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Hi I'm new to the forum. My husband was diagnosed with FAP over 13 years ago and had an immediate preventative subtotal colonectomy with IRA. Wondering has anyone out there also been diagnosed with this very rare genetic condition and if so, if they'd like to share?

recently been told that much, if not all colon should be removed...but have heart condition...any one know of similar situation? thanks...newbe at all this!

Hi wone up Monday morning swollen breast couldn't touch it ..red angry breast...had been havin back ache around kidneys for last few months ..thought it was time for doc visit ...was in wed got call Thursday for appoimtment friday morning scan on back ..call on on Friday today for breast appointment on Monday..delighted so quick ....nervous so quick ....she put me on antibotics sweeping gone down but it feels like a breast enlarged ready to feed ..tingles ..I'm 43 my youngest child is 14 ...and I've had marina and no periods on 10 years....it quick any feedback ??

Hi, My wife was recently diagnosed with breast cancer and is currently in hospital for her second surgery. Though she has a medical oncologist consultant, my concern is if the consultant is a specialist in breast cancer or a general oncologist. Though I can ask the consultant, I tried to do some research on oncologist specialities and failed to find a list. I could find lists of oncologists in Ireland but not those who's sole or main focus is on breast cancer. We all want the best for ourselves and our loved ones and I'm lucky enough to have health insurance for her that will cover any consultant in any hospital in Ireland (And maybe elsewhere but hopefully it will not come to that). My world has turned upside down, and I'm finding it very frustrating that I can't even find such basic information as: a) Who in Ireland is a Specialist Breast Oncologist? b) Who is considered the best? I hope you can help me find the information that I hope is easy to find and its just my panic that is stopping me finding it. CH

Hi, I had a mastectomy and auxiliary clearance and am due to start radiation shortly. As I was initially diagnosed with Inflammatory Breast Cancer I will be having bolus radiation too. Its a rubber mesh like material that is placed on your skin to give an intensive dose to the skin when the skin has been compromised. I am just wondering if anyone out there had this done as part of their radiation therapy??..and how did you get on with it as I'm a bit worried about it and have been unable to speak to anyone who has has first hand experience of it. Many thanks, Tioman

Hi, Asking on behalf of my wife, who is strong and wonderful, but struggling with some aspects of this new world we have been thrown into. Has anyone any experience of distress when showering/bathing after a breast biopsy & diagnosis. Biopsy was two weeks ago and we now have a confirmed diagnosis. Managed to get one set of steristrips off last night but it is very distressing and upsetting and every time we are showering th emotional aspect of things is very difficult for her. Anything we can do? Or try? This seems like an amazing forum full of strong, inspirational people.

Hi, Asking on behalf of my wife, who is strong and wonderful, but struggling with some aspects of this new world we have been thrown into. Has anyone any experience of distress when showering/bathing after a breast biopsy & diagnosis. Biopsy was two weeks ago and we now have a confirmed diagnosis. Managed to get one set of steristrips off last night but it is very distressing and upsetting and every time we are showering th emotional aspect of things is very difficult for her. Anything we can do? Or try? This seems like an amazing forum full of strong, inspirational people.

Hi, We are currently having trouble deciding whether my 93 year old Granny should go ahead with a Hysterectomy. We are waiting on her doctor to have an interdisciplinary meeting to discuss the best course of action. She initially suggested we go ahead but did state that she hadn't performed this surgery on a woman of her age before. My mum and I thought it might be helpful to try and get some insight from others who may have been in the same situation. Has anyone else had experience like this? I understand no one can make the decision for us, but my Granny is really relying on my Mum's input. I don't expect anyone to push us either way but would really appreciate any advice or shared experiences. My granny was always in great health and only started slowing down in her 80's. We have already been discussing moving into a home before this diagnosis. We are just worried that she will never fully recover from the surgery, and it’s so hard to compare that to doing nothing, having already agreed that she is not strong enough for chemo. I would really appreciate any help at all, Thank you for reading.

Ive had her+ node negative bc twice 2012 and 2014 lumpectomy and rads then mastectomy and chemo 2nd time. Ive had prophylactic mastectomy and oophorectomy. I take Letrozole. My back aches on 1 side and my joints are sore. Im wondering has anyone had this diagnosis and treatment and still developed secondaries?

Hi there, I've had dcis and Paget's disease of breast had my nipple removed and 3 cm of dcis in October and 2nd operation for clear margins in November. I'm currently having 20sessions of radiation feeling very lucky caught early etc, but after living with this I realise I need to have nipple reconstruction the dr only mentioned tattooing he did say if radiation changes breast size he will fix it at the moment it looks more or less same as other one , my question is can nipple reconstruction be done on public system or do I need to pay for this surgery? Has anyone else had this done not nipple reconstruction and mastectomy just nipple reconstruction thanks.