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Hello! 39 y.o fella from Dublin. Born with FAP - De nuevo! In and out of Temple Street & Crumlin and had so many tubes and proceedures. Had Total Colectomy with Ileo-Anal and J-Pouch at 16 Now its getting agressive in my Duodenum and will require more surgery this year. Im seeing the surgeon in Vincent's in the coming weeks. You gotta be strong to live with FAP but im feeling quite weak and scared now. Anyone out there with this Beautiful Condition? Id really love to connect and relate to another human being about this. Much love! and thanks for reading

diagnosed 3yrs ago with ductal carcinoma had my annual mammogram on the 09/02/2024 received a phonecall from breast clinic today to come up on mon for ultrasound worried..

Hello I went to my GP over 2 lumps in my neck. I had an urgent referral to Vincent’s for an ultrasound which I had last Wednesday. The lady doing the ultrasound said my lumps looked like normal lymph node’s but that the radiologist would need to take a look etc. I received a text today with an appointment to see the ENT consultant on Friday. Now my concern is why am I being called in so quickly and also if nothing showed up in my scan would the results not just be sent back to my GP ? Should I be concerned.

Hello I went to my GP over 2 lumps in my neck. I had an urgent referral to Vincent’s for an ultrasound which I had last Wednesday. The lady doing the ultrasound said my lumps looked like normal lymph node’s but that the radiologist would need to take a look etc. I received a text today with an appointment to see the ENT consultant on Friday. Now my concern is why am I being called in so quickly and also if nothing showed up in my scan would the results not just be sent back to my GP ? Should I be concerned.

My Partner went into the Mater Private in Dublin and his urologist performed a cystoscopy in November and a second cystoscopy on 4th Jan 24. On 5th Jan he was diagnosed with bladder cancer. At that time his urologist told him that he was referring him to a colleague of his and would be in touch in 2/3 weeks.. The urologist was on a months' annual leave in January and was back on 2nd February. My partner sent an email at the beginning of February asking for his referral, he has not got a response and he does not know the name of the oncologist he is being referred to. He has been ringing the urologist's secretary but is not getting anywhere. He is being tole he is on a list. Given his diagnosis I am very anxious at this stage and I would very much appreciate your help in any way to how to get a response. I would be grateful if you could let me know if there is anything we can do.

I had a mastectomy three weeks ago today and am still taking paracetamol every four hours and vimovo twice a day. Is it common to still need this much pain relief at this stage post op? Thanks for any advice.

Hi out there Waiting 2 weeks now for my breast biopsy results breast cancer as a normal doesn't run in either side of my families but my mother's sister did die of ovarian cancer which is worrying me that I might have the gene from my mammogram through ultrasound I was told that whatever it is that's there will definitely have to be removed its small by all accounts just so hopefully its got in time just want to know out there some info about this genetic gene and If I do carry it what happens next thank you

Hi I'm on tamoxifen. I take a low dose 5mg a day and my doctor is happy me doing this. I was coping v well for about 3 months but last couple of weeks sweats and hot flushes have really kicked in. The sweats wake me several times a night so I'm tired and getting low mood now as a result. My risk of recurrence is v low but I wanted try stay on tamoxifen as I feel better knowing I'm taking it. I'm just wondering has anyone had side effect symptoms l like this improve over time. I'm close to stopping taking it as I'm so tired all the time and feel I've no energy tp do the things I like doing. Any advice v welcome. If I thought it might improve I would stick at it maybe.

Since my first post last November, all was on course until December 2023. I had the usual blood tests and my PSA levels were on the rise again. I had been on Zytiga for some time but this drug was interfering with my liver function , so on to a different drug but this caused a lot of dizziness and lightheaded moments, so bad I refused to drive. So after a blood test in November my PSA had risen to 18 , it had been down to 0.75. Oncologist brought forward a PSMA petscan 4 days later and I was back in to see him 22 December. The news was not good, unfortunately your cancer is in the lymph nodes and the left lung and is now ' Incurable '. So now on another drug ,Daralutimide and hopefully this one can hold off the spread . So far no ill effects bar the usual ,tiredness ,fatigue . So now at Stage ivb prostate cancer ......the future ...lets see what it brings Peter

My lovely Dad, aged 82 lives alone in Carrick on Shannon, Leitrim. He is recovering from an end ileostomy in April 2023. His care is provided by Galway and Roscommon. He does not drive as he has advanced macular degeneration. I cannot always get to Carrick to drive him to and from Galway and the alternative is a round trip taxi fare with a wait time in Galway of ca €500. He has a few appointments coming up and we are not sure how we will manage. Can anyone suggest a solution?