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posted by Freesia71
07 September 2021

Metastatic Breast Cancer

Last reply: 13 September 2021 16:30
Hi Everyone. Wanted to share my story so far to see if anyone else is in the same position as me. I am 49 and in May was initially diagnosed with breast cancer. I was scheduled for surgery and after reporting a pain/lump in my neck got referred for a CT scan. The CT showed lesions in my liver so the unfortunate diagnosis of MBC came. I was on Ibrance, zoladex and letrozole for two months. Due to high liver enzymes I've been taken off the Ibrance. I am waiting to see the oncologist to see what's next. I went back to work and want to stay in work. I am finding the whole thing as nothing short of torture as it's on my mind 24/7. I was ok whilst I was on the treatment and I thought that everything was going well. How is anyone else coping with the diagnosis of MBC?
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posted by brightonblue
06 September 2021

Cancer in bone after allclear

Last reply: 10 September 2021 07:52
Hi, My mam (69) has contained cancer in the right humerus 12 years after breast cancer in the left breast & lymph nodes. All clear on the breast cancer some years back. This new cancer was Discovered after a pathological fracture to the humerus bone in her arm- without a fall- (a titanium rod and clips in arm required 9 weeks after fracture ). Does anyone have any experience of this? A metastses/sis after so much time in a ‘long bone’? Many thanks, I know my query is a bit specific but I am at very much at sea trying to find comparable or close to relevant experiences.
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posted by brightonblue
09 September 2021

Counselling

Last reply: 09 September 2021 21:42
Hello, Do you have counselling for carers of people with cancer or do you know of any free services providing same? Many thanks.
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posted by treasa77
04 September 2021

Breast Cancer. Double Massectomy.

Last reply: 09 September 2021 14:33
Hi. Just found out two days ago that there were a few very small lumps in one breast. It was only picked up on mri. Mammogram didn't pick up. I have a strong family history of breast cancer so they're recommending removing the full breast. The other breast is totally healthy but their advice is to take that too. I agreed but the reality definitely hasn't sunk in. I'm back in next week to discuss implants etc. Just wondering if anyone was in the same boat or had any advice.
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posted by hope47
03 September 2021

Tamoxifen - how was it for you

Last reply: 07 September 2021 20:14
Hi, I was diagnosed with ER+ recently, had surgery but don’t require radiation or chemo. I’m beginning tamoxifen very soon and interested to know how people have been on it. I’m premenopausal, and generally very fit and healthy. Thanks 🙏🏻 😊
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posted by BerM
24 August 2021

Mastectomy

Last reply: 03 September 2021 20:52
Hi. I had a mastectomy a week ago and cannot bring myself to look at my chest area. I have coped with 6 months of chemo, but find this part very difficult. Any advice?
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posted by Mrs_H
01 September 2021

Waiting Times

Last reply: 02 September 2021 13:39
I had a biopsy on July 20th, which showed grade 2, Her2 positive cancer, stage 2. Since then - nothing has happened... I am waiting. Is that normal for COVID times?
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posted by Cancer Nurse
02 September 2021

Childhood, Adolecent, Young Adult Cancers Survivorship Conference – 11th September 2021.

The Irish Cancer Society is proudly supporting the virtual Childhood, Adolescent, Young Adult Cancers Survivorship Conference this year.  There will be a virtual stand available at this conference if you wish to speak with a nurse from our support line for any information about the services and supports we provide. Information about the conference, including the programme and registration can be found by clicking this link here. We know that a cancer diagnosis in a younger person can have a devastating impact on those affected, their families and communities.  Some services and supports that the Irish Cancer Society offer are: Cancer Information and advice. Through our support line, the Irish Cancer Society children’s nurse provides advice, support and information to parents.  We can be contacted by phoning 1800 200 700 or by emailing supportline@irishcancer.ie. There is also a range of information and publications available on our website. Counselling. We provide free counselling services and play therapy funded through our network of affiliated community cancer support centres. Parent Peer-to-Peer Support. In partnership with CanCare4Living, CanTeen Ireland, and the Childhood Cancer Foundation, we run Ireland’s parent peer support group for parents of children and teenagers with cancer.  Financial Assistance. The Children’s Fund and Travel2Care schemes gives direct financial support to any family who experience a childhood cancer diagnosis. Childhood Cancer Fertility Project. Providing services and developing new methods to preserve fertility for children and young adults after childhood cancer, further information can be found here. Night Nursing. We provide free in-home night nursing care for children and young adults at end-of-life. As part of our strategy 2020 – 2025 we are working to significantly enhance and expand the supports and services which we provide for children and young adults affected by cancer.  If you would like to speak with a cancer nurse about any of these services or for any support or advice, our Support line is available by phone on 1800 200 700 or emailing supportline@irishcancer.ie or alternatively you can drop into one of our Daffodil centres.
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posted by claudia merfu
27 August 2021

Tmoxifen

Last reply: 27 August 2021 14:08
Hi, i started tamoxifen on July 4th, so I'm almost 2 month into it, i had my last period on the 7th of August and today it seemed like i got it again, or at least I'm hoping is my period and not just a random bleeding. I was diagnosed with stage 1a bc in April, had a lumpectomy and slnb which were clear.i have seen all my doctor's in the last couple of month and it seemed that everything was fine.my gynecologist suggested a total hysterectomy with dual oophorectomy, which i am considering because he said the bleedings will happen.i guess my question is if this is something that i need to address right away because the tamoxifen is already doing damages or should I wait because my periods will be irregular for a while?thank you
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posted by Iamstrong
12 July 2021

Mirena Coil post breast cancer diagnosis

Last reply: 25 August 2021 18:15
Hello, I was diagnosed with hormone positive breast cancer in Sept of 2020. I have since gone on to have a mastectomy and did 4 rounds of TC Chemo. Throughout all my treatment and even now I have been told that I can leave the mirena coil in - it will not affect my body causing more cancer. Speaking to other women however I note they have been advised to have it removed asap. Which is the correct course of action as now that I am back to myself again I can't go through this ever again? Thank you.
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