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posted by Onami
28 April 2025

Nipple Adenoma

Hello, I have been diagnosed with a nipple adenoma and I was wondering if anyone had any experience with complete Nipple and Areola excision / removal or partial removal? Thanks for reading
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posted by kresc
12 March 2025

Awaiting medical oncology appointment

Last reply: 02 April 2025 12:14
I was diagnosed with breast cancer on the 25th February with her2 positive breast cancer. Referral was sent for an appointment with medical oncology that day and I still haven't received an appointment to start chemo. The nurses in the breast clinic have been lovely but how can this be expedited. I have nodal involvement and each day that passes I'm worrying more where it can be spreading without starting treatment.
4 comments
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posted by just_me
28 February 2025

Indolent Follicular Lymphoma

Last reply: 03 March 2025 16:47
Hi. A very close family member has been diagnosed with the above and will start chemotherapy soon.. We're just looking for some positive outcomes please. We're very concerned with how it's a dormant cancer and can come back. Is this always the case?
1 comment
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posted by Angela323
13 January 2025

Preference in being told of diagnosis

Last reply: 15 January 2025 14:18
Hi, I hope someone might be able to give me advice if you have time. I went for an ultrasound in October and was told on the same day by my GP that they think the lump is suspicious and they think it could be cancer and that I needed an MRI urgently. There were delays in getting the MRI and when I did have the MRI, the GP told me that they think it could be sarcoma. They forgot to send my details and scans to the consultant so there was another delay. I was meant to go on holiday next week as there had been so many delays but the consultant said he can see me next week to let me know the diagnosis. I asked if I could be told over the phone and once I am back from holiday, that I would go for the appointment to talk about treatment plan. I thought this made sense but the receptionist said that he doesn't give diagnosis over the phone and I would need to wait until after the holiday to find out the diagnosis. I'm upset with this, I have been waiting since October to find out if it's cancer and all I'm asking for is to be told over the phone so that I don't have an extra wait of two more weeks. Am I being reasonable? I just don't know anymore, I'm so stressed and really would prefer to find out by phone before the face to face appointment after the holiday. Thank you, Angela.
3 comments
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posted by kieran_reynolds
20 December 2024

Creon availability

Last reply: 27 December 2024 14:37
Hi all, We are having difficulties finding Creon (25,000 units) from our local community pharmacies (South Dublin) for my Dad (newly diagnosed cholangiocarcinoma). Does anyone know of any community pharmacies that have it in stock? Or has anyone faced the same issue and have any potential solutions? We will go back to his surgical team to tell them also, but wanted to try here first. Thanks all, Kieran
1 comment
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posted by catherinem
02 November 2024

Acute Lukaemia

Last reply: 07 November 2024 16:42
Hi all, my dad has recently been diagnosed with acute leukaemia following 20 years with Polycethemia Vera. Just wondering has anyone been down this journey? Still awaiting a path forward from doctors.
1 comment
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posted by seekingsunsets
28 September 2024

They found NET in appendix during my appendectomy

Last reply: 01 October 2024 16:48
I am a 37 year old mother of two and I recently found out that they found a grade 1 carcinoid in my appendix (thankfully removed now) but I was told by Limerick (no formal meeting with them or appointment just third hand information as I was in a different hospital for a separate issue when the news came through the other hosptial. I was told to find an endocrinologist and this is proving difficult due to long waiting periods even as a private patient. Now my GP has referred me to a doctor that specialises in gastro/colon issues. Nobody has explained what my next steps are and I feel so lost. I never even received a letter from Limerick with the information but on my discharge letter I learned that the PNM is pT3nXmX and that the margins are clear, tumor was 11mm but that the tumor reached the periappendiceal fat. I have so many questions and I have no idea whats going on. I can't sleep at night but I feel perfect with no symptoms at any stage. Has anyone experienced similar? I can travel to any part of Ireland to be treated but don't know who to be referred to or where to start. I'd appreciate any information as everything I'm looking at is not based in Ireland.
5 comments
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posted by John Lane.
13 September 2024

Kidney Cancer

Last reply: 16 September 2024 12:42
Hi everyone, My name is John I am 40 diagnosed with Kidney Cancer this summer, it's been a strange few weeks. Kidney is gone already, had a few bits removed from bladder as well. That's the very quick version of my story. I will probably write more another time. I have a Wife 4 kids, 2 my own 2 foster(feel like mine) age range 17-4. The last few weeks, It's been a lot. But why am I writing here and now, I guess it's just to express love to everyone who scared or lonely in their diagnosis. I want to say I have love for you, I care and I wish you all recovery and peace. John
2 comments
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posted by Kellett1927
29 July 2024

CLL

Last reply: 31 July 2024 12:19
Hi all out there with CLL just got my diagnosis 4 weeks ago I am in the wait and see group next appointment is the 19th of September then I hope to get what stage I am at I have been active all my life (68 years old) but over the last year or so I have noticed I was getting tired and not recovering well after cycling events that I have done for many years hope to connect with people that have already got there stage information and would love to share any news that could support and help each other stay safe and try not to worry too much life is for living so let’s get togeather and support everyone living with cancer
1 comment
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posted by Sootybrad1
22 June 2024

I don't know how to accept its real

Last reply: 26 June 2024 11:04
I just don't know what to feel I feel like im not in reality and in a few days I'm going to have a stoma bag an start chemo an radiation
2 comments
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