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posted by Freesia71
07 September 2021

Metastatic Breast Cancer

Last reply: 13 September 2021 16:30
Hi Everyone. Wanted to share my story so far to see if anyone else is in the same position as me. I am 49 and in May was initially diagnosed with breast cancer. I was scheduled for surgery and after reporting a pain/lump in my neck got referred for a CT scan. The CT showed lesions in my liver so the unfortunate diagnosis of MBC came. I was on Ibrance, zoladex and letrozole for two months. Due to high liver enzymes I've been taken off the Ibrance. I am waiting to see the oncologist to see what's next. I went back to work and want to stay in work. I am finding the whole thing as nothing short of torture as it's on my mind 24/7. I was ok whilst I was on the treatment and I thought that everything was going well. How is anyone else coping with the diagnosis of MBC?
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posted by Mrs_H
01 September 2021

Waiting Times

Last reply: 02 September 2021 13:39
I had a biopsy on July 20th, which showed grade 2, Her2 positive cancer, stage 2. Since then - nothing has happened... I am waiting. Is that normal for COVID times?
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posted by Iamstrong
12 July 2021

Mirena Coil post breast cancer diagnosis

Last reply: 25 August 2021 18:15
Hello, I was diagnosed with hormone positive breast cancer in Sept of 2020. I have since gone on to have a mastectomy and did 4 rounds of TC Chemo. Throughout all my treatment and even now I have been told that I can leave the mirena coil in - it will not affect my body causing more cancer. Speaking to other women however I note they have been advised to have it removed asap. Which is the correct course of action as now that I am back to myself again I can't go through this ever again? Thank you.
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posted by claudia merfu
19 August 2021

Hysterectomy after breast cancer diagnosis

Last reply: 19 August 2021 16:53
Hi, I'm 45yo, and in April i was diagnosed with stage 1abreast cancer , hormone positive and HER negative, i went through a lumpectomy with sentinel node biopsy, and nodes were clear, I'm on tamoxifen now, and my gynecologist is advising on a total hysterectomy with a dual oophorectomy. Is this a normal thing to do under the circumstances, i mean i don't want kids, nor do I have any, but the ovaries taken as well, seems ,to me obviously, a very extreme measure, and although I am aware that ovarian cancer might be in the books, it seems from the things that i read, that coronary artery disease,ling cancer and colorectal cancer might be following this procedure anyway....Obviously, my doctor would know better, as I read this information online, but I'm looking for a bit more information on the subject...has anyone been through a similar experience?thank you
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posted by Resolute
10 August 2021

Letrozole

Last reply: 11 August 2021 10:23
Hi there, following breast cancer, surgery and radiotherapy I did 5 years of Tamoxifen and I am now in my third year of letrozole .. Mensturation stopped completely when I started Tomoxifen but I now suddenly have some bleeding/brown discharge .. is this normal or so I need to make an appointment with my doctor?
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posted by anthony80
04 August 2021

Male Brest cancer

Last reply: 10 August 2021 14:43
Hi all anyone other males going through this or have gone through it I’m 43 and facing chemo next since surgery x2 This just came out of nowhere for me like a lot of cancers I suppose
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posted by hederahelix
05 July 2021

2 year wait for referral

Last reply: 09 August 2021 21:14
Hi guys I was referred by my doctor to the breast clinic with a lump on my breast 12 weeks ago. I was put on a 12 week wait period and my doctor received information from the hospital about this. She gave me a number to call if I hadn't received a letter in a couple of weeks and the lady who answered quite quickly got me off the phone with a solid answer of "you're down for a year, ok? Bye". I'm residing in Waterford at the moment. I called my doctor and she told me to call again after the 12 week period had ended and I did today. I reached a voicemail of the same lady directing anyone to call another number. Once I called this number I was told that my wait will be up to two years! I asked her if there is any point in me waiting 2 years with this and she said "well it's up to you" and that they wouldn't have any more information about the 12 week period because they are new to taking over the department. I will be calling my doctor again who said she will see what she can do following this but who knows how this will end. I'm 29 with a history of breast cancer in my family. I can't afford private healthcare as I'm a student who has been receiving grants to support my cost of living here. Has anyone else been dealing with this conflict? This seems absolutely ludicrous and terrifying for me now to deal with and I can't find too many personal stories about it or how to handle it; all I can find are recent statistics here and there regarding wait times. I mean, why even bother saying 2 years to me. I will be beyond the point of saviour once that time has come. I can't believe this is going on really. Breast cancer is a common enemy in our female society. How it's not the top priority is beyond me. Please reach out to me and help me out with some resolutions or personal stories. Thanks so much for reading. Jade
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posted by lecky
03 August 2021

Wait times for triple assessment breast cancer clinic

Last reply: 09 August 2021 21:08
Anyone know what current wait times are for follow-up at breast cancer clinic? In this case for the Symptomatic Breast Cancer Unit at UCHG. I found a lump in my breast recently. Went to GP a couple of days later. She sent a referral to the Symptomatic Breast Cancer Unit at UCHG. That was two weeks ago. No contact from them yet. I rang them last Thursday and was told the referral wasn't received. Back to GP and was told it went through whatever secure system they use and had been acknowledged as received. Back to UCHG and was told they did have it after all and that all incoming referrals would have to be "triaged" and didn't know when xxx would do that as he was typically only there on Mondays. I have a history of breast cancer. Diagnosed in 2009 - I had a lumpectomy in the other breast and chemo and rads. Had surgery in NY so I don't have any contact with a breast surgeon here. Wondering what to do next. I don't want to leave this hanging. My next mammo not due until end of September.
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posted by Dane7
15 August 2012

Did Chemo work for you?

Last reply: 09 August 2021 21:04
Ladies Just received news last Friday that post 5 chemos chemo didn't really work for me and only a very small shrinkage of my tumors occurred. Has anyone been in this boat? Oncologist expected a very good response .... hence my surprise, disappointment and let's be honest, fear that it is not the case. Anyone else experience this at all?
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posted by Siobhan S
24 July 2021

Metastatic lesion already?

Last reply: 04 August 2021 13:21
Hey peeps, not sure why I'm here I just need to vent??! Stage IV Breast Cancer diagnosed last November Post mastectomy and node clearance last Sept. Had chemo and stereotatic radiotherapy on a single met lesion found on a rib which was described at aggressive. Finished treatment on March 26th last and am back at work 4 weeks and loving it. Last week have been getting pinching/ sharp pain just below my mastectomy scar ( right where original lump was on my breast). Contacted the breast unit and have an appt on Wed next. I'm afraid it another rib lesion. I don't feel any lump/ scar tissue on or around my scar in fact I have never had a bother with the scar. Does anyone know if another metastatic lesion could appear this soon after chemo ( finished chemo on 1st March). Thanks
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