Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by LindyLu
05 June 2014

SOFT Trial - early results

Last reply: 8 years ago
Ladies, Some of you might have seen on my siggy that I am a participant in a trial - the SOFT trial - supression of ovarian function. Results of the trial were presented at ASCO during the week:- http://www.cancer.gov/newscenter/newsfr ... OFTandTEXT http://www.nejm.org/doi/full/10.1056/NE ... #t=article I happened to be randonised into the one that had the best results
4 comments
Read the post
posted by molloy
07 June 2014

Sex after Cervical Cancer

Last reply: 8 years ago
I would like to have views on a very pointed question, without value judgement please. I am male and have just had unprotected sex for the first time with a woman who has not been my normal sexual partner. It was protected sex, but the condom broke, unnoticed, but Im guessing about five minutes before we finished. This woman then advised me that she had had cervical cancer some years ago and described a procedure whereby it was burnt off. She also advised that she had done a screening last year which showed that she does not still have the HPV virus. My concern is for my normal girlfriend who expects to have unprotected sex with me. Am I putting her at risk if I have unprotected sex with her. I am circumcised. What I have read seems unclear. I read that the PAP smear does not detect different HPV types. I read that curing cervical cancer does not cure HPV. I read that HPV causes almost all cervical cancers. I read that as a male I cant get tested for HPV. I read that even condoms don't fully protect against HPV. It kinda reads as if once you know you have cervical cancer causing HPV, you shouldn't have sex any more ? Informed thoughts please.
2 comments
Read the post
posted by Babs
07 June 2014

skin graft lower R leg for a melanoma mole

Last reply: 8 years ago
Hi i am in the 2nd week of recovery for a skin graft on my lower R leg, also had a sentinel node biopsy & the donor site was my upper R leg, it was discovered at my 1st dressing change that the graft took 80%, apparently anything above 70% is considered good as its rare to get 100% take, Is this true? The RGN that is coming out to do my dressings at home twice a week was concerned that the graft didn't look anymore improved since she had changed the dressing 3 days before, she freely admits she is not very familiar with such an extensive graft site & was concerned that there was a lot of exudate/gunk coming from around the graft site, there is no signs of infection & it appears to be normal redness, i feel an improvement, i can put my foot to the floor without too much discomfort & ive reduced the pain meds. Should i be worried the RGN wanted me to see my GP, but as the GP's secretary said she reckons the GP will just refer me back to Beaumont were it was done !! I live in Meath, Beaumont is a nightmare, i got no aftercare advice or support from them, they didn't even supply my with crutches but yet i was to have complete bed rest??? How was i to get home or to the bathroom ??? I won't be seeing the consultant that did the surgery till Mon 16th, any advice welcome,any complimentary therapies or supplements to speed up the healing process ???? Any help or advice would be greatly appreciated, feeling very let down by the Health system here !!!!
1 comment
Read the post
posted by Newtothis
08 June 2014

Planning ct scan - what to expect?

Last reply: 8 years ago
Hi all, I've my planning ct scan for rads tomorrow. I'm just wondering what I should expect and how long I'll be in for? Will I meet with radiation oncologist or someone from the rads team or is it just that I'm in for the scan and then head home? Trying to decide if I'll bring hubbie with me, he'd have to take the morning off work and there's no point if it's just a scan. I don't know how many sessions I'm due to have, will I find out tomorrow or later? Tia! Pamela
2 comments
Read the post
posted by Active
09 June 2014

seven months after surgery

Last reply: 8 years ago
Hi Everyone, Have not been in touch for couple of months.Great to see so many familiar names still posting.I have appointment with oncologist end of the week, my first since I started on Letrozole. Apart from stiffness in both hands every morning I have no great problems with it. Night sweats have lessened, especially since I realised they inevitably follow after a few drinks. The combination of hangover, night sweats and sleeplessness is a great motivator to avoid alcohol. I still have not got appointment to see surgeon again. Neither have I got appointment for the follow up liver scan I was told I would need 6 months after surgery as something showed up when I was scanned while in hospital. Have other people also had these delays? Appointments come fast and furious while undergoing treatment so a delay now is a bit unexpected. Active.
1 comment
Read the post
posted by Anng1
11 June 2014

Holiday between chemo and mastectomy????

Last reply: 8 years ago
Hi all just wondered if anybody has had a holiday in the window between chemo and surgery. My onc and breast care nurse said yes no problem. Just wondering am I biting off more than I can chew. We had a holiday booked for the end of June to Canada , as my 22 year old son ( who we miss dearly) moved there in December. Aer Lingus do not give refunds, so we stand to lose €2k in flights that wasn't easy come by. But can rebook up until November, which was when we booked initially. This will cost around €600 for my husband myself and 15 year old son. I finish weekly taxol at the end of August ( all going to plan). Will I be up to it? I don't intend to be doing a lot of site seeing or walking around too much we will be staying central, so everybody else can do this. And I'm quite happy to stay in and read etc. and go out for dinner etc. I will have a break of about 4 weeks from taxol. Sorry it's so long winded but would love to hear anybody else's experiences before committing to this. Don't want to be throwing more money away if possible. Thank you in advance Ann
7 comments
Read the post
posted by Neidi
11 June 2014

triple negative breast cancer

Last reply: 8 years ago
Hi everyone This is my first time on the message board so hope Im doing this right. Found out I had Triple Negative BC in April this year. I found my lump completely by accident and even though I have had my surgery and am now facing chemo and radiation I think Im still in shock. I guess I just really wanted to speak to somebody who has been through this type of BC. It seems to be a less common form and anything I have read about it has frightened the bejaysus out of me Thank You
12 comments
Read the post
posted by AMothersSon
12 June 2014

Im new here...Need some advice?

Last reply: 8 years ago
My mom was diagnosed 6 weeks ago with breast cancer, and she had radiotherapy, that worked pretty well. She then had fluid in her lungs that needed draining. They drained that, but she then got a chest infection, which manifested into pneumonia. She's now on a ventilator and....I dunno, a shot in the dark, anyone else had this? Or any advice on the topic? Thanks
2 comments
Read the post
posted by Irishgirl22
13 June 2014

First AC done, finding it tough

Last reply: 8 years ago
Had my first AC Wednesday. It all hit me that eve with a bang. Today tho it's twice as bad. Wasn't expecting it till a few days after. Zero energy to move but yet wide awake from steroids. Can't concentrate on anything, not the tele, a book. Feel like I'm going mad. Any advice please x
5 comments
Read the post
posted by lemrac
20 June 2014

3rd treatment

Last reply: 8 years ago
Just found out today that this chemo hasn't worked . New chemo in tablet form starting next wed. Afraid of running out of treatment options.
6 comments
Read the post
© Irish Cancer Society 1999-2022 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.