Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by Kathleen
20 June 2017

Sun screen

A sun screen that doesn't stain clothing?
Read the post
posted by jacksprat
26 March 2017

Return of Prostate Cancer

Last reply: 13 June 2017 08:19
I have not been on this site in a while..My husband had Prostate cancer back in 2011 , he then had a radical prostatectomy followed by 6 weeks of Radiotherapy.....followed by hormone treatment Zoladex......fast forward five years having not gone to the Doctor for regular PSA checks, he developed flu like symptoms in January 2017 and eventually returned to the Doctors office who had the good sense to do a PSA only to find it is at an all time high of 635, considering it was below .1 after all the treatment 5 yrs ago.....My message to all survivors out there ,,,please please continue to attend for regular tests, it's only a simple blood test to confirm PSA remains at a low level...hence our position has now totally escalated to a serious condition???Last week we travelled to Galway to meet with oncology team as the cancer is now advanced and present in pelvis,lung and possibly in bones....I am still reeling with this devastating news and the effect it is having on the whole family..We have a junior cert daughter and I work full time , We have spent the last two weeks on the road travelling to hospital appointments for consultation,scans and as now in hospital care for the past two weeks we are pretty much full time on the road....John(my hubby) is having difficulty breathing at the moment so once this is under control we shall have him home...He has just started a new therapy drug DEGARELIX/or Firmagon and also his much dreaded and always feared Chemo......I will share this journey with you as there are not many threads on the next phase... When and if the cancer returns and what the next treatments available are.... But most of all I want a lesson to be learnt from our story, this could have been detected earlier if John had of attended his GP who would have seen his PSA was increasing once again and we might not be in the place we are today...Happy Mothers Day to all the strong women..Mothers/wives , who in a lot of cases are the ones supporting and giving all the love and support to a sick family member to get them tru this tough time...
1 comment
Read the post
posted by BlecksaB
09 June 2017

Not sure to be worried or not

Last reply: 13 June 2017 02:38
I found a lump the 12th of February this year, I was told by a doctor it as a blocked duct (as is be to young to get breast cancer) I was given anti inflammatories and told to come back on the 12th of March, because every lump has to be checked no matter what it is.. I went back the 12th of March, it was a different lady doctor who checked this time, she wrote up a referral for Galway straight after she had checked my breasts, She had told me the inflammation was gone and the lump was still there, I wasn't told much else only to wait for my Galway appointment and go from there My symptoms fairly added up as I have experienced quite a few of the symptoms of Breast cancer Should I be worried or not considering I'm only 19 should breast cancer be a possible outcome for me or not?
2 comments
Read the post
posted by Coco1
17 June 2016

Cll support group

Last reply: 03 June 2017 22:39
Hello, I was diagnosed two years ago with Cll and am hoping to start a support group for people living with Cll. Just wondering if there are any others with Cll interested in getting involved. Be bold and drop me a line.
5 comments
Read the post
posted by CLL Ireland
03 June 2017

CLL Ireland

We have established an advocacy group for Chronic Lymphocytic Leukaemia (CLL) patients and carers. Thanks in part to the help provided by the Irish Cancer Society, on 29 April we held the first ever Public Information Day specifically for CLL patients and carers. We were overwhelmed with the support shown and the attendance on the day, with almost 140 patients and carers present! We are trying to reach out to the CLL community nationwide. Make sure you check out our website www.clli.ie, and Follow us on Facebook (www.facebook.com/cllire) and Twitter (https://twitter.com/CllIreland).
Read the post
posted by Suequatro
16 May 2017

Very worried

Last reply: 22 May 2017 11:28
Hey ladies, Firstly I have not had any diagnosis of breast cancer just been I a whirlwind of doctor after doctor and no answers.. So I now have appointment for breast clinic Monday coming have had chest x-ray today to rule out other possible causes. I have been dealing with very severe outer left breast pain for almost six weeks now shots of pain dart from the outside of my left breast to my nipple and then right to the centre of my chest I get a sudden stab of pain. I have been unable to even sweep a floor and feather like touch leaves me in tears. Infection has been ruled out. I initially went to my GP over a bulging vein in my left breast that only appeared when I lay down felt kind of silly for going bit now I am very glad I did. When she examined me I had little pain she explained she found what they call a mouse lump. She decided to do one last check and when applied pressure to the area I was suddenly in alot of pain. After I left the surgery the pain just shot out of nowhere absolutely crippling me for weeks now. My underarm is quite tender and all that general side of my breast and underarm is obviously swollen. I haven't been able to put on a bra for weeks and have to hold my breath through the really bad shots. I guess I'm writing here to see if anyone has experienced anything like this. Any advice would be very much welcomed. Thanks so much!
1 comment
Read the post
posted by sa1216
17 May 2017

Cognitive impairment/memory loss

Last reply: 22 May 2017 10:52
My mother is recently experiencing varying levels of memory loss and cognitive impairment. I have been told that the reason for this is a bad reaction to the bone injection Denosumab, so they have stopped giving her that. They have also taken her off Pabliocyclib as they plan to begin radiation on the brain, though this is being hugely delayed for some reason by the hospital. Can anyone help me out as to how radiation could possibly help with her memory loss/cognitive impairment? Has anyone had a similar experience or a loved one who has had similar treatment? I only see how it will make it worse.
1 comment
Read the post
posted by CarrieD
29 November 2016

Dad just diagnosed with small cell lung cancer stage 4

Last reply: 19 May 2017 09:35
Hi, I'm a little, well a lot sad today, my Dad has been diagnosed with stage four small cell lung cancer. He has no symptoms and went into hospital for something else. Unfortunately, I know a lot about the disease as a dear friend's sister has it and I've read a lot about it. I'm scared. My Dad knows nothing about how potentially serious it can be and he thinks he'll beat this with chemo. We're going to discuss his treatment on Friday and I don't know how he'll cope with the devastation if they tell him it's terminal (and my poor Mammy). Any advice on how I can help him through this? I'm being really positive when I'm around them but I'm petrified. Is there any hope for this type of cancer? I'm sick of the doctors already asking me if I'm medical when I ask them questions, they also said chemo is their only option, why can't they do radiation or immunotherapy? Any advice as well on what's ahead would be appreciated and how I can balance spending time with my own family (in Dublin), my family at home (Kerry) and work (Dublin). Obviously I want to spend as much time as I possibly can with my Dad and family. I have two young children as well who seemingly have been acting up since I've been home. I miss them terribly (and I have only been in Kerry six days). Any help would be so appreciated.
3 comments
Read the post
posted by Mac
12 May 2017

Radical Abdominal Hysterectomy -Ovarian Cancer

Last reply: 16 May 2017 14:58
Hi there, discovered (Ultra sound) 2 weeks ago that Ive a lg grapefruit size cyst on 1 ovary, a smaller -6cm on the other & some smaller ones too. Consultant says he thinks borderline or grade 1. Not sure but Ive to have CAT TAP (thoracic, abdominal & pelvic) scan. It's €500 & VHI only cover it if I'm an oncology patient -so I guess I'm not officially YET -so Ive to pay. Also I'm worried about telling (adult) children who are away- the upset & worry for them. Any observations -suggestions welcome .
1 comment
Read the post
posted by Aliek
13 May 2017

Recently diagnosed

Last reply: 16 May 2017 14:56
Hi there, I am 36 with two young kids currently living in New Zealand. We were planning on moving back to Ireland when I found a lump last month and was diagnosed initally with Grade 2 triple negative but changed to grade 3 ER positive after my mastectomy last week. I had 1 lymph node involved but also has drained to Internal mammary nodes which they could not remove so I will definitely be having chemo and radiation. Flying home next week to get my treatment started but not sure what to expect next. Have had MRI prior to surgery and had CT yesterday. What other tests did you do before they decided what kind/length of chemo you were having? I am anxious about delays in starting treatment. Any advice would be much appreciated x
1 comment
Read the post
© Irish Cancer Society 1999-2025 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.