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posted by shirls
29 January 2013

Juicing & Wheatgrass

Last reply: 27 April 2014 21:18
Hi Girls, Now that chemo & radiotherapy are over I'm beginning to look at my diet/exercise etc. Have any of you tried juicing and growing wheatgrass ? What diet changes have any of you made? Has anyone attended Bernadette Bohan's 3 day wellness programme in Cork? Appreciate any advice/tips which you can give. Shirls
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posted by youngk
31 January 2013

Why didn't I insist on seeing the consultant!

Last reply: 01 February 2013 20:15
I need to vent. I have completed all my cancer treatment, which is great, but I naively assumed the road to re-construction would follow. I feel I cannot get my life on track until all surgery is complete. I understood there would be a waiting list but at the moment I can't seem to even get on the list! The first obstacle is that I need a referal to Beaumont as I need a diep (my back is too thin for LD) and they don't do Diep in Limerick. I assumed I would get my referal last October when I attended the breast clinic for the first time after Chemo was completed. My consultant was on maternity leave and the locum refused to do the referal in her absence - I still don't understand why as it was already in my notes that I needed Diep. I reluctantly accepted an appointment to see her in January at her first recon clinic. That was the 15th, but instead of the consultant I saw the registrar, I did ask if the consultant was in, she was, (I should have insisted on seeing her) but the registrar went through all my details and promised that my referal would be sent by the end of the week. I have rung a couple of times to see if that happened and found out this morning that the referal was not done yet and the secretary wants to speak with the consultant before she does anything. It just seems so unfair I have already waited 3 1/2 months since I thought I'd get my referal (and it's 8 months since I finished RT).
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posted by Neadi
01 February 2013

Two down, four to go!!!!

Last reply: 04 February 2013 08:38
Chemo two has been, and it was nowhere near as nerve wracking as number 1. I got to chat loads to Dee today and met Darina, so all in all a good day! I'm on stronger anti sickness drugs this time and although may not stop me feeling totally icky, may help the cause!!!! 2 down!
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posted by Amaryllis
01 February 2013

Suddenly developing lymphodoema

Last reply: 20 March 2013 18:35
Hi Girls Had the lymph glands removed from my right arm at the same time as my mastectomy last October. After the surgery I did all the physio and exercixes and abided by the recommended do's and don'ts etc and have been absolutely fine until last week ...but this week my arm is beginning to swell and its feeling heavy and tight... .. Did anyone else develop lymphodoema a while after surgery - is it possible to get rid of the swelling again??? Any tips? Liz
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posted by Chardoney
01 February 2013

Constant worrying

Last reply: 02 February 2013 11:49
Hi all, This is my first post even though I have been following this forum for the last year and half ! My journey started in 2011 but even now it still feels like yesterday . I have finished all my treatment , have gone back to work and am trying to get on with my life but I am so paranoid and so worried about recurrence . I have been suffering with back and leg pain since before Christmas . I had a bone scan in Nov which was clear but it's constantly on my mind that the cancer is back now in my bones or something . I tested positive for the brca1 gene a few months ago so I think that has me feeling like a ticking time bomb now to be honest. Think I'm just having a bad day today . Glass of wine should cheer me up
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posted by Ania
01 February 2013

Radiation after Recon/ expanders

Last reply: 02 February 2013 16:41
Hi all just wondering if anyone out there had rads after recon. All the doctors are telling me is that 1)there will be some changes to your left breast, and it will look different to the other one [not great when all you want is a matching pair] 2)there will be a level of damage but it depends on the individual. 3) capsular contraction, its not a rare chance but they dont know to what degree of damage to expect. They won't given my a gerneral idea of what to expect and I tend to panic if I don't know what's going to happen. And they know what will happen ok general terms, they have seen this before!!! Does anyone even know where I could get information about this? I would nearly skip having radiation altogether, they are shooting at thing that they don't know are there. They could just be killing good cells, and destroying my skin in the process, and my recon. I want to get all the treatment thats out there, but some of it I find hard to see the point. The recon is so important, it's for the rest of your life. Maybe I should get another plastics opinion???
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posted by WicklowLady
04 February 2013

Margins done .... I hope

Last reply: 09 February 2013 17:48
Hi girls op over and Jane visited me after and said it all went well. She will see me next Monday but she's very happy even thinks what she to away may be clear (confusing or what?) she's making an appointment to see consultant dr mcveigh about my radiotherapy and I'll start in 6 weeks. It's all happening here. I'm relaxing in the elm ward and the nurses are wonderful. Going home tomorrow. Xxxx
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posted by WicklowLady
04 February 2013

Deefed win the make over yippee

Last reply: 05 February 2013 12:06
Deefed won the make over isn't that brilliant can't wait to see the photos love good news xxx
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posted by Superwhy
06 February 2013

Sorry new to this

Last reply: 23 February 2013 16:23
i was in st vincent hospital yesterday getting a mammogram , a biopsy and an ultrasound. i also put clips into my breast to do a second mammogram I found a large lump in my left breast and then the dr Evoy said he found a lump in my lymph nodes. the doctors didnt really tell me anything yesterday only that they were concerned. I didnt sleep last night and just keep thinking the worst case senseio. I am 37 with 3 young kids
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posted by Neadi
07 February 2013

Meet up??? Great idea!!!!

Last reply: 09 February 2013 17:11
Just saw on the threads here that somebody suggested a meet up?? Why not?? We've shared so much and gotten so much support that I think a meet up would be great!!!! Any ideas or suggestions?? We could do something during the Warmer months and when some of us are a bit further along in our treatment. A lunch or a dinner nothing too much! What do we think???
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