Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by Anisa
21 January 2022

Supporting my mam

My mam was diagnosed with Stage 4 Uterine Cancer and has had 4 infusions of chemo - she got Covid in December and was hospitalised, our Christmas miracle is that she survived. She had re 4th chemo last week and she's not drinking her required fluids and isn't eating much (she's drinking those food sup drinks so that is something) but she was so bad the other day she needed to get 2 bags of fluids as she was so dehydrated. It is breaking my heart that she's not doing what she's supposed to do to help herself it's like she's given up - I think the 11 days in a Covid ward really affected her mental state. I know chemo affects peoples personality but OMG she's changed so badly she is awfully bad towards my poor dad who is only doing his best to care for her, I broke down in tears with her the other day begging her to drink her water to help.. it's like she has given up and doesn't care about living or her family. I can't bare looking at her knowing she is not doing the bare min to keep herself alive. She won't go to counselling, she tells the chemo team everything is fine, what can I do to help her
Read the post
posted by carlsberg
20 January 2022

councelling

hi so i recently went to a counselling session in one of the dublin centres. i didn't find it overly helpful and thought id come away with more sense of relief (i have talked to close friends and my mam endlessly so i haven't bottled everything up) anyway i thought maybe its just more like an assessment 1st time, went again a couple of times with my partner in tow as weve had lot of issues throughout my treatment and recovery, and it really didn't help. i didn't find the counsellor suited us or helped, it actually made things worse..she kept saying she was here to listen, which of course was needed, thought shed be critical and dive in deep to sort isssues.. maybe im wrong in expecting that and we'd need a more particular counsellor? we both agreed she didnt help or suit.. so i didnt go again, i thought it be rude to ask them for a different counsellor what do i do now? i still need someone proper to talk to, i feel my other half needs to go individually and potentially couples if he does solo sessions.. i looked up some private counsellors but at a glance i cant afford their rates.. im dublin/kildare, i had been going in person but zoom call would even be possible.. can i go out of county for help esp if its zoom?
Read the post
posted by emerbarry01
10 January 2022

Kadcyla

Last reply: 3 days ago
I recently finished chemotherapy prior to surgery for breast cancer. As the response to chemo wasn’t as good as expected I am now being put on a treatment called Kadcyla instead of herceptin. I’m worried about the side effects of this drug. Any insight would be greatly appreciated.
1 comment
Read the post
posted by jeano
18 January 2022

Prostate cancer - diarrhea

Hi everyone this is my first post. My dad had prostate cancer that has metastasised. He has been on and off hormone treatment, he’s had surgery on his spinal cord due to radiation. He’s having bad bouts of diarrhea at the moment, I was just wondering if this was a sign of something. Also he is very panicky lately and getting breathless. Anyone with any advice, it would be greatly appreciated Thank you Xxxx
Read the post
posted by Stage1apath
10 January 2022

Melanoma

Last reply: 4 days ago
A number of weeks after receiving first two Covid vaccine a mole emerged on top right arm. Kept an eye on its development a number of months later got a private appointment with a dermatologist . Got it taken out and it was determined to be Stage 1a melanoma and two months after that got appointment for wider excision and told got everything. Follow up is with dermatologist every 3/4 months and he is checking lymph nodes - no ultrascans suggested - it fact just this. . Question: I keep hearing about a protocol care pathway for melanoma cancer which is the same for public and private patients but no one can give me documents or information has given me any information . I am reading all sorts of research documents on links with Covid vaccine on the internet and now getting very concerned . has this come up in this forum before
1 comment
Read the post
posted by wexfordgal
12 January 2022

What’s your BC story?

Last reply: 1 day ago
So breast cancer? I’m currently awaiting my triple assessment but have a strong family history so I’m quite concerned . I have a lump above the nipple about 2cm deep enough down and my breast is leaking a creamy to cloudy discharge the past while. Just wondering what symptoms you all had before your diagnosis ? I know everyone’s journey is different but I’m just curious Thank you
2 comments
Read the post
posted by Blondie25
14 January 2022

Irregular vaginal bleeding

Last reply: 5 days ago
Hi. I have been having fresh vaginal bleeding after having a bowel motion and also fresh blood after intercourse. It is usually just when I wipe, I may have some spotting after this but majority of time is at the time of going to the toilet or straight after sex . Sometimes I could also have thick mucas red/brown discharge I have been also having pain in my lower abdomen. My gp has had to rewrite my referral as a locum consultant put me on the 2 Yr waiting list instead of urgent. I now have to wait another 8 weeks because of this delay! Has anyone else been through this and results have been good? Smear test in Nov was negative but I know it's not 100% . Thanks
1 comment
Read the post
posted by Alisha42
13 January 2022

Implant

Hi I got diagnosed with breast cancer 8 weeks ago and had bilateral mastectomy within four weeks when I got the biopsy done before op there was no cancer in lymnodes then after operation it was in 3 of them 4th was negative I have since had to go in and get another op to remove lymnodes in left arm and get a few tested in right arm. They also had to replace one Implant as it has completely moved I am now at home 3 days afraid to move incase the implant moves again it has been an awful lot to take in in 8 weeks can someone advise me if the implant should be ok as I’m up the walls worrying and my back is killing me because I’m not standing properly due to fear of moving the implant wrong . I know it probably sounds silly but I can’t go through another operation I’ve to start chemo in 6 /8 weeks and I’m trying just to deal with this
Read the post
posted by MC27
08 January 2022

Liver Cancer-Pain relief

Last reply: 10 days ago
HI. Just wondering if anyone has managed Liver Cancer pain with Canabis Oil? Been reading it might be helpful in certain circumstances. Unfortunately current medications are not providing relief. Thanks for any consideration.
1 comment
Read the post
posted by LauraE135
06 January 2022

Mass found in colon

Last reply: 15 days ago
Hope this is okay to ask here, I'm looking for some guidance re results. Sorry if this is long winded! 15 months ago, I had my gallbladder removed. Prior to surgery, I really cleaned up my diet as I was quite overweight (mainly bc I was so sick if I ate anything fatty) and upped my fitness. I lost near 2 stone in 2 years. When I had it removed I felt amazing, the gallbladder pain was completely gone. I started to eat a bit more freely and stopped loosing weight but also wasn't gaining. Fast forward about 6 months from gallbladder removal, I started to feel sick again. I had loose stools daily, serious urgency for toilet and colicky pain all over my abdomen. I put it down to my body getting used to no longer having a gallbladder. Then I noticed I was loosing weight, I thought great as I had wanted to lose more. The stomach pains and the lose stools just kept getting worse. I could barely leave the house without fear of where a toilet would be. My stools are often very dark (not black but dark) and tarry, with sometimes mucus. I put off going to the dr for many many months as I had a very sick family member who was my priority. My family and partner all had a chat with me as they were concerned about the weight loss, I was down 2 stone in less than 10 months with basically zero exercise and vomiting on and off and still having toilet issues that were getting worse. I made an appt in November with my GP(it was my first time with this GP as she is new to the practice). My GP said that the weight loss, toilet issues and pain were slightly concerning. She sent me a referral for ultrasound, colonoscopy/EGD and bloods. All bloods were normal, incl. coeliac disease. Ultrasound was also normal apart from gas obstructing parts of pancreas. I then had my colonoscopy mid/end December. I was given the report/finding sheet after but not much was said. There was a total of 16 biopsy taken, no polyps found but they did find a mass at cecum, 2-3cm away from appendix. It was said that I need a CT TAP to characterize and that I need to see my consultant(I haven't met him yet as the coloscopy was in a different clinic and my appt was rushed through) with biopsy results and CT results by February. They also took FLT bloods, U/E, FBC, which worried me bc they didn't seem to do that for anyone else. I completely put to back my head for Christmas and didn't give it a thought. I rang my GP yesterday for my results. She asked had the DR discussed and I said that I received the findings but no one talked me through them. She went on to say that only some the biopsy results were back and that they were normal. She then asked me did I know a mass was found and I said yes should I be concerned. She said well yeah it is kind of concerning, which absolutely floored me as I had just been ignoring it so far(coping mechanism) I then said I haven't received a CT appt and she urged me to contact my consultants secretory asap. I rang the secretory today who was very nice and as soon as I explained to her she told me the biopsy results has just come back this morning. And that she will arrange my CT and APPT for as soon as possible. I was happy enough with that but then started thinking about it too long and thought okay if they have the biopsy results then surely that will tell a lot and they should let me know. So my questions are: 1) Would it be appropriate to ring the consultants secretory again and ask where and when I will receive biopsy results? as I'm so anxious I just want to know now or would my GP also have them now, would it be possible to ring them for the results? 2) If biopsy is (hopefully)good news why would I need a CT TAP? is this standard to organize CT TAP regardless? 3) What are the possibilities this mass could be? 4) Has anyone else had a similar experience? I cannot imagine waiting much longer for results bc its driving my crazy since I spoke to my GP Sorry for being so long winded! Anyone reading this with concerns for their health, please please go speak to your GP, do not put it off like it did.
1 comment
Read the post
© Irish Cancer Society 1999-2022 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.