posted by OrlaM
27 July 2009
Avice re: changing consultant/hospital?
Last reply:
30 July 2009 19:42
Hi
Can anyone advise us? I am only back in Ireland for 3 years from the UK, and don't understand the complexities of the health service, referrals etc but as a family we are at our limit in terms of disatisfaction.
My Dad has small cell lung cancer being "maintained" by tarceva.
He is being treated at a Regional Hospital but I live in Dublin.
We have had several minor concerns throughout the last 18 months regarding aspects of his treatment, like cancelled appointments or him going to appts, very sick from chemo & having to wait up to 3 hours to see who he was supposed to see.
He is now very depressed, crying a lot, wont eat/wash, very very weak, wheezing after walking 10-15 feet. I have got him admitted twice in the past 2 months (through fighting to get him a bed) but each time I go back to work he is invariably discharged. They say he is physically ok but I can clearly see he isn't. W have tried 4 times to get an appt with his consultant to talk to them but cant get past the secretary.
We now want him to get treated in Dublin. Whats the process we have to go through? He is a private patient.
Please understand we know he is terminally ill, its not a denial thing, but he is being treated with such contempt currently & we want him to be treated with the respect he deserves & have his last few months be as peaceful & stress free as possible. As an example I contactedthem last tuesday( and every day since) to beg to see someone as he was refusing to eat, couldn't walk and was in great distress & they have yet to get him an appointment.
Any advice gratefully recieved.
Orla
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