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posted by Muireann85
29 October 2023

Initial doagnosis

Last reply: 01 November 2023 13:06
Hi, I had a triple assessment last week for a lump that I found while I was pregnant. I am now 3 weeks post partum. I was truly shocked to be effectively diagnosed straight away. Now I am just waiting for biopsy results for staging. I am 38 and in a blind panic. I couldn't ask anything because I was in shock. I have a 12 day wait for my results. I have had upper back pain since labour and have convinced myself that it has spread to my lungs. I'm so worried about the future, especially since I'm a new mum. If anyone could help answer some questions. Is it standard to take a lymph node sample at triple assessment or is it only done if spreading is suspected? Was there any financial supports available? If you can't work or need to get a carer? Thank you.
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posted by noddy
24 October 2023

Symptom worry

Last reply: 28 October 2023 19:22
Hi I was diagnosed with local recurrance in oct 21 just a month off 10yrs clear of first diagnoses . I have finished all treatment since jan of this year thankfully ,although still having 6monthly Ct scan . Last scan was sept and saw oncologist after who was happy enough for another 6 months. I pointed out when there that I noticed a small pucker on my diep reconstructed breast on the opposite side to lumpectomy . She had a look said seemed to be ok ,but it’s just not sitting with me and I now have a feeling of fullness in both of my armpits but predominantly in bad side . There is also pain . I’m assuming it’s all scar tissue and nerve issues after lumpectomy and previous surgery ? Anyone anything similar ? TIA
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posted by mos1977
23 October 2023

Invasive lobular breast cancer

Last reply: 24 October 2023 16:53
Hi, I was diagnosed with breast cancer in Aug 23. I had lumpectomy and my onco test was low so no chemo. I started tamoxifen and was referred for radiation, the breast are nurse said there is a 12 week window where you should start after surgery but the hospital have said I could be waiting another 4 weeks for the mapping then another 4/6 weeks to start, so I am getting worried now. Any advice would be appreciated.
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posted by smaslug
19 October 2023

Concern about Oesophageal Cancer Symptoms

Last reply: 24 October 2023 16:28
Hi all. I hope it is okay for me to post here (if not- apologies and I will delete) I am concerned about oesophageal cancer symptoms. However, I feel like these will be dismissed if I go to a doctor. I think part of it is health anxiety, but another part is that my symptoms have increased. I've had a narrow oesophagus since I was a teenager (I'm now in my mid-twenties). It often feels tight, like it's closing up, and that I cannot properly clear my throat. I used to be able to clear it normally before this, but now I need to clear it much more harshly if that makes sense. I had an endoscopy as a teenager, and it came back clear. They suggested the tightness was due to stress. I had another endoscopy about 2/3 years ago, as I still had symptoms and had frequent nausea. This was also clear. Obviously I still have symptoms so something doesn't feel right, but I was relieved that these tests came back okay. The issue now is that I feel like symptoms have worsened. I'm having to clear my throat more frequently and harsher. It also feels like something is stuck in my throat. It feels like food/drink isn't being pushed down correctly by my throat muscles. Water feels like it sticks in my throat and I have to try to clear it. My voice also goes hoarse very quickly if I talk for a long time in situations like presentations. In addition, I have frequent (almost daily) acid reflux, which I know can be a risk factor as well as a symptom in itself. I'm sure it's fine given the previous test results, but I can't help but worry with the increase in symptoms. My father passed from oesophageal cancer a few years ago, so I think I may just be extra cautious around this sort of thing, but it was caught late, and he always had a narrow oesophagus too, so that's always in the back of my mind. I'm trying to reassure myself that I'm just worrying because of my dad, and remind myself that my last tests were okay, but I also don't want to ignore the issues on the off chance something is wrong. Since I feel biased towards checking it out due to the anxiety around it, I thought it might be good to ask others' opinions. Is it worth going to the doctor about, or am I likely just overthinking things? If so, would they even refer me for an endoscopy again considering I've already had two that came back okay? I also don't want to use up an appointment like this since I know people need those, but I'm also concerned about what could happen if I don't check it out. Any advice appreciated, thank you.
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posted by Cancer Nurse
18 October 2023

Living Well with and Beyond Cancer 2023

Our annual national conference will take place as an in-person and online event on Saturday 18th November in the Clayton Hotel, Silver Springs, Cork. Register at www.cancer.ie/livingwell There will be range of topics and concerns specifically focused on supporting people who have experienced a cancer diagnosis. Expert talks about: Scientific discoveries and current cancer research studies Advances in cancer treatments Keeping healthy with and beyond a cancer diagnosis including managing fatigue, diet and self care The financial realities of cancer and supports available Interactive stalls and sessions: Exercise demonstrations Look Good Feel Better Practical Support and Financial Solutions Services clinic Access to our support services team, including our cancer nurses. This day is intended for those who are currently going through a cancer diagnosis/treatment or have in the past, plus a friend or family member. If you would like more information about the day do ring our cancer nurses on our support line at 1800 200 700 Mon-Fri 9-5pm. If you would like to get an idea of what to expect you can view recordings from previous conferences scroll down here We hope to see you either online or in person Kind regards Cancer Nurse
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posted by Eoghan Gardiner
16 October 2023

Pinky Finger cell cancer just want to share

I have had a mri on my pinky finger, so far they think it's a soft cell tumor hopefully benign. I have had it on my finger a few months, originally my GP sent me for a xray but nothing came back so he said it's probably just a ganglion cyst. 8 months later it's gone very big had to go for 2 mri's. ~Anyway just wanted to share I am 30 years old, anyone else had this experience?
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posted by Catherine2023
16 October 2023

Treatment for cording - at home

Last reply: 16 October 2023 18:38
Hello all! New here (well, newish, 10 years after the first time...). I've had lumpectomy and removal of 2 lymph nodes - lucky that my breast cancer, just like the first time in the other breast 10 years ago, is not the worst brand, and hoping to not need chemo, to get away with just surgery, radio therapy and hormone therapy. However, just 3 1/2 weeks since surgery, I have developed cording under my arm (armpit and nearly to elbow) and in my breast tissue (armpit to nipple, down the side). It is sensitive rather than painful, and I have relatively good arm movement, but I am keen to treat it to get rid of it. My post op physio appointment is not for another two weeks, so keen to find info and resources of how best to deal with this right away - i.e. what kind of massage, and what kind of exercise. The internet is chock full of contradictory advice (light pressure massage, deeper massage, different types of exercises). I do the exercises in the booklet I got in hospital religiously, but that is not focused on cording. Anyone here has good advice to share, and quality resources they can point me to? Many thanks in advance, and I wish you all the very best wherever you are in your cancer journey. All the best Catherine
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posted by RK
16 October 2023

Preparing myself for the end

Last reply: 16 October 2023 10:36
My husband and myself are 40. He has been diagnosed with life ending cancer. It is quite extensive. Last August we were told stage 4 lung, lymph nodes, spine, hip and thoracic. This year it’s spread to more bones, stomach lining and liver. My husband is completely in denial about his palliative diagnosis but I’m aware and happy to help him think he will survive. I’m heartbroken but I’m off work as a carer which I am grateful to have this time together. My main concern one I’ve been nervous to ask is what should I expect to happen near the end. Right now he’s being treated with palliative radiation for severe pain. And chemo to lengthen things. Any advice please would be appreciated.
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posted by Margherita
15 October 2023

Looking for other spouses/carers to relate to about the experience.

Hi, I am a 39 year old woman, with a 5 year old daughter and a husband in his early 40s who is currently in chemotherapy for secondary cancer. He first had cancer 5/6 years ago, and the outcome of his surgery and chemotherapy then was very positive. Unfortunately, it's come back quite aggressively in multiple sites, and we've had an exhausting time since his first symptoms last December. I have access to therapy, a good and caring gp, and a supportive family. But I find myself most often craving a conversation with another person whose spouse is in a similar position, or another cancer patient with a young family, or just anyone who can relate to where we are right now. Family and friends mean so well but they don't really know what to say, and that gets tiring to engage with. I'm surprised to discover there are a lot of support groups for patients, but none for carers, that I can find. The cancer support centre in my county has counselling but that's not what I want. I don't need any more sympathy, I need to relate. As I'm sure plenty of people already know, the Facebook groups can be helpful for info but also full of weirdos with juice recipes to cure cancer. Anyone else out there feeling the same way?
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posted by Cancer Nurse
13 October 2023

Living with Metastatic Breast Cancer

Living with Metastatic Breast Cancer October 13th 2023 is Metastatic Breast Cancer Awareness Day. Metastatic breast cancer is when breast cancer cells have spread to another part of your body. This is also described as advanced breast cancer, secondary breast cancer or stage 4 breast cancer. With long term treatment many people with metastatic breast cancer will have a good quality of life while continuing treatment for many years. Even though your cancer cannot be cured treatments may be offered to prevent the cancer from worsening. Living with a long-term disease and treatment can be challenging at times. Each person will have different needs and challenges. It is important for people to be aware of how their cancer is impacting them and seek support when needed. It can be helpful to spend a little extra time looking after yourself. Eating well and trying to maintain a healthy weight can help you feel better. When you feel able, a balanced diet including a variety of food to provide nutrients is best. A balanced diet can improve your energy and strength, can help you tolerate the dose of some drugs given, and can help people cope better with the side effects of treatment. Our Diet and Cancer book offers more helpful information: Understanding Series (cancer.ie). Exercise offers many physical benefits such as increased energy levels and improved fitness. Regular light exercise can also help manage side effects of cancer treatment such as fatigue, pain, nausea, anxiety and stress. As the impact of metastatic breast cancer can be different for each person, the types of exercise and the frequency may differ. Chat to your team about what may be best suited for you. A metastatic breast cancer diagnosis can impact us emotionally. Some find that talking with family and friends about their emotions can be helpful. Others may find that talking with someone such as a health professional or a trained counsellor may help. You can speak with one of the cancer nurses on our Support Line at any stage. We can also refer you to our counselling service if you would like to speak with a counsellor. If you would like to speak to a cancer nurse or to get advice or support you can call our Support Line on 1800 200 700, Mon to Fri, 9am to 5pm.
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