and it is very hard on my family too. I hope sharing my experience of oral cancer so far, helps in some way. Biopsy tongue 3/1/12 (49 yrs, 2 sons, 21 and 20). Diagnosed Cancer 1/2/12 PET CT 6 cm lesion 16/2/12 Surgery scheduled March, however larger lesion discovered, surgery postponed 9/3/12 PEG / Rig 15/3/12 5 Chemo 35 Radio PET CT good response 2/10/12 Biopsy 18/10/12 cancer still there MRI showed Lesion reduced 15/11/12 Surgery - Trachea, R hemiglossectomy R mod radical neck dissection, L anterolateral thigh flap 16/11/12 Diagnosis yPT2NoMo
3 comments
Read the post
posted by Duckie 65
17 August 2009

Mouth Cancer + Radiotherapy

Last reply: 19 August 2009 14:26
Hi. I've just started radiotherapy for mouth cancer and would like to hear from anybody who might tell me about their experiences. Don
2 comments
Read the post
posted by Buddylove
06 February 2014

Carcinoid cancer

Last reply: 07 February 2014 15:33
My dad has been diagnosed with carcinoid cancer, a tumour on the bowel. Unfortunately they can't do anything for him here in Ireland as it is too far advanced. The only treatment available to him is available in Rotterdam in Holland. We are just waiting for a call to go over here. So I guess this is all new to us & know very little about this treatment. Was just wondering has anybody here or know of someone who has traveled abroad for this treatment? Thanks in Advance.
1 comment
Read the post
posted by Henna05
04 June 2014

Suspected uterus cancer

Last reply: 16 June 2014 18:00
Hi This is all new to me so please bare with me . I recently went for a D&C and hysteroscopy due to the fact I was bleeding mid cycle with fierce cramps etc etc The gyno did a transvaginal scan with speculum etc etc only to confirm what I was experiencing. While in hospital getting procedure pics were taking of my uterus which I was told are inflamed, a little bit anxious as I have to wait 6 weeks for results I'm a young mom 36 with 2 kids.. Has anyone experienced these symptoms , if so please share.... Henna05
2 comments
Read the post
posted by ber08
11 July 2014

non hodgkins lymphoma

Last reply: 18 July 2014 11:56
My fiancés father has been diagnosed for the 3rd time he is currently undergoing chemo, I know absolutely nothing about this cancer, like prognosis etc. His blood count was down but up from previous visit. He's normally a very fit matt thats nearly 70.hes very tired but not sick with treatment or he hasnt lost his hair
1 comment
Read the post
© Irish Cancer Society 1999-2025 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.