We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.



posted by shiv76
12 January 2024

Elevated liver enzymes

Last reply: 23 January 2024 13:49
Hey everyone My partner had high liver enzymes after just one dose of Carpo Taxol weekly protocol . Hasn’t been able ti have chemo in 3 weeks due to it ( weekly protocol ) They have a plan but just seeing if anyone else has such a crappy start
1 comment
Read the post
posted by HKB
10 January 2024

TIAs and cancer

Last reply: 11 January 2024 12:31
My 91 year old mother was diagnosed with esophageal cancer at the end of Sept. She's had a stent inserted and is not having other treatment. So she's basically in palliative care at home and we have great support from the local medical community. She had an incident this morning where after feeling weak and being helped to sit on her bed, she basically froze, staring, unable to speak or react to us speaking to her. Her head and neck were rigid and her eyes were unfocused. We've been told she may have already had a TIA or could have them and I'd like to know if this was a TIA. I haven't seen her have one before, though she's complained of the back of her head being 'uncomfortable' on two other occasions... So far there are no visible side effects, such as a stroke might produce or anything similar. She's tired but OK afterwards. Thanks for any input.
1 comment
Read the post
posted by Amandacat
15 December 2023

Anger issues and how to cope

Last reply: 18 December 2023 16:08
My dad was diagnosed with stage 4 lung cancer 3 weeks ago, spread to ribs and breast bone. He is 79 and is very very frail so would not be able for treatment. He is experiencing visual and auditory hallucinations atm The palliative team have referred him back to hospital for urgent hypercalcemia treatment. My question is while i understand that it is so scary for him right now and with not feeling well and in pain his mood is bound to be low but he is getting very verbally aggressive with my brother (his main carer as my brother and his family live with him). He is taking out all his anger on him. Blaming him for him getting cancer because he called the ambulance the 1st night. Fighting with him constantly. This is having a real adverse effect in my brother's mental health. He isnt like that with me as I'm not there 24/7. Apart from me telling my brother to not take it personal as its based out of fear and to remove himself from the room when my dad gets this way, is there anything else i can suggest? Many thanks
1 comment
Read the post
posted by Aayushee
05 November 2023

Reports and Treatment Summary

Hello all, I am Aayushee, I am currently living in cork to support my sister on her cancer journey. We are originally from India. I have a doubt, my sister was admitted in mercy university hospital cork for 26 days as she developed an infection in surgical site post surgery, we haven’t received any discharge/ treatment summary containing the details of her treatment during that duration. She is currently undergoing chemotherapy and we would need the same details when she is done with her treatment as this would be helpful in taking it back to India for second opinions from doctors. How can I get these? We had reached out to FOI for scan reports and have received them, but I am still not clear about these treatment summary details.
Read the post
posted by RK
16 October 2023

Preparing myself for the end

Last reply: 16 October 2023 10:36
My husband and myself are 40. He has been diagnosed with life ending cancer. It is quite extensive. Last August we were told stage 4 lung, lymph nodes, spine, hip and thoracic. This year it’s spread to more bones, stomach lining and liver. My husband is completely in denial about his palliative diagnosis but I’m aware and happy to help him think he will survive. I’m heartbroken but I’m off work as a carer which I am grateful to have this time together. My main concern one I’ve been nervous to ask is what should I expect to happen near the end. Right now he’s being treated with palliative radiation for severe pain. And chemo to lengthen things. Any advice please would be appreciated.
1 comment
Read the post
posted by Margherita
15 October 2023

Looking for other spouses/carers to relate to about the experience.

Hi, I am a 39 year old woman, with a 5 year old daughter and a husband in his early 40s who is currently in chemotherapy for secondary cancer. He first had cancer 5/6 years ago, and the outcome of his surgery and chemotherapy then was very positive. Unfortunately, it's come back quite aggressively in multiple sites, and we've had an exhausting time since his first symptoms last December. I have access to therapy, a good and caring gp, and a supportive family. But I find myself most often craving a conversation with another person whose spouse is in a similar position, or another cancer patient with a young family, or just anyone who can relate to where we are right now. Family and friends mean so well but they don't really know what to say, and that gets tiring to engage with. I'm surprised to discover there are a lot of support groups for patients, but none for carers, that I can find. The cancer support centre in my county has counselling but that's not what I want. I don't need any more sympathy, I need to relate. As I'm sure plenty of people already know, the Facebook groups can be helpful for info but also full of weirdos with juice recipes to cure cancer. Anyone else out there feeling the same way?
Read the post
21 May 2023

Looking after my husband

Last reply: 02 June 2023 10:38
Hello there, I'm currently looking after my husband who has cancer, and I've stopped work to become his carer..he is on chemo, his tumours are shrinking, and some tests are very positive...but I'm not in a good head space really myself, as I keep thinking the worst case scenarios and its making me sick too. Am I the only person who feels and thinks like this?? I really need some kind of support I think...we live with my elderly father too..who has been great...but I know he doesn't want to see me crying, and my family are just OK, not a great I silly and selfish to feel so lost and sad I need to be perfect for my looking after him 7 days a wk. Thankyou folks in advance ❤
1 comment
Read the post
posted by Ohjustpeachy
16 March 2023

Supporting parents and trying to remain calm

Last reply: 21 March 2023 16:17
My Dad has been undergoing treatment for prostate cancer about 15 years. My Mam had a lumpectomy for breast cancer in Jun 2021. Mam has since been taking hormones after radiotherapy and is quite well. My Dad has just found out his cancer is now "advanced" and requires chemo to hopefully prevent further metastasis. Understandably they are both reeling from the news, but I am caught in the middle and find it utterly draining being mediator and loving daughter. My Mam rings me to rant daily, Dad is on lots of other meds and has become very confused - she is convinced he has dementia but he has refused tests for that. Mam has refused to join any support groups and despite repeatedly asking her to talk to a friend or join a group and being straight with her about how difficult it is to listen to her ranting about his latest infractions she cannot hear me. I'm posting here because I want to find out if others have experienced similar, seek assistance with how to remain the loving daughter while managing their affairs and how to stay calm and impartial. Any suggestions would be appreciated.
Read the post
posted by abc@@@@1234
01 March 2021

Oesophageal Cancer

Last reply: 02 March 2023 06:47
My Father is 67 years old and was diagnosed in December 2020 with Advanced Oesophageal Cancer, we are devastated, my family’s lives are in turmoil and my father is trying to come to terms with a death sentence. He could not avail of immunotherapy drugs that are known to help slow the growth of tumours as these drugs are not available to him for the type of cancer he has. What is wrong in this country? Why are we so behind? Why do we let people die without offering them the best possible help and care they need as these drugs could have helped prolong his life. Medical Cannabis is another drug that might have helped prolong his life but you have to meet a certain criteria to avail of Medical Cannabis as it states on, my Father has nothing to loose by trying any of these drugs but he can’t. My Father is not a number, he has a human right to access best possible care which should include medicine/drugs. As I’m typing this my father is dying in a hospital on his own and my family are helpless as we can’t help him. This is for my Dad xxx love you
Read the post
posted by ShaneK
04 February 2023

Family in denial

Last reply: 08 February 2023 16:09
Hello. My dad was recently diagnosed with stage 4 lung cancer. We have just been told that it is now terminal and his life expectancy is very short. This has come as a complete shock and my Dad and I have come to accept this diagnosis, however my sister has been in denial ever since. We also lost our mother when we were young to cancer and there is a lot of unresolved trauma so I understand why my sister is finding it so difficult to accept. My sister and I love our dad very much and we are a very close family. We our trying our best to care for him at home and keep him safe, however we are both doing this in different ways. I am trying to help my dad be as comfortable as possible and want to spend as much quality time with him as I can before he goes. I want to have the much needed and very difficult conversations with him to ensure we grant him all his wishes for whatever remaining time he has here. My sister is trying to wrap my dad up in a bubble and protect him in the hope that a miracle comes along and saves him. She is avoiding any difficult conversations and I feel my dad is scared to talk to her in fear of upsetting her. I'm worried that one day she will look back and realize she wasted all of her time with my dad clinging onto false hope instead of enjoying the time she has left with him. If she knows that I've spoken to my dad about death or end of life wishes she gets very angry thinking that I'm scaring my dad and making him loose hope on getting better. I understand she is scared and I have tried to talk to her but I think she is so far in denial the conversations may break us apart. I have never fought with my sister but we have had a couple of intense conversations the last two weeks. I worry for my Dad and I worry for my sister and I hope someone can give me advice on how to deal with this situation. I mostly want my Dad to know we will be okay and for him to be able to talk to us about his fears and what he wants for the remainder of his life
1 comment
Read the post
© Irish Cancer Society 1999-2024 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.