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posted by el1981
07 June 2021

Hair loss

Last reply: 18 June 2021 21:13
Hi I had my 1st cycle of TC chemo 16 days ago & my hair started to fall out in clumps on sat & now 2 days later I’ve barely any hair left …I won’t b surprised if I’m completely bald in 2/3 days …I’m absolutely devastated as I didn’t expect it 2 happen so quickly to be honest Thanks
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posted by AnnH
21 May 2021

Post mastectomy advice

Last reply: 07 June 2021 21:48
Hi everyone, I had a single mastectomy on May 4th without reconstruction and was hoping someone could advice on where to buy some kind of really soft camisole/vest that will create a barrier from clothes but wont rub or move and irritate skin as I am very sore and sensitive.I dont want to wear a post surgical bra as I got a post op infection which as left me really sore. no matter how soft the shirts/ tops that Im wearing are as they move they are rubbing and causing painful irritation at least a bra would create a barrier but because of the infection I would rather wait until everything is properly healed. I am finding myself holding the material of whatever I am wearing away from my skin all the time. Is this just par of the course and something I just have to put up with? Kind regards, AnnH
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posted by davidmcnally97
22 March 2021

Hodgkin lymphoma

Last reply: 22 March 2021 20:36
Hi I just finished 6 months of treatment for Hodgkin lymphoma. I’m 23 and in my final year of my engineering degree. I’m struggling to stay focus and can’t get any work done. I am still waiting on my post scans to make sure it’s gone. If anyone have any helpful tips or information that be great. I don’t want to defer or let this cancer delay my efforts in getting my degree. Thank very much and if anyone wants to talk about anything I am here too.
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posted by carac
03 October 2020

How to know when your react to go back to ok

Last reply: 24 January 2021 15:55
Hi I had triple positive breast cancer so gone through surgery (March), 12 sessions chemo, 4 weeks radiotherapy and ongoing herceptin and tamoxifen. Still having loads of fatigue, joint pain etc Just thinking about future and want anyone experience about when I could consider going back to work. It’s difficult in COVID times to get a real sense of how long this will take - just frustrated to get back to ordinary life again Any advice??
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posted by Irish Cancer Society
11 December 2020

Take part in a cancer research study about body image and lymphoedema

Are you over 18? Have you been told in the last 12 months that you have lymphoedema as a result of cancer treatment by a health care professional? If you have, our reseachers would like to hear from you! A team of researchers at DCU, funded by the Irish Cancer Society, are looking for people who have been recently told they have cancer related lymphedema to take part in a research study. The study involves filling out questionnaires on how you feel about lymphoedema, how it affects your life and your body image. Body image refers to the picture we have of our own bodies and the emotions and thoughts associated with that picture. For further details and more information, please go to https://www.facebook.com/Bodyimageandcancerrelatedlymphoedema or contact Emma Byrne at emma.byrne83@mail.dcu.ie  or from 9am – 5pm at the following number  083 0953847.
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posted by Irish Cancer Society
17 November 2020

Take part in a cancer research study about complementary or alternative medicine

The Clinical Nutrition & Oncology Research Group in University College Cork are conducting a national survey looking at what types of complementary or alternative medicine cancer patients/survivors are using throughout the cancer journey and how they feel about complementary or alternative medicine. They’re hoping to be able to use the responses to see how best to support patients who wish to use these therapies and how best to discuss this within the hospital setting. If you or anybody you know has had or still has cancer, and was treated in Ireland, they would love to hear from you. They are looking to hear from people who have used complementary or alternative medicine and those who have not. You can sign up for the online/telephone survey here and if you are interested, they will also be organising more in-depth telephone interviews to hear peoples' opinions on this topic. It takes 2 minutes to sign up and the online survey takes about 45 minutes but you will get an email link where you can access it as many times as you need to complete it, and your responses will be saved for you in between sessions. Contact erin.sullivan@ucc.ie or 085 133 3050 for more information.
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posted by soconnor
05 September 2020

Change of Oncologist - advice needed

Last reply: 08 September 2020 12:05
im 2.3yrs post treatment for Rectal Cancer with a permanent Colostomy. Really happy with consultant in a private hospital(im private patient). Hes asked twice to move me to another in team. 1st time said no, then relented said yes, I felt guilty. Now the person responsible for my life, forgive dramatics, ive never met and obviously knew little about my history. Only looked at current bloods. I never realised the relationship with my Onco was so vital to me. Now im so upset. What do I do?
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posted by grasshopper
26 August 2020

So down

Last reply: 08 September 2020 10:11
Hi there, today I'm feeling so low, keep thinking of how long I've left.. 2 young kids and it's so difficult to enjoy the moment and make memories as everyone is telling me to do. I just can't do it, I'm so sad. .(metastatic breast cancer stage 4, terminal) 😥
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posted by Rebelchick
08 July 2020

Renal Cancer

Last reply: 21 July 2020 12:55
Just wondering is any one currently going through oral chemo for renal therapy. This is my second time round on sutinent (sinutab) - the side effects are very different from the last time round - just wondering are others going though the same journey .
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posted by Ava
02 July 2020

Vaginal Dialators

Last reply: 09 July 2020 09:13
I heard Vicky Phelan say that silicone dialators are now available rather than the hard plastic ones that I received during my radiation treatment. How would I go about getting them?
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