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posted by davidbirchill
01 November 2021

Blood Cancer and Booster Vaccine

Last reply: 2 months ago
Hello I was diagnosed with a blood cancer this year and I'm due to start treatment at the end of the year. I haven't received any information about the booster vaccine and when I asked in St James I genuinely didn't understand the answer. Does anyone know if people with blood cancers fall under the bracket of immunocompromised and should we expect to be offered the third vaccine? Thanks David
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posted by hope47
11 October 2021

Tamoxifen- Nausea & headace

Last reply: 2 months ago
Hi, I just started Tomoxifen a month ago. Side effects not too bad so far except for a bit of nausea in the mornings. Occasionally I have really sharp shooting pains in my head. Anyone else experience similar symptoms and any remedies that might have helped? Also, apart from grapefruit is there any other foods I should avoid while on this treatment? Thank you 🙏🏻🥰
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posted by mrsb
07 October 2021

DCIS - constant sweating

Last reply: 2 months ago
Hi all, I was diagnosed with early stage breast cancer in June 2020. I had a lumpectomy, 25 sessions of radiation treatment and am currently on Tamoxifen 20mg. I had numerous infections post surgery which delayed the healing process and I also have lymphoedema. I’m just wondering if anyone else has had issues with severe sweating? When it starts it’s from the top of my head to the tips of my toes and can last for some time and I’ve even had to change my clothes on numerous occasions because of it. I know hot flashes and sweating are a side effect of the tamoxifen but just wondering if what I’m dealing with is ‘normal’? It’s getting to the point now where I don’t even want to leave the house as I never know when it’s going to happen, how bad it’s going to be, how long it will last and I feel like I constantly smell as I can’t use any of the deodorants I used before being diagnosed. Thanks, MrsB.
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posted by lizzie.a
27 October 2021

Newly Diagnosed

Last reply: 2 months ago
I've just been diagnosed with a neuroendocrine tumour. I've been referred to the specialist team in St. Vincents. I have received an appointment for a pep scan, at the end of November. This is about a 5 week wait and I'm wondering is this the normal wait time? I'm quite anxious at the thought of the wait and feel I'm in limbo at the moment!
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posted by Eamon R
12 May 2021

Pancreatic Cancer Support Group

Last reply: 2 months ago
Hi All I was wondering if anyone is aware of a support group, specific to Ireland, in relation to Pancreatic Cancer ? I had the Whipple Procedure in January of this year and am currently undergoing chemo post operation. Any replies or suggestions welcome Many Thanks
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posted by turtlepower
21 October 2021

PET-CT scan wait time

Last reply: 2 months ago
Hi everyone, my Mum has been diagnosed with invasive lobular breast cancer this week. She is waiting for her medical insurance sign off on a PET-CT so the hospital can stage her cancer (we know it is in her lymph nodes). We have been told this can take 4-6 weeks to get a scan date and all forms signed. It is being looked after by her consultant. This seems really long to me, is this normal? Thank you
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posted by michellew12
23 October 2021

Dad newly diagnosed

Last reply: 2 months ago
Hi everyone, new to this. My dad has very recently being diagnosed with pancreatic and liver cancer. My main reason for posting is looking for advice on how to tell my daughter who is 11 and very close to him. Has always being a healthy man so this has being a very sudden and massive shock to us all. Thanks
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posted by shaunthesheep80
14 October 2021

Terrified of a test

Last reply: 3 months ago
Recently had a smear, which was negative. GP referred me to gynaecologist. This happened previously due to cervical ectropian. Went for appt today expecting a colposcopy. But it was a consult. GP saw dark lesion on vagina, and consultant booked a biopsy for two weeks and mentioned ruling out melanoma. He said it was rare, but didn't mention any alternatives for what it could be. This was totally unexpected, and I am freaking out. Stupidly googled it. I have 2 young kids, thinking the worst. I'm terrified
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posted by Oak
07 October 2021

Period after several years

Last reply: 3 months ago
Hi, I was treated for BC in 2021/13 - involving surgery, chemo and radiation followed by tamoxifen and then letrozole. I came off letrozole in January. my periods never really resumed after chemo and so I would say it's at least 5 years since I've had any period, including spotting, etc. My blood-work from 2/3 years ago indicated I was in menopause. This week I have a full on period with a good bit of discomfort in the area of my stomach where my uterus is and involving my left ovary. I'm wondering if this is common and could it be my body adjusting to coming off the hormone treatment. I've had some pain in my non-effected breast which I went to the GP with and have an appointment in the Breast clinic early next month. I'm wondering will I just wait until then or should I have the occurrence of the period checked before then? If it's common I'm happy enough to wait. Thanks for your time. I'm 50 years old.
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posted by Fifil
04 October 2021

Presence of precancerous cells following LLETZ

Last reply: 3 months ago
Hi, I had my first abnormal smear about 8 years ago. I've been in and out of the Colposcopy clinic since then with only one normal smear in that time. I recently had my first LLETZ and got my results which confirm presence of precancerous cell (as they expected). No cancer cell were found. I another smear in 6 months. I'm very worried. It's alway been low grade changes. They think use of steroids might be the reason my body hasn't dealt with this it's self! What happens if there are still abnormal cell in my next smear? Thanks
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