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posted by rachhh
19 March 2023

Non Hodgkin’s lymphoma

Last reply: 12 April 2023 16:45
My Mam passed away 3 weeks ago today, she had non Hodgkins lymphoma she went through five rounds of treatment including a car T cell. I am so lost without she was my whole world. It was just the two of us we don everything together. I am so lost, how to cope?
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posted by Cancer Nurse
28 February 2023

Rare Cancers

Last reply: 25 February 2024 16:44
Rare Cancers February 28th is Rare Diseases Day. We would like to take a moment to highlight rare cancers. There are over 200 different types of cancer. Rare cancers are uncommon cancers, only a small number of people are diagnosed with these cancers each year. They are defined as rare when the amount of people who are diagnosed with it is equal to or less than 6 new cases per 100,000 persons in one year. Around 1 in 5 cancers diagnosed in Europe is rare. Having a rare cancer can be difficult to cope with as there may be less information available about your type of cancer. People with a rare cancer may also feel more isolated as they are less likely to meet another person with the same cancer. It is important to know that you are not alone, we can provide you with information about help and supports that are available for you. More information about rare cancers can be found on our website: Rare cancers | Irish Cancer Society. If you would loke to speak with one of our cancer nurses please call the Support Line on 1800 200 700, Monday – Friday, 9am – 5pm.
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posted by joe52
03 April 2023

Blindness after cancer

Last reply: 12 April 2023 14:26
Good Afternoon. My partner was diagnosed with non Hodgkin's lymphoma in 2020. Since then she has recovered well from the treatment she was given but now she has lost her eyesight in both eyes since July 2022. Has anyone experienced this or know of anyone who has experienced this after cancer. Both her Neurologist and Opthalmic consultants do not know why she has lost her eyesight and so we so not know who to turn too next for help. They say she is.an extraordinary case and that they have not seen this before. Can anyone help on this matter??? Any help or advice would be greatly accepted.
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posted by C123
21 March 2023

Node detected

Last reply: 12 April 2023 10:16
Good morning, i recently had a cardiac mri its showed 11mm auxiliary nodes as an extra finding. I had my first appt within 5 days of referral. Had mamogram yesterday and have to go back for a scan. Has anyone had similar. My doctor was very rude no eye contact no time to ask a question. Thanks
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posted by Er34
06 April 2023

Herceptin tomorrow

Last reply: 09 April 2023 13:34
Hello. I've had my chemo and my surgery. Now tomorrow I start my herceptin. Its a shot in the thigh every 3 weeks. Can anyone tell me what to expect? Are there any side effects? Will I need to remove my trousers? Thankyou
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posted by Sunnyshe
04 April 2023

Joint pain/stiffness

Last reply: 04 August 2023 23:13
Hi. I've recently been started on 2.5mg of Letrozole daily, as part of my breast cancer treatment. I've also just completed a course of Radiotherapy. This is week 4 of the Letrozole treatment, I've noticed my joints have become quite stiff and painful, just wondering, will this settle over time, or is this going to be long term, its making me a bit miserable to be honest. I'm due back to my Oncologist in the next few weeks.
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posted by lizzie01
11 March 2023

Abemaciclib

Last reply: 29 March 2023 13:22
Has anyone been able to get access to Abemaciclib? It is not yet approved for reimbursement by the HSE but I wondered if anyone has been able to get it prescribed privately. I think it costs about €3k a month.
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posted by jessk
03 January 2023

Tamoxifen and low sex drive

Last reply: 26 March 2023 11:48
Hello ladies, I am on tamoxifen 20mgs after double mastectomy, chemo and radio. Anybody with an Idea on how I can improve my desire for sex...before I get to the dryness and lubricants, I would give anything to get the interest back. I'm just 49, in a new relationship, ooh dear... Thanks Jessk
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posted by BRODYTRAVERS1
20 February 2023

Cancer

Last reply: 25 March 2023 14:43
Hi there, my name is Ashling, and I'm new to this page..my husband was diagnosed with oesophagul cancer, some in lymph nodes, so a very scary and overwhelming time...he starts chemo today and we are both very scared and hope it helps him...any advice or words of encouragement would be brilliant..thankyou.. Ashling
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posted by christasse
13 March 2023

Waiting times urologist

Last reply: 23 March 2023 16:05
Hi I've a lesion on my kidney got a letter to attend a urologist in Dublin the waiting time is 6 months anyone else like this Christasse
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