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posted by SusanK
27 May 2020

Father - new diagnosis Non-small cell Lung Lancer

Last reply: 4 months ago
Hi All, I'm new to the forum. My dad has just recently been diagnosed with non-small cell lung cancer about 3 weeks ago. sadly it has spread liver bones, brain. Prior to this he was a fit and well 66yr old.Primary indication of diagnoses was what we though was a bad chest infection(or Covid) so news came as a shock. He is home with me at the moment and we are starting radiation treatment tomorrow to tackle the brain. I'm really just looking for information from anyone who has dealt with this type of lung cancer at this stage. As i say he is relatively well at the moment just weaker and very tired all the time. He has only had 2 instances of pain(at night) days apart and in both instances pain passed after a while. We are waiting on our palliative care appointment so in the meantime i'm looking for some information on what to expect from an escalation in his pain levels. Thanks
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posted by claudia merfu
27 August 2021

Tmoxifen

Last reply: 4 months ago
Hi, i started tamoxifen on July 4th, so I'm almost 2 month into it, i had my last period on the 7th of August and today it seemed like i got it again, or at least I'm hoping is my period and not just a random bleeding. I was diagnosed with stage 1a bc in April, had a lumpectomy and slnb which were clear.i have seen all my doctor's in the last couple of month and it seemed that everything was fine.my gynecologist suggested a total hysterectomy with dual oophorectomy, which i am considering because he said the bleedings will happen.i guess my question is if this is something that i need to address right away because the tamoxifen is already doing damages or should I wait because my periods will be irregular for a while?thank you
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posted by Iamstrong
12 July 2021

Mirena Coil post breast cancer diagnosis

Last reply: 4 months ago
Hello, I was diagnosed with hormone positive breast cancer in Sept of 2020. I have since gone on to have a mastectomy and did 4 rounds of TC Chemo. Throughout all my treatment and even now I have been told that I can leave the mirena coil in - it will not affect my body causing more cancer. Speaking to other women however I note they have been advised to have it removed asap. Which is the correct course of action as now that I am back to myself again I can't go through this ever again? Thank you.
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posted by Julied1987
23 August 2021

To go private

Last reply: 4 months ago
Hi, I am looking for information with regards to results my mam was given last week, she has a small lump on her nose and had biopsy done and they told her in naas hospital that it's melenoma but it's growing outwards, they have told her that she could be 6 months waiting to be seen in James hospital to see will they remove or give her a cream, she's a previous breast cancer patient and is upset with getting this news and dose not want to wait 6 months for an appointment so I am looking for advice on how we could have this done privately?
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posted by Ciara-11
22 August 2021

Coping

Last reply: 4 months ago
Hey guys, Fairly new here so not exactly sure what to say. My mam was diagnosed with terminal cancer out of the blue recently. To say we are devastated and shocked as a family is an understatement. We never thought this would hit our family but I guess no one ever does. Feeling very lost at the moment as my mam is the closest person to me and we are the closest family ever. Feel like I'm already grieving for her when she is still here and I know the worst is yet to come and it's going to change all our lives forever. Any advice on coping? My friends are amazing but they obviously don't get it because they are never dealt with this. Thanks
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posted by Cancer Nurse
24 August 2021

Managing menopausal symptoms

  A brief post around managing menopausal symptoms during and after cancer treatment: Many women suffer from menopausal symptoms but in particular those who are on treatments to reduce the amount of oestrogen in their system. Symptoms can include aches and pains, hot flushes/night sweats, low mood and anxiety – among others. We have some helpful information on our website about the different symptoms of menopause nd some practical tips you might try (see the link below). Some symptoms can get you down. It can be hard to find the motivation to try and make lifestyle changes. This can be partly due to the menopause but can also be due to so many other concerns you have at this time. Making a phone call to our nurses, to your own nurse or doctor in your hospital, or to your GP, is the first step. There are some prescribed medications which may help with some symptoms. Many people will try all of the suggestions made to them and still struggle. Counselling and talking to others who have been through this may also help. I will include links on all of these supports below. I do hope we will hear from you as each person’s experience is individual to them and so often that one-to-one conversation can help. You can talk about what you have already tried and if it has or has not helped…and talk about other worries you may have that is making everything so much harder to deal with. Here is a link to our information on Managing menopausal symptoms. You can contact us on the Irish Cancer Society Support Line 1800 200 700 and speak to one of our cancer nurses or email us on supportline@irishcancer.ie You can also contact us at our cancer nurses at our Daffodil Centres located in 13 hospitals nationwide  see www.cancer.ie/support/daffodil-centres If you would like to speak to someone who has been through the menopause as a result of their treatment this can be arranged by our nurses. For more information on this see here:  Survivor Support programme. . The Society also funds professional one-to-one counselling and group survivorship programmes in communities all across the country. Contact us if this is something you might like to arrange. Take care  Cancer nurse.    
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posted by azzo
19 August 2021

Cocooning

Last reply: 5 months ago
My mother in law has been diagnosed with lung cancer. When not in hospital she will be living with us. My primary school aged kids are due to resume school in September. Obviously they are too young to be vaccinated. Should we homeschool them instead? Is that what people do? We have isolated ourselves from everyone because of Covid, but all of us adults are fully vaccinated. Is it ok to go into work in person for a once off meeting? Is it ok to meet my own mother and father? Precautions are in place. Outdoora where possible, ventilation, wearing masks, hand washing etc etc. The spread of Delta variant is scary but cutting ourselves off from everything and everyone feels extreme. Is this what people do?
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posted by claudia merfu
19 August 2021

Hysterectomy after breast cancer diagnosis

Last reply: 5 months ago
Hi, I'm 45yo, and in April i was diagnosed with stage 1abreast cancer , hormone positive and HER negative, i went through a lumpectomy with sentinel node biopsy, and nodes were clear, I'm on tamoxifen now, and my gynecologist is advising on a total hysterectomy with a dual oophorectomy. Is this a normal thing to do under the circumstances, i mean i don't want kids, nor do I have any, but the ovaries taken as well, seems ,to me obviously, a very extreme measure, and although I am aware that ovarian cancer might be in the books, it seems from the things that i read, that coronary artery disease,ling cancer and colorectal cancer might be following this procedure anyway....Obviously, my doctor would know better, as I read this information online, but I'm looking for a bit more information on the subject...has anyone been through a similar experience?thank you
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posted by Friend123
09 August 2021

A second biopsy

Last reply: 5 months ago
Hi , I have a swollen lymph node found during investigations for not related condition. The first biopsy came back clear. The node has not gone down and I am been send for a more detailed biopsy. Anyone have any experience of this ? Thanks Mary
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posted by Irish Cancer Society
11 August 2021

Take a survey to help with our cancer research

Want to help out with our cancer research? If you or a family member Are waiting on cancer surgery, Have had cancer surgery within the last year, Or you are involved in the care of surgical oncology patients, Trinity Exercise Oncology Research group would like to hear your thoughts on exercise before surgery. You don't have to have experience with exercise to take part. Please feel free to share with any friends of family who you think may be interested in taking part. Link to questionnaire: https://nursingandmidwifery.fra1.qualtrics.com/jfe/form/SV_2hGvspwQsx9AqlU Contact: exerciseoncology@tcd.ie
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