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posted by Josephine
20 November 2012

St. Luke's lodge

Last reply: 09 December 2012 19:35
Hi all Just wondering if anyone stayed in the lodge in st Luke's? It's being offered to me as I have to travel a long distance everyday for radiotherapy which is starting tomorrow in st. james hosp. On one hand, I'd like to save myself the hassle of travelling and conserve some energy but on the other hand I'm worried about being away from the kids. I'm also thinking would it make the days very long and lonely. Has anyone stayed there? Any thoughts?
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posted by Neadi
21 November 2012

still here

Last reply: 23 November 2012 00:07
hi everyone. I hope everyone is well and best of luck with rads chemo etc.... I'm still here:-( drains are still pulling too much fluid , but i may get home today.... So five days on, still adjusting to the newness of it all, and just really lookingforward to getting home.... just very afraid of the coming chemo - wish i didnt have to do it
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posted by gec360
21 November 2012

Modified Citrus Pectin

Last reply: 02 April 2015 11:50
Hi There, Was just wondering if anyone is using Modified Citrus Pectin as a supplement to prostrate cancer medication.My father was diagnosed back in feb 2011 and I have read some interesting articles on its use (Life Extension Magazine March 2009 ).Of course,we will say it to our doctor tomorrow before any decision is made but was just wondering if there are patients using this supplement already, and how they managed to obtain it in Ireland as seems to be only available in USA and Amazon also will not ship it to ireland. Thanking you for any help.
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posted by wilmaone
21 November 2012

clink clink penny has dropped!!!

Last reply: 28 November 2012 22:05
Hi all Well its only taken a year but the penny has dropped well the whole money jar actually!!!I HAD CANCER.Arrrrrgggh!!i finished herceptin last thursday and what a memorable one it was 6 attempts to get vein.Then woke up saturday with cystitus which is now full blown kidney infection.Thought id be sooo happy to be finished but its the strangest feeling.Dont take me wrong i am happy just dont know if im coming or going.I have follow up on monday i assume to check all is well and for the last two weeks or so ive had pain and dull ache in armpit on and off ,dont know if its head playing tricks,scars or the unmentionable!!(had this before diagnoses too)Just have to mention it on monday although i dont want too.This cancer crap is really head wrecking. Hope your all getting on ok xx
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posted by Neadi
25 November 2012

Pathology report

Last reply: 28 November 2012 14:39
Hi gang! Tomorrow we go up to find out what the surgeon and his team found as a result of my mastectomy and auxiliary clearance on nov 15th. Does this vary greatly from the original diagnosis??? Am so afraid that there are still some nasty surprises waiting fir us still on the journey.... My nurse tells me I'm "cancer free" but still won't or can't believe it until I hear it from mr surgeon!! Also my drain is still pulling loads of fluid from my armpit.....it's always very slow in the morning, but when I get up and move around it drains and drains......was hoping to get rid tomorrow but don't think it's likely now......
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posted by Neadi
30 November 2012

Hurdle 1

Last reply: 30 November 2012 16:48
Yay! I can now say that I am according to the surgeon : cancer free!!!! Hurdle 2 and hurdle 3 await me and I have to meet oncology in 2 weeks time. But it's a relief to finally hear that it's gone and everything else they give me is to make sure it never comes back!!!! Now if I could get rid of the drain, life would be excellent!!!!
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posted by Neadi
01 December 2012

Pain after mastectomy

Last reply: 02 December 2012 18:57
Hi there!! Just wondering if this is "normal"??? I'm two weeks post mastectomy and things according to medics are going fine. However, the numbness is wearing off, still have drain, but I keep getting pains in my arm and at the top of my "breast". I have fluid build up at the top also which they won't remove for some reason, but just wondering is this was normal? I was flying along until Thursday and just lying down is uncomfortable and a pain in the ass!!! Hmmmmm......
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posted by shirls
01 December 2012

Awful Nails

Last reply: 02 December 2012 20:08
Hi Ladies, A minor thing really but just wanted to check whether any of you ladies had problems with your hand nails after chemo. I have developed awful looking red/purpley marks on all my nails. Sort of look like a burn. They are taking up 3/4 of each nail. I was at a beauty salon today but the best advice the poor girl could give was to cover them with a dark polish ! Is there anything I can use to help get rid of these marks? Shirls
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posted by Neadi
04 December 2012

Boredom.....

Last reply: 13 December 2012 22:03
Hi guys Reality has hit 18 days post surgery. Pain is subsiding and for everyone else the cancer is gone and life is returning to normal........ No way!!! I suppose now surgery is out of the way the next hurdle is looming bright and scary on the horizon and I'm not looking forward to it one little iota! (so so terrified of the chemo that I'm now waking up in the middle of the night worrying about it.) Also you gals who have been there, how on earth do you fill the days??? If the cancer doesn't nobble me, the sheer boredom will!! I feel so isolated from my friends up in Dublin and all I want to do us get up and go to work....(god I NEVER thought I'd be typing that!!) Time on my hands is just giving me far too much time to think- think of scary chemo, think of the life I so desperately want back again, think of the horrible drain i STILL have attached to ne (i must hold the record fir the longest drain hold!!)think will I ever be completely cured of this horrible disease???? Sorry for moaning guys.....but today I really think I'm going to go off my head if I have to look at another soap, magazine, dr Phil, sky news showing the same stuff over and over again. I go out for walks, I phone friends but I just long for the carefree independent carefree pre cancer life I once had - that all my friends have.....it just sucks. Bad day I guess
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posted by Fighter
10 December 2012

Tamoxifen and periods

Last reply: 24 December 2012 08:46
I've been on Tamoxifen since August. I am still getting regular periods but despite the oncologist telling me that my periods should diminish over time the opposite is happening. They are really heavy and I was totally wiped out this weekend because of it. Anyone else experiencing this? I'm 47.
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