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posted by Romybriem
24 September 2020

Advanced prostate cancer with liver and bone metastasis.

My husband has been battling prostate cancer for many years now. He is 62 and very determined and positive. I’m supposed to be his Carer but while I’m good at the medical stuff I’m rubbish at the emotional support. I suffer from severe depression and anxiety and feel so inadequate that I’m not stronger for my husband. I also have a lot of physical illness. Any one else feel like this?
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posted by Lindah1967
19 August 2020

Kidney Cancer

Last reply: 1 month ago
Hi, My mother had her kidney removed 7 weeks ago but they didn't get all the cancer and they also found it in her lymph node. The oncologist are not giving her any more treatment and she is being referred back to her surgeon. We feel very in the dark at the mo. She is waiting to have another scan to see if it has shown up anywhere else and it is a high grade cancer. Our worry is that she is in pain, she has received some stronger pain killers after we contacted the hospital and her doctor but we are feeling useless and unsure how to help mam with this pain.
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posted by Cath Williams
09 August 2020

Fatigue and lack of appetite AFTER cancer treatment has concluded

Last reply: 1 month ago
My husband has recently completed his treatment (chemo & radiotherapy) but his fatigue and lack of appetite have gotten worse over the last 7 days (he completed treatment 2 weeks ago). He is now sleeping 20 hours a day and is eating very little, sometimes nothing. I have tried lots of recipes and tempting treats that he normally likes but he is not eating and continues to lose weight. I am really at my wit's end and simply do not know what to do. I intend to call the doctor in the morning but he does not want me to do that. He is lacking all energy for anything and I really do not know what else to do. Any suggestions please. Thanks
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posted by sandie20
04 August 2020

Advise on weight loss

Last reply: 1 month ago
Hi all Husband has started treatment for his lung cancer we have just completed week 1 and he has lost so much weight I’m scared dnt know how to help what to do for him any advice would be great I feel out of my depth here and we have only just started this journey
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posted by catriona
19 July 2020

Continuous Nausea

Last reply: 2 months ago
Hello. My Dad has just completed his second round of chemo(folfox). He experienced continuous nausea with vomiting after his first treatment. He ended up in hospital and was put on a pump to administer anti-nausea meds. He had his 2nd treatment on Thursday (they adapted his infusion in the hope he wouldn't be as sick) and while he is nowhere near as bad as he was the last time he still is feeling continously nauseous. He was vomiting on Friday but that has stopped now. I suppose I'm just looking for advice on any tips any of you might have on how to combat nausea. He's tried Valoid, Maxolon and Zofron but they don't seem to do anything to alleviate the symptoms. Thanks.
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posted by Annette
17 July 2020

Helping my dad

Last reply: 2 months ago
Hi there, my dad has been told that the cancer has spread to other places and is not curable. He is losing weight rapidly and losing interest in most things. I'm just looking for advice on what I can do to help make his days bearable. Some days he stays in bed and I'm trying to find ways to show him we care and bring some enjoyment to his day. New to this so open to all suggestions. Thank you
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posted by Miriam
05 April 2020

Breast cancer

Last reply: 5 months ago
Hello, my mother was just diagnosed with secondary breast cancer. She is starting hormonal therapy tomorrow. Any advice on how I can help ease her worries and anxieties and my own!? Is there anything I can tell her to prepare for possible side effects? Thanks in advance. It’s a worrying time
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posted by Oran379
19 March 2020

Emotional support for my Mum

Last reply: 5 months ago
Hi there, I’m looking for any advice/ideas for how my family and I can help my Mother’s mental/emotional state, which has taken a dramatic decline in the past few weeks. Mum was diagnosed with terminal stage 3 non small cell lung cancer last September. Since then, she has endured 5 rounds of carbo/taxol and 1 round of immunotherapy. She has suffered every symptom and has had to be hospitalised after each and every treatment received. During her most recent stay in hospital (last week!) her Doctors suggested taking a few months off from treatment all together because it’s making her so ill. They will assess again in 8 weeks but indicated to Mum that they cannot continue with treatment when it is having such adverse side effects. This seems to have signalled the end to Mum, and we fear that she is throwing in the towel. She isn’t bothering to eat at all this week, and though we are a very close family who freely talk about feelings, Mum is barely speaking to any of us. She seems deeply deeply depressed and we are heart broken. We would desperately love for her to talk to somebody experienced (and think she may be open to counselling) but we do not know where to turn and are unsure about what services are currently active or even accessible to her given the situation with COVID. We are beyond devastated....any/all suggestions for my Mum are welcome. Many thanks x
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posted by paulb
11 September 2019

CUP

Last reply: 1 year ago
Hello to all the beautiful people in this fabulous community. My wife was diagnosed with CUP June 2018 6 months after we got married. She was at the recent seminar in the Red Cow last Sat 7th September, thank you to all who gave their time she enjoyed her day and especially the choir at the end, there wasn't a dry eye leaving. One of the workshops that really has been playing on her mind "Living Life with Metastatic (Secondary) Cancer You see, my wife Davinia has been diagnosed with such CUP metastatic in her lymph nodes? We hear all these stats and figures of 5 years etc. ( I tend to stay away from Dr Google). and it all can be really confusing for her. Over the past 18months, she has been through 47 chemo sessions and 11 radiation sessions, Recently been told that the Avasten with her Chemo this time round has been good and there has been a significant improvement so she has been given 3 months break from chemo but still continue Avasten every 3 weeks. The significant improvement in her since her 3 weeks stay in hospital in June has been two-fold, energy levels coming back, being able to be a mother again dropping our sons to school and catching up with friends etc, getting massive compliments of the wigs she wears and able to pull off the different colours lol!!! Unfortunately, night time is not a good time for her.. Her thoughts run away with her.... I am up with her in the middle of the night most nights when I hear her crying and scared, we even sleep with the light on to try to give her some comfort. It is confusing for me and can be frustrating when I see her doing so well regarding energy levels and her appetite is back to somewhat normal??? I say to her she should be proud of the battle she is winning and the progress she has made this year... Gary Kelly Centre in Drogheda has been tremendous support for her as the hospital (Beaumont) I am trying to be a light of positivity for my wife and our children but can be so hard when she hears the words metastatic which she then implies she doesn't have long left to live??? I hope I can open up a conversation here with both people who are diagnosed and partners who are caring for them. Talk Soon Paul
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posted by Gersy
16 August 2019

Gbm4

Last reply: 1 year ago
Anyone reading this who is also caring for a loved one with a gbm4 diagnosis? It's heartbreaking to watch, in my case it's my husband and best friend. He's my hero. The rapid growth of his tumour in just a month left him in a wheelchair with no mobility on his left side. I am lucky to have home help, I wouldn't survive without it. The hardest thing now is preparing myself for life without him. I have some idea of what to expect as he declines, I can already see a dip in his strength and memory loss returning. He has had 6 weeks of radiation and chemo. That finished at the start of August. The uncertainty is difficult.. No one can tell you when major changes will happen. I pray for the strength to keep smiling for him and I thank God for every day. I miss him already as the disease robs more of his personality, at least he is not in pain. All he wants is to wiggle his toes, and of course stand up and walk. Maybe today I can make him smile. Small steps.
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