Leukaemia, myeloma, lymphoma (blood cancers)
posted by Coco1
17 June 2016

Cll support group

Last reply: 2 years ago

Hello, I was diagnosed two years ago with Cll and am hoping to start a support group for people living with Cll. Just wondering if there are any others with Cll interested in getting involved.
Be bold and drop me a line.

5 comments

Comments

commented by Teresa252
18 December 2016

3 years ago

Hi There , I saw ur post re setting up a support group for CLL. Did u get any responses? I cant see any ?

commented by Jo
24 January 2017

3 years ago

Hi Theresa. I am delighted to tell you that a CLL Ireland Working group has been established and is planning the first ever public information day for CLL patients and carers in Ireland! Put the 29th April 2017 into your diary. We have three wonderful speakers lined up and are hoping that CLL patients and carers from around the country will join us. A real chance to network and to learn about CLL treatment in Ireland and the latest advances too. Please do stay in touch. And watch out for details of the Public Information Day which will be posted on the Irish Cancer Society in the near future.

commented by Jo
24 January 2017

3 years ago

Hi Theresa. I am delighted to tell you that a CLL Ireland Working group has been established and is planning the first ever public information day for CLL patients and carers in Ireland! Put the 29th April 2017 into your diary. We have three wonderful speakers lined up and are hoping that CLL patients and carers from around the country will join us. A real chance to network and to learn about CLL treatment in Ireland and the latest advances too. Please do stay in touch. And watch out for details of the Public Information Day which will be posted on the Irish Cancer Society in the near future.

commented by Jo
24 January 2017

3 years ago

Hi John. I was diagnosed in May 2014. I've gone through four rounds of FCR (Chemo) and am gald to say that I am in remission - for now! Delighted to see your response here. As soon as everything is finally cleared, I will post here details of our April event. It would be fantastic if you would come along. We promise you a really interesing and informative event, with lots of time to network with other CLL patients.

commented by CLL Ireland
03 June 2017

2 years ago

Hi Teresa - as we hope you know CLL Ireland, an advocacy group for CLL patients and carers, was launched at it's first National Information Day on 29 April. Presentations from the day are on our website www.clli.ie, and you may want to Follow us on Facebook (www.facebook.com/cllire) and/or Twitter (https://twitter.com/CllIreland). All feedback and reviews welcomed!

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