Community

Hi, my mother recently found out that she had a tumour on her kidney, and had her kidney removed. A few months ago she had a check up, and had a ct scan to see if everything was still ok and that nothing had spread. However she still hasn't received the results. Does anyone know how long this usually takes? Many Thanks

R iodine treatment in a few weeks... Any one know what to expect (pain or sickness??)

I am living in Waterford, Co Kilkenny. I had a complete Laryngectomy (voicebox removed) in Oct 2010. I have had 6 weeks of radiotherapy treatment with ended at Easter. Would like to communicate with anyone who has had this procedure.

Is there anyone out there who has been diagnosed with Bladder Cancer? I was diagnosed with this just last year - which came as a terrible shock to me. My husband and I were away from home at the time and I had an episode of very heavy bleeding which frightened me. (We spent almost an entire night in an A&E and I was told that this was a 'bladder infection,' given antibiotics and sent home for further investigation in my nearest hospital. The later diagnosis shocked me as I have never smoked even one cigarette in my life. (This, apparently, is the primary cause of this type of cancer.) I am female (just 58 at the time of diagnosis) and have always been very healthy and fit - don't drink either. I feel that this is an environmental issue (I live on the East coast) and would like to be in touch with others who have been diagnosed, with a view to doing my own research into the whole area of this type of cancer. As it is often referred to as an 'elderly man's' disease, I would also like to hear from women out there who have been diagnosed. The youngest lady I have been in touch with is just 25. Any response would be greatly appreciated.

Hi, I am a 29 year old male, I had a sarcoma removed from my leg earlier this year, had radiotherapy. However I have had a recurrence in the abdomen, had ct scan and was told it hadn't spread and they are fairly confident its not stuck to any organs. Meeting specialist tomorrow but Just cant believe it came back again and that now I have to face chemo. Is there anybody who has had sarcomas and how have you dealt with them? Thanks

Hi all, have just joined the message board and have started this thread on oesophageal cancer. My husband was diagnosed a few months ago. It is a cancer which appears to be increasing in incidence, so I am sure that there are some people (patients, survivors, carers, etc.) who may wish to chat. I am happy to share our experiences thus far, and offer/receive any advice.

Would love to hear from someone else who has experience of this cancer. Am due to start radio active iodine treatment in the following two weeks.

hi, i have been diagnoised with tongue cancer and told i also have some in a gland in my neck. I am currently waiting on radium treatment to start. to say this is a shock is an understatement - i thought i had an ulcer in my mouth! has anyone been through radium on the mouth? what can i expect? any help/advice greatly appreciated...

Hi, I was diagnosed in February last year with cancer of the tongue. Professor Stassen, St James, explained I would need surgery to remove the tumour. After discussions with Professor Stassen and Prof Hollywood, St, Lukes, I opted for chemo 5 sessions, and radiotherapy - 35 sessions prior to surgery. My husband (actually my ex husband, who has been by my side all through this, my rock) and I really hoped it would kill the tumour, (it didn't ) but it did reduce it. I eventually had surgery in November 2012. The theatre procedure was right total hemiglossectomy, a right modified radical neck dissection, and they did a reconstruction with left anterolateral thigh flap to reconstruct the right tongue, floor of the mouth. I was told I would not be able to speak after the surgery, but I may be able to make sounds. However, three weeks after surgery I did talk. My speech is no where like it used to be and I do tell people that I had an operation as it helps relax things. I had a great speech therapist who helped me improve. Also as I had radiotherapy before the operation it meant that the healing process was a lot slower and I now suffer from lympheodema as they also removed a number of lymph nodes from the right side of my neck. At the minute I attend a therapist who specialises in lymphatic massage. This whole cancer thing is very hard, everything in my life has changed and it is very hard on my family too. I hope sharing my experience of oral cancer so far, helps in some way. Biopsy tongue 3/1/12 (49 yrs, 2 sons, 21 and 20). Diagnosed Cancer 1/2/12 PET CT 6 cm lesion 16/2/12 Surgery scheduled March, however larger lesion discovered, surgery postponed 9/3/12 PEG / Rig 15/3/12 5 Chemo 35 Radio PET CT good response 2/10/12 Biopsy 18/10/12 cancer still there MRI showed Lesion reduced 15/11/12 Surgery - Trachea, R hemiglossectomy R mod radical neck dissection, L anterolateral thigh flap 16/11/12 Diagnosis yPT2NoMo

My husband Sean, passed away yesterday, 1st. February. I want to thank most sincerely the Wexford Hospice Homecare team, they were absolutely wonderful, Janet, Niamh & Orlagh. Sean loved Janet, she told him she would always be honest with him & she kept that promise while also taking into account what the family told her. These ladies are true angels & are most deserving of all our support. Who knows when we might need them? We must continue to support this terrific service. The family want to thank the wonderful Oncology team at Wexford Hospital,they were so good & caring, thanks Mary, Jenny, Sasha & Margaret. Thanks to Dr, Calvert, Sean's Oncologist & to Dr. Caroline Hogan who was an absolutely wonderful support as well as a great & caring physician. Many, many thanks to Paddy & all the staff in Farrell's Pharmacy, Templeshannon, Enniscorthy. They really went out of their way to help me in every way they could & I appreciate it most sincerely. I will miss the love of my life forever but he is now with our Son Gary & I know I will meet up with again some day. Rest in peace my darling. XXXXXXXXXX