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posted by burren54
26 October 2013

non hodgkins lymphona stage 2

diagnosed late 2012.told no need for treatment yet. could be 10 years. on 2 tabs a day for blood pressure fatigue and overweight. went vegen. now on half tab 2 stone lighter and not tired. intend to drop to zero tabs.
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posted by Irish Cancer Society
23 September 2013

Sunscreen not coming up often enough in doctor visits

A few weeks ago, I visited the local state fair with my husband, son, and extended family. It was a toasty day and we spent most of the time carrying my six-month-old son around in our arms with his head and arms exposed to the sun. At least four times I was approached by a concerned grandparent worried about my baby’s sun exposure. Both my grandfathers have had skin cancer-related lesions removed from their face and neck and their doctors have told them it’s all been due to their years of working out in the sun. I can certainly understand their concern with my son’s well-being and after a little prompting, I covered him up more effectively. I’d like him to have healthy skin no matter how long he lives. This risk of skin cancer is real and dangerous, but a new study has found that most doctors don’t even broach the subject of sunscreen and UV exposure during an average visit. The group was led by Dr. Kristie Akamine of Wake Forest School of Medicine and her study focused on data compiled from doctors’ offices between 1989 and 2010. [b:1ifpgik3]Sunscreen hardly ever mentioned[/b:1ifpgik3] In fact, just 0.07 percent of office visits contained mentions of sunscreen in patient conversations. If the visit was about a skin-related condition, the likelihood of sunscreen being mention raised very slightly—to 0.9 percent. The study was published in the journal JAMA Dermatology on Sept. 4. [b:1ifpgik3]Children least likely to hear about sunscreen[/b:1ifpgik3] Sunscreen was least likely to be mentioned in children’s visits. Akamine’s team explained, “[That finding] is concerning because children and adolescents get the most sun exposure of any age group, as they tend to spend much of their time playing outdoors. Up to 80 percent of sun damage is thought to occur before age 21,” they went on, “and sunburns in childhood greatly increase the risk for future melanoma.” [b:1ifpgik3]UVA and UVB known carcinogens [/b:1ifpgik3] Two experts not involved in the study said sunscreen ought to come up more often in office visits, though they admitted, “With the increasing numbers of topics primary-care physicians may have to cover during an average office visit, it’s not surprising that mentioning sunscreen application may fall to the bottom of the list.” However, that doesn’t mean it should be left out entirely. Despite the trend young people have of tanning to make themselves look more attractive, the sun they are exposing themselves to is actually harming them, as scientists have found that both UVA and UVB are carcinogenic compounds that can cause skin cancer and premature aging.
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posted by youngk
20 August 2013

Has anyone had a TUG reconstruction?

Hi there. Saw my plastic surgeon again this week. It appears I have not enough fat on my tummy for the DIEP flap recon I was looking for (He says it looks like a tummy because I have lazy muscles!!) So have agreed to have the (double) recon done with flaps from my thighs. Has anyone had this procedure? any helpful hints on what to expect as I prepare for it? Karen
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posted by federico72
19 August 2013

Inform and empower patients, their friends and families

ecancerpatient.org provides information for patients to use while discussing treatment options with their doctor. There are videos of cancer specialists talking about the most recent advances in care which are designed to empower patients to become more involved in vital treatment decisions. You can find ecancer also on Facebook (ecancerpatients) and Twitter (@ecancer_patient). I hope this advice will helpful for you.
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posted by Dane7
09 August 2013

Double Mastectomy No Reconsteuction

Hi Ladies Had mastectomy last September right hand side and am due to have left mastectomy next month. Anyone in this situation not have Reconstruction done? Thanks Dane
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posted by Ania
07 August 2013

Just had enough of the drugs!!

Ladies, I desperately need your advice cos no one else understands!! I am 12 months into my cancer treatment, had chemo, surgery, rads and tamoxifen and I have just had enough! I'm done. I have had severe reactions consistently throughout my treatment and because I was so young I was just told I was stressed out. During chemo at varying stages I lost the ability to speak and walk, my head has been melted from all the drugs and I am just not able to make decisions, or be independent essentially, my head is just so badly fogged from everything. Anyway tamoxifen was suppose to be my last treatment, I was on it and due to severe reactions it was stopped for 6 wks and I felt great, then tried it again and only lasted 4 wks on it and my tremor came back (started with chemo but faded slowly after 6months) so it has now been stopped again. I just can't take it anymore, I seem to be really sensitive to drugs and no matter what, I suffer side effects. I just want to be normal and get back to some sort of life but I can't do that on drugs. I am going to tell my oncologist I have had enough and am refusing further treatment cos I can't take it anymore. I have had to give up my life for the last yr and am still waiting for final reconstruction in early oct but then I am off to aus to start again. As far as I am aware the tamoxifen reduces my personal risk of reoccurrence from 15% to 10% which I personally think is useless to me cos if u get cancer in ur 20's there is no way I will get a forty year free pass, if its going to come back it will and I have a tried everything to give myself the best chance but enough is enough! Ye know the pains associated with all the different medications and know that it's not easyi would like to hear your thought before I make radical decisions, any advice really appreciated!!!!
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posted by Resolute
05 July 2013

Kind Words

Hello everyone! I recently received a beautiful card from a close friend of mine in Oz and I hope you don't mind my sharing it with you .. it read.. [color=#4000FF:1y70ytv7]Be gentle on yourself today.. Lightly blow your cares away.. Honour all the things you're feeling.. For within you lies the path to healing..[/color:1y70ytv7] Resolute
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posted by deefed
11 April 2013

Sorry havent been around much - fancy a beer?

Hi Ladies So sorry have not been on for AGES!!!! last time I think I posted was when had finished final chemo. Due mascetomy on Tuesday week in Vinnies. Just wanted to let you know if any ladies are interested am having a post chemo booze up this Saturday in the Goat Grill in Goatstown will be a good crowd and having a DJ to celebrate getting this far. If any of you around and would like to come please feel free. I will be back soon to read all new posts life has been hectic! Dee XX
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posted by blueboys
04 April 2013

Chronic Lymphocytic Leukaemia (CLL)

Hi I am new to the message board. Is there anyone else on the message board who has CLL? and is receiving FCR chemo therapy? Let me know. blueboys.
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posted by youngk
05 March 2013

expander implant before Diep recon?

Did anyone else have an expander implant fitted when they had their mastectomy and then have a Diep reconstruction later? just wondering how it turned out as I was recommended to have the expander to preserve my skin, but the plastic surgeon says it might make recon more difficult and he would not have recommended it! I was reluctant to have any implant but thought it would give the best end result, now I'm not so sure! Karen
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