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posted by deefed
13 March 2013

8th and Final Chemo tomorrow and Op and Recon April

Last reply: 21 March 2013 17:26
HI Girls Its been so long since I have been on this have no reason why really apart from the fact that.....emmm.... what did I say? My brain is mush! Met with plastics last week (or week before) really wanted a recon with mascetomy. Decided to go for it even though I am having RT so they are unsure if it will take. This is the way I want to do it give it a lash and if it fails I will do it again later! Cant believe 6 months of chemo will be over tomorrow - yippee yippee yippeee Op 23rd April. Sorry to see we have two new people here minefield and leitrim? I am too lazy to check the names again I too had invasive lobular and am doing great - minefield I just pm'd you as you sound quite similar to my diagnosis. Thats it girls - hopefully getting pumped with poisin for last time - thankfully it has so worked for me and the tumour is really shrinking and all happy xxx
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posted by mlnecraft
14 March 2013

s

Last reply: 15 March 2013 15:07
ahh ,so typical , I got my first chemo Tuesday ,the nurse is coming in the morning typo show me how to give the injection ,now what to do about the following , hubbieb has a big heavy cold (soon to be flue) my youngest had vomiting Tuesday night and wasn't too well yesterday ,won't be in school tomorrow. when are my worst days regarding picking up infections ,will I buy a face mask and wear it when around them ,just jokeing ,advice welcome ,
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posted by WicklowLady
14 March 2013

FREEDOM

Last reply: 25 March 2013 19:57
Well girls I'm here in Lanzarote and the weather is beautiful. I brought the wig and some summer hats and apart from shielding my head from the sun I've worn none of them. I got the thumbs up from hubbie to go without. I have very little hair but enough. It felt soooo good , the freedom of feeling your hair, the little bit I have. We then got a text from some people we know from home who are over training with their triathlon club and they wanted to meet us for a meal the other night. Ooooh quandary do I put the wig or hat on or do 'I go for it' so I went for it. They thought I looked great. Don't know what I'll do when I go home to the cold, I love my look but I would like to get a vegetable dye in as I'm grey!!! Not been able to read without glasses, plunged into the menopause & brain a mush, no not adding grey hair to that. Besides my mother is 80 and blonde, she couldn't have a grey haired daughter , wouldn't be right!!! Lol Can I put a photo up here??
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posted by aniq
14 March 2013

Drainage probs after surgery

Last reply: 17 March 2013 21:26
Hi girls, had my mast Wed last week and when I went back on Tue to get dressings changed there was a large buildup of fluid under my incision which had to be drained. Was told as I only had sentinel node +1 taken that it shouldn't happen again. But it has and I'm back to hosp in the morning to have it drained again. It's causing a huge amount of discomfort & pain! Don't even want to wear the foob as it puts too much pressure on the area. Anyone else come across this prob and how long did it take you to right itself?
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posted by Neadi
15 March 2013

4 down! 2 to go!!!

Last reply: 19 March 2013 09:26
Ok, I never thought I'd get here, and although am slightly in no mans land in chemo land I am 2/3 of the way there!! Yesterday I had the privilege of witnessing the bravest ladys last chemo!! Dee really gonna miss you, but enjoy every second of your chemo freedom!! See you in April xxx Darina came in for a visit! Thanks so much for the stop great to see you looking so well, and happy birthday x I also got to meet some lovely new ladys too and have a good chat. So here in my cave for 6 days watching my boxsets and hoping for minimal side effects!!!!! Hubbie gone to a wedding this weekend so my lovely sis is coming to watch Dallas with me!! Yee haw!! Hope everyone is doing ok Xxxx
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posted by Kathleen
16 March 2013

Onwards and upwards!

Last reply: 26 March 2013 14:47
Dear friends, Next week I will be one full year out of chemo, nine months post radiation and six months back at work (1/2 days only for the moment). My hair has grown back well and I am pretty fit again. My memory has improved and the general mental woolliness that made ordinary tasks like navigating difficult is lessening. On the downside, I am still struggling with fatique and neuropathy problems from chemo. And of course the old hot flushes and night cramps from Tamoxifen. I first joined this site to consult the online brochures. I am Irish but have been living in France for over 20 years. I speak French well, but desperately needed to be able to read about my cancer in English to be sure I understood fully. Not only did I find all of the brochures on this site, I found this wonderful, wonderful forum. I want to thank you all from the bottom of my heart for helping me through my treatment and the aftermath. For your kind caring words, your thoughtfulness, and your wonderful Irish good humour. It has made a world of difference. Now, I think the time has come for me to turn the page. I will not be reading and contributing to this forum much in the future. Know that you have all touched my heart and that I wish you all the very best on the road to recovery - and beyond. Onwards and upwards! Hugs Kath
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posted by sunshine71
16 March 2013

Relaxation / Mindfulness

Last reply: 01 April 2013 15:01
[color=#8000BF:1reexmmb]This is something I have been very reluctant to try during my chemotherapy. I suppose I was a wreck in my head with the cancer diagnosis, surgery and then chemotherapy. The last thing I wanted to do was relax in a quiet way and be in the present moment! However, with the help of counselling I'm in a better place in my head and promised myself I would at least try the relaxation and mindfulness that was on offer in my local cancer support centre. Low and behold I'm converted. Now my only regret is that I didn't start sooner. It has really changed my life. I now practice this at home too and find it great to take time out during the day if I can to just be in the moment. So anyone who is thinking about trying this but not sure my advise would be to try. The worst that will happen is its not for you, the best is that it will be something that will help you to cope with things that life throws at you. [/color:1reexmmb] http://beaumont.ie/marc a helpful link which I think explains what each is.
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posted by rcyawl
19 March 2013

Prostate Support Groups in Cork?

Last reply: 24 March 2013 17:10
I don't get to Dublin , are there are Prostate Cancer Support Groups in Cork ? regards
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posted by WicklowLady
19 March 2013

Started rads today

Last reply: 25 March 2013 22:34
Well girls the start of another journey . Had my first radiotherapy this morning. Stressed out straight away when I looked out the window and saw snow. Left half an hour earlier and ended up being ten minutes late as traffic was at snails pace. Stress!!! De stressed when I got there as they were so nice and said they understood as the weather was so bad. It was a painless experience. Went to cornelscourt looking for a cotton bra but none and got some men's cotton hankies for under my boob. My joints are killing me and I'm getting physio on Thursday on my leg. I feel like an old woman to be honest but I'm getting my hair dyed on Friday with a non ammonia dye (getting a patch test tomorrow) and my work colleagues are coming to Wexford with me at weekend to celebrate being cancer free so that should perk me up. Not feeling great today to be honest, more hospitals and machines, sometimes it gets you down but you have to carry on. I'm going to ring the cancer support centre tomorrow and book counselling and relaxation I really think I need it. Although the weekend might be counselling enough as my girlfriends are brilliant and I can laugh and cry with them. I swore I wouldn't complain once chemo was finished and none of this is as bad as that. You just have days like this I suppose.
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posted by Mariek2212
21 March 2013

Waiting Time for Surgery

Last reply: 22 March 2013 13:40
Hi, I'm looking to hear from other public patient's attending St Vincent's hospital who are currently waiting to be called for breast reconstruction surgery or who like myself have a tissue exapnder and are waiting to be called back to have it removed and an implant inserted. How long have you been waiting versus what was the actual waiting time given to you by your consultant. I was told by my consultant that I would be waiting 2 to 3 months, while I took this with a pinch of salt, I thought more likely to be closer to 6 months. I rang the hospital two weeks ago and have been informed that I am now looking at least another 9 month wait on top now of the five months I have been waiting. My concern is that the tissue expander is according to the manufacturers literature "temporary" and on US websites stating "ideally" it should not be left in more than six months as the development of tissue adhesion will make it more difficult to remove and lead maybe to other knock on effects, ie longer healing time. I checked with the maunfaturer of the expander I have and that time frame has been removed from their literature for the UK and Irish market. I really would love to hear from others who have had this done in Vincent's in the recent past, and what was their timeframe form start to finish. Also has anyone (public patient) asked to change their assigned consultant for whatever reason? How did they go about it and how was it taken. Fed Up
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