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posted by Cathyhyn
20 September 2013

Secondary breast cancer

Last reply: 27 August 2015 09:56
This is my first time on forum. Diagnosed in feb with metastic breast cancer . Very scared . Chemo finished . On hormones now . Any one out there with similar. Had first diagnosis twelve years ago. Full right sided mastectomy Plus chemo. Tamoxofen for five years. Thought I was home and dry.
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posted by anriocht
02 January 2013

Baldness and young children

Last reply: 27 August 2015 09:47
Hi all I have two daughters, 14 and 4. My 14 year old knows I have cancer, but my four year old doesn't. I explained that my shoulder was sore when I had my mastectomy, as I am still not able to lift her. Baldness is looming at the end of this month, as I start chemo next week. I just wondered how those of you with smaller children, explained your baldness to them. I don't think I want her to know that I am so sick that my hair fell out, but on the other hand I want to be as honest as I can be with her as well. I would be grateful to hear what worked for some of you. Many thanks, Mxx
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posted by happy39
28 August 2014

Weight Gain On Tamoxofen

Last reply: 25 August 2015 17:13
Hi everyone I have being on Tamoxifen for 4 years. My weight went from 8 and a half stone to 11 stone when I started taking tamoxifen. I managed to get down to 10 stone by exercising and eating sensibly but cannot shift anymore weight no matter what I do. I even did the 2 day diet for nearly a year but no joy. I never had to watch my weight I was always thin and I had a very big appetite. Last year my oncologist told me I would be on tamoxifen for 10 years and not 5 years as was originally prescribed; because of the new study that found 10 years is better. Therefore I was hoping next year I would lose the weight gained but seen as I have to stay on tamoxifen I would love to know if anyone managed to lose weight and how! I am so grateful to have tamoxifen - don't get me wrong but I would like to be 9 stone for health reasons; as I do agree that weight causes certain illnesses.
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posted by Lizton
22 August 2015

Pressure in Left boob

Last reply: 25 August 2015 15:02
Just looking for some advice please. I was diagnosed with DCIS in my right breast last May. I had two surgeries some lymph nodes removed which were clear thank goodness. Followed by radiotherapy. My most recent mammogram was in March. I also had a check up by my surgeon in July. But I am now experiencing pressure, not pain in the same area where the DCIS was but on the other breast. I am wondering if my mind is working overtime and if I am worrying for nothing. I didn't notice any pressure or soreness before finding the lump on the right side.
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posted by snake-lady
09 November 2008

new thread for anyone who has lost a loved one

Last reply: 25 August 2015 08:29
i thought id start a new thread here for anyone who has lost a loved one. once they are gone the family tend to be forgotten to get on with things and [for many of us me included] we are not ready to forget the person who passed away. so i thought it would be a place to write down how we feel or just to talk to others in the same situation. i really hope anyone in this position will take advantage of this thread and maybe help someone else as well................ anyway, i will start the thread by saying, i lost my dad to cancer of the oesophagus on 25 sept 2008. i still cry a lot as he and i were very close. he was the best dad a girl could wish for [in my eyes] and he died not knowing he was going to be a great grandad. i feel cheated that he was taken from me the way he was, he was 73 and i always expected him to die of old age and without pain and suffering. i just celebrated my 40th birthday yesterday and it was awful that he wasnt here, but he couldnt hold on and i wouldnt have wanted him to try. anyway that about sums up my story so please feel free to put your stories here and hopefully there will be a little comfort in knowing there are others like you out there. thankyou all for reading this and [hopefully] putting your own stories here too. trisha.
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posted by Irish Cancer Society
24 August 2015

Community Guidelines

The Irish Cancer Societyonline community is a welcoming and supportive place where people affected by cancer and those close to them can find information and support, ask questions and share information or personal experiences of their cancer. To help keep this community an inclusive and safe place for active and supportive discussion, we ask that all of our users follow these simple guidelines. Our community forum guidelines  Who can join the discussion? Who can register? The forum is aimed at anyone who is affected by cancer. However, other people may register too, as long as your posts remain relevant to the issues. For the protection and safety of children, this forum does not support members under the age of 18. Using the forum We ask users to be kind and respectful to others Be supportive and kind to each other - Many people sharing on the forum are going through difficult times. A few words of kindness can be very helpful and supportive. Please focus on showing support and always be sympathetic to other members’ feelings.  Respect and be sensitive to the opinions of others - A wide range of people with very different experiences may use the forum. Differences and debate may occasionally arise. Please make your points politely and respectfully and you can agree to disagree if you have differing opinions.  Give each other the benefit of the doubt-It can be very easy to misinterpret other people’s comments, especially when read or written in haste. Sarcasm and humour are particularly easy to misunderstand.  Don't post any content that treats anyone unfairly-On the grounds of their sex, sexual orientation, race, colour, nationality, ethnic or national origin, religion or philosophical belief, disability, gender identity/reassignment, marital status, family circumstance or age; or anything that is threatening, obscene or in any way offensive. 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No soliciting The Irish Cancer Society Online Community is primarily for people affected by cancer to support each other – not for advertising products or services, finding a source to interview for a news story, or for recruiting research subjects to take a survey. It is also not intended for advertising fundraising or soliciting donations. These types of posts will be deleted. For fundraisers, please contact us on social media or our fundraising team at fundraising@irishcancer.ie. No commercial solicitation - this includes promoting web addresses, products or services and medical institutions for commercial gain. These will be treated as spam. Keep it relevant and honest. Transparency Please do not create multiple accounts or pretend to be someone else. Tell the truth about your experience and intentions- Make sure you always post from the same account so that others can get to know you.  Language Write your posts in English This is because we are not able to moderate posts in other languages at present. It is also important to make sure that all members can understand each other’s posts and support each other. No medical advice Sharing experiences is at the heart of the forum - so please be careful not to give medical advice.  Information provided via our community is not intended to replace or be a substitute for the advice and services of professional experts, but rather to provide signposts towards further information and support.  Complementary therapies and alternative therapies Complementary therapy is a type of treatment used alongside conventional treatments to improve quality of life. Complementary therapies do not influence the cancer itself but some can help to alleviate symptoms and the side effects of conventional treatments. When discussing complementary therapies, you may; Advocate the use of complementary therapies alongside conventional treatment; Make evidence-based claims about the effectiveness of complementary therapies in improving quality of life  When discussing complementary therapies we ask you not to: Advocate using any complementary therapy as an alternative to conventional treatment;  Claim that any complementary therapy can cure cancer, reduce the size of tumours or in any way treat cancer;  Advise anyone to ignore medical experts’ advice on the use of any treatment whatsoever;  Advertise any complementary therapy for commercial gain.  Alternative therapy Alternative therapy tries to treat cancer using unconventional methods instead of usual medical treatment. When discussing alternative therapies, you may: Provide anecdotal accounts about alternative therapy use, as long as you do not make claims about their effects. When discussing alternative therapies, we ask you not to: Advocate the use of any alternative therapy;  Promote any alternative therapy.  Claim that any alternative therapy can cure cancer, reduce the size of tumours or in any way treat cancer;  Advise anyone to ignore medical experts’ advice on the use of any treatment whatsoever. Suicide and self-harm All mentions of intention to commit suicide, assisted suicide or self-harm will be removed from the site. Expressions of thoughts and feelings may arise for some people from time to time about these issues which can be expressed. It is not your responsibility as another poster to offer counselling. If you are worried about another member please refer the member to our Support Line on 1 800 200 700 or The Samaritans on 1850 60 90 90. We take these messages very seriously and will offer members guidance to appropriate support and advice. Moderation The team moderating the forum consists of Irish Cancer Society staff and our aim is to keep the forum safe, legal and supportive. We do not approve every post before it goes live. This is why we need forum users to take responsibility for their own postings, and to report inappropriate posts. When you contact us, you should expect a response within 3-5 days (it can be sooner). If you report a post, we will usually let you know what action we have taken.  If you breach our guidelines, you will usually get a warning, or be placed under moderation (this means all your posts need to be approved by a moderator before going live). If you continue to breach the guidelines, we will ban you permanently from the site. We issue permanent bans only as a last resort to protect our forum community. The role of the Irish Cancer Society moderators is to help keep the forum safe and constructive for the benefit of all members. In order to do this we may if the need arises: Edit a post-We will usually let you know when we do this and why. It is most often to delete swearing or personal information. Move a post or thread - to an area of the forum where it is more appropriate. Delete a post-We will usually let you know when we do this and why. It is usually because of a breach of our guidelines. • We may contact you - by private message or email to make suggestions, or issue a warning. Place users back in moderation (so all posts must be approved before going live). Ban users Close a thread - If a healthy discussion breaks down into an exchange of attacks and insults, or becomes too heated, we might close a thread to end the discussion and encourage people to move on. Post - Occasionally we will post a message to users of the online community, for example when looking for feedback on our service.  Cancer Information Service of the Irish Cancer Society The Cancer Information Service of the Irish Cancer Society is dedicated to providing high quality, expertly developed information about cancer. You can find cancer information on Cancer.ie or speak to a specialist cancer nurse on our Support Line freephone 1800 200 700. The Support Line is open Monday to Friday 9am-5pm. You can also email us on supportline@irishcancer.ie. You can also visit our Daffodil Centres, located in thirteen hospitals nationwide. The centres are staffed by cancer nurses and trained volunteers who provide confidential advice, support and information to anyone affected by cancer.  Please remember views expressed in this community are purely the views of the members and as such don't constitute professional recommendations or advice or the opinions of the Irish Cancer Society. We have the right to update and change our Community guidelines and Terms and Conditions at any time. If you have any questions about these guidelines, or anything on the site at all, drop us an email at webservices@irishcancer.ie and we’ll do all we can to help.
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posted by wisdomofalifetime
13 February 2009

To my wife fighting Cancer on Valentines Day

Last reply: 21 August 2015 12:52
All for you Take my strength, lean on me. Use it to be as strong, as your fight needs to be. Take my smile, that I force upon my face. Made helpless by the fact, I have no way to take your place. Take my sense of humor, take as much as you can. Laughing at what life throws at you, is really your best plan. Lastly, take my love for you, take extra, and put it in your heart on a shelf. For the days that lie ahead when you can't gather the courage to love yourself. I love you.
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posted by wexlass
02 January 2012

Fish Oils and Radiotherapy

If anyone is awaiting Radiotherapy... I suggest you start taking MOR EPA (Omega 3) fish oils. If you eat oily fish at least 3-4 times a week, you won't need to take them as a supplement, you should be getting enough. They really helped me through my Radiotherapy as I didn't experience the tiredness nor the break down of my skin as was suggested might happen. I went on them and Vitamin D3 at end of September and started Radiotherapy on Nov 14th. I am studying Nutritional Therapy and am 100% convinced that taking them helped me to have 33 rather "uneventful" radiotherapy sessions. Best of luck to you all on your journeys. Happy New Year filled with health, happiness and positivity.
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posted by jen
20 August 2008

help...

Last reply: 27 August 2012 23:29
i need advice, i dont know how to cope with my friends diagnosis, hes 22 with lung cancer, and wont tell anyone not his family even, he confided in me. i dont want to betray his trust but hes not coping hes trying to drink his troubles away. he wont talk about it, or tell me any real information without knowing anything i cant find out anything, i dont know his prognosis, how sick hes going to get, it its treatable, nothing.. im afraid the worst will happen and id have known and not told his family i cant cope with my grief and his, that sounds selfish but its true. please tell me what i should do...
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posted by LindyLu
06 August 2010

Just discovered a friend from here passed

Last reply: 09 August 2010 09:46
Hi Girls Am a lurker here and post infrequently however I did use this board a little when I was first diagnosed in Dec08. I met (virtually and in real life) two wonderful ladies soon after my diagnosis - we were all being treated in Beaumont. One girl, Linda (she used Linda on this board) had been diagnosed in 2006 but reoccured in Nov 2008 in the nodes and shortly afterwards was diagnosed with lung mets. I kept in intermittant contact with her during my treatment but realised yesterday that I had not heard from her in months. I decided to google her full name and a sport I knew she was passionate about. What popped up in the results shocked me. It was a reference to a memorial service from the sports club she was a member of. She had passed last Dec 2009. She would have been about 36. I cannot believe she is gone and I am so sad for her husband and family. When I met her in real life she gave be some head scarves and other stuff to help me on my chemo journey. I guess we all have to live and enjoy life and hug those close to us even tighter today! LindyLu
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