Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by paggmo
04 May 2010

Mimosa project _ vaccine Abagovomab_Ovarian cancer

Last reply: 10 June 2010 15:56
Hi , I would like to know if in Ireland there is anything similar to Mimosa project and if there is any possibility to be enrolled. Thank you http://www.mimosa-study.com/trial_centres_frame.htm MIMOSA is a demanding multinational trial started in December 2006 with a 9 years of duration. About 900 patients with advanced ovarian cancer who have had an optimal response to the initial treatment (surgery + chemotherapy) have been included in the study with the aim to test the efficacy and safety of the vaccination with Abagovomab for the prevention or the delay of disease’s recurrences. The first results will be available at the end of 2010. WHAT IS ABAGOVOMAB? Abagovomab is an antibody to be used as a therapeutic vaccine for the prevention of recurrences of ovarian cancer
1 comment
Read the post
posted by Deema
04 May 2010

immediate reconstruction after masectomy

Last reply: 30 May 2010 13:26
Hello Everyone I am new to this, just diagnosed last Thursday so still trying to get my head around everything, I had a biopsy done late in Feb and everything came back totally clear!! When I saw Doctor again he told me they were going to take out the lump as a precaution, which I had done 3 weeks ago, all went well according to doctor, he said they were proberly being overcautios, so I was quite happy, I went back on Thursday expecting good news but was told that I have to have Masectomy as lump was invasive cancer and also I have DCIS Total Shock as I was not prepared for this at all He also wants to do Reconstruction at the same time which I thought was a good idea but have since had conflicting reports Just looking for some advice,
12 comments
Read the post
posted by smithers
13 May 2010

JOINING THE CLUB!

Last reply: 01 June 2010 23:22
Hi all, I was told last Friday I had breast cancer. Only found the lump the previous Saturday so things have been moving very fast!! Was back at the hospital yesterday as the biopsy results were only back and they confirmed what they had already told me. The tumour is 2.5 cm with a "suspicious" mass around it which the surgeon isn't happy with so she thinks we will most likely be looking at mastectomy but she wants to do chemotherapy first for 6 months. It's also in my lymph node so she will be doing auxiliary node clearance as well. She said it is at stage T2 at the moment, what she is calling early cancer Thank God. However, I have been having pains in may shoulders and arms, so have to get more scans next week to rule out that it has spread anywhere else. Please God these come back negative waiting for them is going to be torture as I have taken just about all I can take I have a sore throat now and every bloody twinge has me thinking is it there now too!
15 comments
Read the post
posted by petal
14 May 2010

advice please

Last reply: 01 June 2010 11:44
Hi Finally built up the courage to join up, being checking in and out for ages. Anyway I have had b/c, was diagnosed September 08, had tumour in one breast and dcis in the other. Had surgery followed by chemo and radiation. I am well thank god but need help on firstly buying a bra that suits, its a mission i've been on a while. Need advice on complimentary treaments that I can have, have heard some are to be avoided? Also any one having problems with their feet since chemo? Any help would be most appreciated. Thank you
8 comments
Read the post
posted by memomymo
16 May 2010

New member

Last reply: 19 May 2010 09:25
H
3 comments
Read the post
posted by hugs
29 May 2010

Chemo advice?

Last reply: 10 June 2010 11:35
I should be starting chemo in about 3 weeks or so. My oncolgist is away next week, I havent met him yet. Ive found lots of advice on the american and british message boards. People seem to make up 'chemo' bags. with lots of supplies. There is also a huge list of side effects. But i thought it might be nice to get some info from you guys who have gone throught it here. What tips and hints are useful? How sick did you feel while having the treatment, how tired? My main concern is will I be able to drive during the treatment? Or will i not be able to drive at all, or will it only be on the treatment days that i wont be up to it. I know everyone is different, and i suppose the waiting around is probably going to give me plenty of time to imagine the worst senarios Somehow I was able to block it from my brain while having all the operations....but time is ticking now
13 comments
Read the post
posted by d gee
19 May 2010

Breast and arm pain post radiation

Last reply: 08 June 2010 16:59
Help please re the above. Am getting lot of pain since radiation Had massage. No arm swelling. Going for mammogram on Monday -so scared as am so sore. Gemgee
13 comments
Read the post
posted by memomymo
19 May 2010

GOOD NEWS

Last reply: 28 May 2010 12:34
B
3 comments
Read the post
posted by garcon
25 May 2010

Enjoying radiotherapy?

Last reply: 21 June 2010 22:31
Hi everyone, Sorry been sooo long since I've been on here. The radiotherapy is keeping me busy I can tell ya. Had No: 16 today, just 19 to go....... Actually I know it sounds bizarre and maybe this time next week I'll be cracking up but.... is it possible to enjoy radiotherapy? I get to drive on my own there, have no pain, generally go for coffee. Little bit of browsing around the shops, odd cake here and there...... yes putting on a bit of weight but not too much. I am seriously being kind to myself, a bit indulgent really. My children are well looked after and I have some time to myself. Actually cos I have a childminder in the afternoon, I have tried to have afternoon appointments so I can have a lie-in in the morning and make my way up at my leisure. As far as the actual treatment is concerned, I'm afraid to tempt fate to say that its going bloody fantastic and my energy has not been this good since I got diagnosed. Am I heading for a fall? All you experienced ladies out there, feel free to knock me off my happy perch if you think I'm in the rosy period. My children and hubby are fine and so sweet actually, like telling each other to be good so I can have a rest awh..... Feel like a bit of a fraud really. I have sorted more clothes, bedrooms, clutter since I started this treatment, its mad! Anyone else out there enjoying it? Ok if I should be carted off, let me know. Thanks, Garcon
6 comments
Read the post
posted by Kar
09 June 2010

Friday D-Day

Last reply: 08 July 2010 00:14
Hi Everyone, My story is a little long so bear with me and apologies in advance for the waffle..... Mid May I woke with a terrible pain in my left boob. I examined myself but didn't feel anything. The pain continued so I kept checking. A few days later I found a small lump in the shower. As my period was due I thought I'd wait and see if it went after it finished. Being the consummate worrier I kept checking and 2 days later I found a lump in my arm pit. I went to my GP that same morning and she said she didn't think I had anything to worry about but she would refer me for triple assessment to make sure. She tried to get me an appointment for the clinic but couldn't get through so she decided to make an appointment with a surgeon instead. I saw the Surgeon in St Vincents on 27th May. He examined both lumps and told me I had nothing to worry about. He said (I quote) "the lymph node is clinically benign, everyone is entitled to an enlarged lymph node, and the breast lump is nothing to be concerned about". I asked if it was a cyst and he said probably.....!!He said he'd send me for an ultrasound for "CLOSURE". I was out of the office in less than 5 minutes - probably 3. I had the ultra sound on Thursday (02/06) and it all went desperately wrong. The radiologist took one look at the breast lump and said it didn't look like a cyst. The lump is solid and has jagged edges and the lymph node is also solid. When I asked for her professional opinion she said the breast lump concerned her but the fact I had two suspicious lumps she was very concerned. She did a biopsy of both (ouch). I was due to see the surgeon this morning but the results weren't back - bank holiday weekend. I have a new appointment for Friday at 1.15. I have a mammogram before hand at 12. I'm so confused, terrified, angry etc I don't know what to think. How could the surgeon have got it so wrong? He works with his hands and feels lumps all day. Has anyone had a similar experience? If the results are positive should I change surgeon or get a second opinion? I'm 36, single with no history of breast cancer in my family. My Father died from lung cancer 3 years ago (heavy smoker). Many thanks for reading this and again, apologies for the waffle. Kar
28 comments
Read the post
© Irish Cancer Society 1999-2024 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.