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posted by Lou45
30 January 2025

Liver Lesion

Last reply: 06 February 2025 15:59
I've had stomach pain and blosting over the last couple of years,told it was IBS and constipation.Pain got worse over the last few months.GP said it was gallstones, had an abdominal and pelvic Ultrasound.Receved results yesterday and there is a lesion on my liver.I've been referred as priority for an MRI.This time last year I found a lump on my breast.It was benign but precancerous cells were located during mammogram so I had surgery.Received the all clear thank god.I am awaiting Genetic test as the BRCA gene is in my mother's family,her sister and mother died of breast cancer and her brother was diagnosed with breast cancer last year.I am 45 years old,I have 3 Sons and trying to stay positive.Would really appreciate some advice and looking for anyone who has been in the same situation and got good results.
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posted by Aileen PMBCL
28 January 2025

CAR T therapy

Last reply: 31 January 2025 22:23
Has anyone been through process of CART therapy? I’m Pmbcl refractory. After my third pet scan on on Jan , it was agreed that I start Car T in St James. I was told my pet scan showed a great response to chemo. Sounding that I was bordering between stem cell or cat t , At James they required a 4th petscan after my 3rd cycle of RICE It’s worrying that in a space of three weeks , they have concerns about my most recent pet scan that occurred yesterday. Everyone tells me how well I’m looking and it’s hard to voice at times , the stress and insomnia of managing this cancer
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posted by sORegan
28 January 2025

Axillary clearance

Last reply: 04 February 2025 11:59
Hello, I’m new here, and this is bound to be an old question, but I’m wondering if women have any tips on what they feel helped prevent lymphoedema after axillary clearance? I know the research seems to show that there’s not much you can do to definitely avoid it.
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posted by kransom
26 January 2025

Pain in hips

Last reply: 28 January 2025 19:53
I had stage 2 breast cancer and finished all treatment in April 2024. I’ve noticed an on going and persistent pain in my hips, in what feels like my hip bones. I don’t know what arthritis feels like but I feel like this must be what it is like! Very stiff, painful, when I stand up I’m like a 90 yr old little old lady. Sitting cross legged or lying down on my sides has them feeling on fire. Sometimes I just get up in the morning and they’re already painful and stiff and I’m just standing there. Is this something that could have been caused by the chemo or treatment? I’m nearly a year since finishing oral chemo and over a year since finished IV chemo… could it still be effecting me? Can I be given anything to help this pain?
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posted by LC1209
26 January 2025

Elective preventative mastectomy

Last reply: 27 January 2025 11:06
Hi all, wondering if anyone has advice. I do not have BRCA gene but have a high lifetime risk of cancer based on 5 of 5 aunties and other close relatives having breast and other cancers. Doctors have advised they think it is likely another BRCA type gene that has as of yet not been discovered. I am considering a preventative double mastectomy as the cancer feels somewhat inevitable. What I was hoping to get guidance on is if there was anyone else in this situation - what were the costs involved? And was any of it covered by health insurance?
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posted by Ukperson
25 January 2025

Family communication

Last reply: 12 February 2025 16:34
Hi everyone. I'm new here. I found this site as I am trying to find ways for my family to communicate regarding the care of an aging parent with lung cancer. Like a kind of mediator well can help to set up communication? Thanks in advance for any advice
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posted by agatha
24 January 2025

Cold cap scalp cooling

Last reply: 01 February 2025 10:02
Hi everyone! I’m just wondering does anyone have info or practical experience of self-sourced cold cap therapy? My consultant-affiliated hospitals do not provide this service and I am reluctant to change hospitals and consultant to avoid delays. Does anyone have experience of renting machines or equipment themselves? I know private insurance covers some costs but is the process slow and stressful?, i obviously don’t want to delay treatment etc and not keen to use equipment involving dry ice as I fear trying to get consistent deliveries of this in time for each treatment may be very stressful and or may not always be successfully delivered. Any info would be greatly appreciated and if it isn’t in time to help me, then at least I will be able to help the next person to navigate the query a little easier. Thank you so much in advance!
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posted by Anne Deane
21 January 2025

Peritoneal Mesothelioma

Last reply: 22 January 2025 11:19
Looking for people who have my type of cancer to discuss who they see what kind of treatments they have had etc.
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posted by Raz
20 January 2025

inconclusive PET SCAN

Last reply: 22 January 2025 20:12
Had a PET Scan on January 2nd after my 6 circle of chymotherapy and results were inconclusive which my consultant was NOT great help in discussing it, only said they have to have meeting with team and then give me result. I have to say that I had one PET Scan done after my 4th circle and it was great as the consultant said cancer is gone. But I am confused now with inconclusive result after my 6th and final circle. I don't know if I mentioned that lymphoma 2/3 stage. I would appreciate your response
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posted by Angela323
17 January 2025

Re-locating -Changing Hospitals

Last reply: 25 January 2025 00:13
Hi there, Hope you are well. I'm just wondering if you know where I could get information about this. I'm moving to Dublin next month but I've been to see a consultant in Cork and had a biopsy. The biopsy sample has been sent back for further testing. I told the consultant's receptionist that I'll be moving to Dublin, she said we can discuss this at a later date. She said the biopsy results will take a few weeks and we can discuss it then. Is there any way of finding out sooner, if it is cancer, can I be transferred to a hospital in Dublin and would there be a delay in getting treatment because of the transfer? Can I choose which hospital in Dublin ore do they choose for you? They more or less said it was cancer, they just need to know what type. Thank you for any advice you can give, Angela.
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