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posted by WicklowLady
19 March 2013

Started rads today

Last reply: 25 March 2013 22:34
Well girls the start of another journey . Had my first radiotherapy this morning. Stressed out straight away when I looked out the window and saw snow. Left half an hour earlier and ended up being ten minutes late as traffic was at snails pace. Stress!!! De stressed when I got there as they were so nice and said they understood as the weather was so bad. It was a painless experience. Went to cornelscourt looking for a cotton bra but none and got some men's cotton hankies for under my boob. My joints are killing me and I'm getting physio on Thursday on my leg. I feel like an old woman to be honest but I'm getting my hair dyed on Friday with a non ammonia dye (getting a patch test tomorrow) and my work colleagues are coming to Wexford with me at weekend to celebrate being cancer free so that should perk me up. Not feeling great today to be honest, more hospitals and machines, sometimes it gets you down but you have to carry on. I'm going to ring the cancer support centre tomorrow and book counselling and relaxation I really think I need it. Although the weekend might be counselling enough as my girlfriends are brilliant and I can laugh and cry with them. I swore I wouldn't complain once chemo was finished and none of this is as bad as that. You just have days like this I suppose.
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posted by Mariek2212
21 March 2013

Waiting Time for Surgery

Last reply: 22 March 2013 13:40
Hi, I'm looking to hear from other public patient's attending St Vincent's hospital who are currently waiting to be called for breast reconstruction surgery or who like myself have a tissue exapnder and are waiting to be called back to have it removed and an implant inserted. How long have you been waiting versus what was the actual waiting time given to you by your consultant. I was told by my consultant that I would be waiting 2 to 3 months, while I took this with a pinch of salt, I thought more likely to be closer to 6 months. I rang the hospital two weeks ago and have been informed that I am now looking at least another 9 month wait on top now of the five months I have been waiting. My concern is that the tissue expander is according to the manufacturers literature "temporary" and on US websites stating "ideally" it should not be left in more than six months as the development of tissue adhesion will make it more difficult to remove and lead maybe to other knock on effects, ie longer healing time. I checked with the maunfaturer of the expander I have and that time frame has been removed from their literature for the UK and Irish market. I really would love to hear from others who have had this done in Vincent's in the recent past, and what was their timeframe form start to finish. Also has anyone (public patient) asked to change their assigned consultant for whatever reason? How did they go about it and how was it taken. Fed Up
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posted by bettersoon
21 March 2013

Newbie - my story, your experiences/thoughts appreciated!

Last reply: 15 April 2013 19:59
Hi All, My story began in Jan '13 in the UK where my partner was based, I'm from Ireland and returning here for chemo leg of treatment which should begin before Easter. When I found lump I was told "most of these things are nothing", hence I decided to seek diagnosis in UK where I got next day consultation for triple assessment - unfortunately they could see right away from ultrasound something was wrong. And 5 wks later I was post surgery, puking my guts up from general anaesthetic (!), but minus my old boob with a new model in its place! I can honestly say that I'm feeling pretty good about surgery results - it's never gonna be a real boob but its cancer free. Also on the plus side, lymph involvement was minimal so no radiotherapy recommended, but chemo and tamoxifen have been. The good thing was that I was also offered a course of IVF which I've just completed meaning that I keep my family options open for the future. That all seemed par for course in UK. BTW, I previously worked and had GP there hence access to NHS treatment. My family asked that I move back to Ireland so they can help me through chemo. I understand chemo regime may differ - FEC was offered in UK but seems not so common here. Any thoughts on this? Anyhow, I've been feeling a little out of the loop as far as care here is concerned so would love to hear from others with similar experiences, is IVF available here or only with private healthcare? FEC thoughts? Do most cases in Ireland have radiotherapy as a matter of course? And any 20/30-something year olds around?! Not to exclude any opinions at all, all welcome, just find myself wondering why cancer had to bite me in the ass (or boob!) so early, pre-kids, mid-career.... Suppose we all ask the same questions in a different way Thanks for reading!
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posted by aniq
21 March 2013

Diagnosis procedures

Last reply: 24 March 2013 21:37
Hello girls, Got great news today. Nodes clear so no radiation needed. Won't know about other treatments until I meet with oncologist. Would anyone out there with IDC be good enough to tell me what other diagnostic tests you had done apart from triple assessment? Did u have MRI's, ct-scans, bloods etc? Was with consultant today & only plan was surgery which I've had but I see stories of others who've had the full gauntlet of tests. I just want to make sure that nothing is being missed. Cancer details in signature. Although the news today was great I still feel like I have a death sentence hanging over my head. I don't seem to be experiencing the relief that my family are feeling. I think that I had myself so ready for bad news today that my brain hasn't yet registered that it's going to be ok. Maybe it's just a delayed reaction. Has anyone else experienced this or am I as messed up as I feel?
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posted by bettersoon
22 March 2013

Anyone tried permanent makeup?

Last reply: 23 March 2013 11:17
Hi all, I've always been pale & tinted my brows. Am considering permanent brows & eyeliner pre chemo... Has anyone tried this or any thoughts? Cheers x
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posted by sunshine71
25 March 2013

dental work during treatments

Last reply: 11 April 2013 22:12
Just thought this might be of interest to people who are undergoing treatments. [color=#0040BF:2zsjqdja]http://www.hse.ie/eng/services/healthpromotion/dental/ All medical card holders are entitled to specific dental treatments e.g., a dental examination, two fillings in each calendar year, extractions as necessary. Some treatments such as the provision of dentures require the approval of the HSE before the dentist can proceed and in this case, the dentist applies directly to the HSE. Additional treatments for example, teeth cleaning are available to those persons with specific medical conditions and again, your dentist will be able to advise you of your entitlement if this is the case. The HSE dental section may require written documentation outlining your medical condition and/or medications from your G.P. or other relevant medical person. Examples of some medical conditions are outlined in the table below; Conditions Examples Cancer Patients Prior to treatment for cancer Those under active treatment by chemotherapy or radiotherapy or under medication prescribed by an oncologist [/color:2zsjqdja]
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posted by barbarad
25 March 2013

herceptin and panic attacks

Last reply: 26 March 2013 13:00
Hello everyone I am writing on behalf of my mother who has been diagnosed with her 2 pos breast cancer just before Christmas. She was supposed to have 8 chemo sessions but was stopped after 5 as it was too much for her. She is also on Herceptin and due for a mastectomy in a few weeks. The question I want to ask is if anybody suffered anxiety while being on Herceptin. She seem to be suffering with an overwhelming sense of panic and nerves,every little thing is a big problem for example she is worrying that something will happen to my father or if everything is not just so, panic sets in.I was just wondering if anybody else was suffering with the same thing, if it was normal or maybe a side effect
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posted by LeitrimLady
26 March 2013

Portacath for Heceptin Administration ?

Last reply: 28 March 2013 01:05
Hi again, hope all well, I was just wondering what is the norm on how herceptin is administered and is a portacath usually required due to the number of itretaments? I am due to start chemo and herceptin after Easter. I have another appointment this week with oncologist but would like to know practically what might work best because of the duration of treatment. Thanks a million, LL.
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posted by LeitrimLady
27 March 2013

Herceptin by Injection & Weekly v Three Weekly Administratio

Last reply: 26 April 2013 21:22
Hi, And i thought herception was going to be straightforward ! Got two choices today from oncologist on herceptin that I didnt expect as I thought it was standard three weekly intervals by IV and interested to know what anyone elses experiences have been?. Have option of weekly administration rather than three weekly and and also can participate in a trial which administers it by injection which takes 3 - 5 minutes. It apparently does not impact on efficacy and they are reviewing the tolerability of injecting under skin in this manner. I have looked at the research done but would love to know if anyone else is receiving herceptin by injection? ( or weekly) Thanks LL
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posted by wilmaone
29 March 2013

1yr on

Last reply: 11 April 2013 20:55
Well I can't believe I finished chemo a year ago today it has flown by.17 months ago I thought I'd never see the end or normality again.But here I am done and dusted first mammo clear and starting to find myself again.I have learned so much about myself on this journey and of others that I might not have had it not happened and for that I'm grateful.Thank you all who have supported me here through my rants and moans(and there was a few!!)the support here has been fantastic and I would have been lost without it so thank you again. Today was certainly not an anniversary I thought I'd celebrate but you know what we are bloody fantastic for going through and coming out the other side of this disease and its treatments.Can't wait till the 1st may for the new boobs 1st birthday. So tonight ladies I'm having a glass or two I celebration of myself and for all of you that are finished,going through or just starting. There is light at the end of the tunnel Cheers to us Xx
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