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posted by ciarao
03 January 2021

Shielding after treatment

Last reply: 11 days ago
Hi Does anyone know should you shield after completIng chemo/ retuxamab infusions 1.5 years ago. In the uk it states if your not more than 2 years in remission you should shield. It’s v confusing.
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posted by SM_2020
03 January 2021

Genetic testing

Last reply: 19 days ago
Hi everyone, My Mum was recently diagnosed with advanced ovarian cancer and her oncologist recommended genetic testing. Bloods for this were sent off for lab assessment a few months ago but no results yet. Has anyone has experience of this? I'm very anxious, obviously caring for Mum but also worried about possibility that there's a genetic element to her illness too, raising my risk. Anyone know about time frame for test results, full process etc?
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posted by SM_2020
03 January 2021

Appetite and nausea relief

Last reply: 19 days ago
Hello, I am caring for my mum who is very ill on chemo for stage 3 ovarian cancer. She was hospitalised five days ago because she can't eat. She's getting IV fluids and a stomach pump delivering Maxolon (but still can't eat as it's not really helping). I'm extremely concerned about her weight loss, inability to eat, and relentless nausea. She is very weak and her mood is low. At what point would a feeding tube or similar be considered? A palliative care nurse mentioned Megace as an appetite stimulant and I've been trying to bring it up (brought it up at last chemo appointment and the nurse took note but haven't heard anything since). Does this sound like something that would help under the circumstances? I can't visit her and getting a chance to speak to her oncology team is difficult. I understand that the COVID restrictions need to be in place, but it means that patients don't have advocates when they most need it. Thanks in advance for advice
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posted by Masterson
22 December 2020

Stage 4 Bowle and liver cancer

Last reply: 17 days ago
Hi, sorry to ask but a family member has been diagnosed with stage 4 bowel and liver cancer, we have been advised its incurable but can be controlled with chemo every 10 days or so . hes only in his 50s and has no other health complications . His doctor is positive but has anyone ever been through this stage ? Many thanks
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posted by PN
21 December 2020

Bile Duct Cancer -Cholangiocarcinoma

Last reply: 1 month ago
Hi -I'm only writing this as I find it impossible to talk about it to anyone. I was diagnosed with cholangiocarcinoma in November 2019. I had surgery on the affected bile duct and liver re-section in December 2019. I've had follow-up scopes and bowel biopsies since then, with the most recent blood tests for tumor markers a few weeks back. As the blood tests are done in batches the results are due around now. I missed two calls from the hospital (I didn't have my phone on me) and I suspect the calls are related to the blood test results. I've deliberately not tried to ring back as I don't want to hear any bad news before Christmas. I'm due back in January anyway for more scans. I'm finding the stress very tough at the moment and I've had more or less no contact with anyone, outside my immediate family since the first Covid lockdown in March as I've been (lucky enough) to be working from home since then. Just want to get through Christmas and face up to it again in January.
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posted by Vision
19 December 2020

Onkotype test

Last reply: 1 month ago
Hi I was wondering if anyone has had a Onkotype test done as part of breast cancer treatment
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posted by BM
18 December 2020

Recurrence in underarm lymph node

Last reply: 1 month ago
Hi I never posted in anything before so here goes, I was diagnosed 6 years ago with dcis with mi, sentinel node clear, I had a mastectomy and no other treatment. I've had pain in mastectomy side on and off but since August it got worse. My gp sent me for an ultrasound in breast clinic. The radiologist seen a swollen lymph node and done biopsy. Got the results Tuesday, cancer cells in node. I had a ct and bone scan since, I'll get results Tuesday. Has anyone had anything similar. Im so scared. Thank you
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posted by orchardj
18 December 2020

Periods on Taxol

Last reply: 30 days ago
I've started bleeding ans its 35 days since my last period which was before I started chemo. I was told that my period will stop all together when on this drug. Had anyone else still gotten periods on Taxol? I'm starting my 3rd round of Taxol next Thursday.
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posted by rubyfluff2020
15 December 2020

awaiting results of mammogram

Last reply: 1 month ago
Hi There, I had a mammogram last week after finding a lump. I had to wait 8 weeks for appointment so i just reallly want to get the results after such a long wait! I was told no news is good news. I went to vincents hospital and am just wondering has anyone else had to wait 2 weeks even if something is found. My mind is going crazy.I still have the lump and pain in collerbone. They didnt do an examination, just the mammogram. Thanks so much in advance
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posted by VC
14 December 2020

Awaiting appointment.

Last reply: 1 month ago
Hello, I went to my GP with a small lump in my right breast and a referral was sent to the Mater Hospital clinic for review. I have been waiting 10 weeks now for an appointment and told there are delays because of Covid19. In the mean time a larger lump has developed in my left breast and I have noticed my breast is larger and feels heavy. I cannot lie on my front due to pain in both breasts. I am wondering if I should revisit my GP or continue to wait for an appointment? Also, during the clinic visit will both breast be reviewed or just the one on the referral? Kind regards.
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