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posted by ElleMaria
07 March 2018

Hair Integration System

Hi Everyone, As a 28 year old woman who is currently 3 months post chemo ( I did 4 rounds of TC for my IDC Stage 1 Grade 3) I am finding it difficult to adjust the idea of living sans wig. So I'm searching for an alternative. There are hair integration systems available in UK with the likes of Mark Glenn Studio where they use a breathable mess that attaches to your own hair (I shaved all of mine off during chemo and now have circa 1 inch re-growth to work with) and they bind in a hair piece which lasts for 2/3 years but needs maintenance every 6 weeks. You can shower, swim, run your hands through your hair and It wouldn't move - you treat it just as you would your own hair. Sounds good right? but I cannot find anyone in Ireland that does this. Given that there is maintenance required every 6 weeks going back and forth to LDN just wouldn't be a realistic option. Does anyone have any knowledge or experience with this type of hair solution? Thanks, Elle
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posted by Hartey
25 January 2018

Question re Wig and Diet please

Last reply: 28 February 2018 10:53
Hi there, I am 42, no kids and have recently been diagnosed with Invasive Ductal Cancer - oestrogen negative, Stage 1. My op is next week, followed by 4 months chemo and radiotherapy after. I asked my consultant if there were any changes I needed to make to my diet and he said No. However I have read many articles on the link between Dairy and Breast Cancer. They all seem to refer to when Oestrogen is positive, ie hormone related Breast cancer. Does anybody know if giving up dairy would be beneficial for my type of cancer? I do consider my Diet to be very balanced, I exercise about 4 times a week, never eat processed food, but I do currently eat meat, dairy, everything really. Also, I got engaged 2 weeks before finding the lump. I went wig shopping today and was strongly advised towards a Real wig. However many of the threads here advise against. Her point was that I would be able to style it for my wedding. I would love to get married a year after last Treatment, and know my hair won't be back long again. Any advice? Thanks in advance :-) Hartey
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posted by Jovigirl
07 February 2018

Time waiting between referral and appointment

Last reply: 13 February 2018 14:38
I found a lump on my right breast and went to my GP, she then found one on the left breast and referred me to the Mater breast clinic this was 3 weeks ago and I still haven't heard from them about an appointment. How long should I be waiting to hear? Going out of my mind
2 comments
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posted by Burkefa
31 January 2018

Anxious about mastectomy due soon

Last reply: 01 February 2018 16:53
Hi, Im just recovering from my final round of chemo having had two lumpectpmys prior to that that did not successfully clear the margins . Im due to have a mastectomy and reconstruction in three weeks time and would really like to talk to someone who has gone through a similar route. (BTW I am in my mid 50,s )I,m not sure I should put my phone number up on here so will wait to hear back .Thanks
1 comment
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posted by Kk
22 January 2018

Help

Last reply: 01 February 2018 09:51
Hi ladies still can't believe I'm here I'm 36 had lumpectomy last week all results came back clear nodes and surround don't know if that's the right word but ye know what I mean. Am now waiting on results of a test to see if i need chemo it has been sent to America any one had this done really scared at the thought of chemo knew i would have the radiotherphy but the thought of chemo really scares me. Would love any feedback x
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posted by Sarah O'Callaghan
05 January 2018

Glioblastoma diagnosis

Last reply: 08 January 2018 10:52
My husband has recently been diagnosed with an in operable and incurable glioblastoma brain tumor. Since his diagnosis his depression has gotten worse, I am caring for him on my own. We have no family in Ireland they are all back in the UK. I'm struggling to get the support I need my own health as decided to fail me with tonsillitis and laryngitis. He doesn't see me as some one looking out for his best interests he's had a number of incontinence issues of the last few days and gets very aggressive when i try to clean him i have no home help or carers sorted at this point they told me that they have people on there books who have been waiting since November. when I broke down and asked what am I supposed to do, there reply was 'i don't know'. I desperately need help I feel like I'm sinking. I just need someone to talk to. My husband was diagnosed on the 21st of December. But since the summer he's been segregating us from our friends. I have no one to turn to and no one to talk to. I know this may seem selfish of me thinking of my own needs and wants but I'm still only human and I do everything I can for him. Why can't I get the help I need for me. Please be honest and tell me if I'm being selfish. I understand this is hard for him I really do. I watch my caring, kind loving husband disappear and a man I don't know take his place. I know it's hard for him to come to terms with this as well. I'm only 27 and the last year has gone from great to out right cruel. I'm not sure how to handle this. I feel like I'm losing my own identity. Sarah.
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posted by bgtpur
20 December 2017

chemo waiting times

Last reply: 21 December 2017 16:50
Hello, I wanted to know what are the waiting times for chemo, my dad was diagnosed with esophageal cancer, stage 3, Oct 31st he hasn't received any chemo , today Dec 21st he had his first information session and it looks like he won't receive chemo until mid January so was wondering if this is normal? Thanks, Bridget
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posted by Elda
15 December 2017

Kras testing

Last reply: 19 December 2017 09:55
Can anyone tell me if they test ur tumor for leas before begining treatment??? I'm due, to start chemo radiation after x mas I'm female 47 single parent of 3 boys 6/8/12 in cork,,,, low tumor, 2.5/3 cm T3 N2 M0 inside the anal verge so as u can imagine I'm anxious that this treatment works, so I can b reconnected afterwards
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posted by happy39
23 November 2017

Take Zinc with Tamoxifen

Last reply: 27 November 2017 09:58
Hi, I have tinnitus for the last 6 months and I was told by a person who had tinnitus that zinc cleared hers. But I have heard since that it is not safe to take zinc with tamoxifen, that it affects the benefit of tamoxifen and that breast cancer patients should not take it. Anyone know if this is true
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posted by AndiRib
19 November 2017

LD flap reconstruction

Last reply: 21 November 2017 20:57
Hi, I am new to this forum. I am 40 year old Dublin lady. Married with two kids (8 & 9). I was diagnosed with stage I breast cancer on the 13th Oct. I just have it in my left breast. I have had a unsuccessful lumpectomy. I agreed with the doc to have the masectomy if the lumpectomy did not remove enough and the margin was not good, which it was not. The doc routinely does reconstruction surgery with the LD flap method in the same surgery as the masectomy. Has anoyone on here had the same done at te same time? I am trying to do some research before I meet back with doc on Thursday. Surgery is planned for the week after. Never thought I would be dealing with this, no history in my family, no other symptoms except the (large) lump in my left breast. Chemo, radiation and hormone therapy are all planned too. Thanks for reading.
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