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posted by Twinkle3
13 October 2021

Current Wait Times for Symptomatic Clinic

Last reply: 16 November 2021 20:29
I am just wondering what everyone's experience has been regarding waiting times to be seen at the Symptomatic Clinic? I discovered a lump on my breast about two weeks ago. I was seen by my GP a few days later and she agreed it needed to be assessed and sent a referral to the Clinic in Galway. I am reading about wait times of up to 8 weeks given COVID backlogs. Does anyone know if I am likely to be waiting that long? I have a very strong family history of aggressive breast cancer unfortunately so am absolutely worried sick. I also have private health insurance but not sure if this is something I can use to get an initial assessment or where? Any help would be really appreciated.
6 comments
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posted by Rolexwatch1
28 October 2021

Letrozole

Last reply: 15 November 2021 16:44
Hi I have just finished Tamoxifen after 5yrs, and started on letrozole about 6wks ago. I have not had a period in over 6yrs since chemo, I had blood tests which showed I’m in menopause but this wk I have had heavy bleeding (I presume a period) has anyone else had this experience
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posted by MIKEWALSH
10 November 2021

Mouth cancer

Hello Folks, I had 35 sessions of Radiation and 6 Chemo for cancer in my 'lower back tongue leading to tonsil' which I finished in early October 2021. {last month}. I've lost 3 stone ( i.e40 pounds or 18 kg). I can only take Fortisip - liquid food and my taste has changed terribly. I feel that the mucus membrane is gone from my mouth and throat and so it's hard to deal with any food. I find it to be a lonely place as there is not much follow up from my consulting team which is because they presumably are waiting for the treatment to do its job for the first months. I'd love to hear from other people who have a similar experience to mine and if they have any advice regarding my worries about taste and eating and when I can expect results of treatment and anything else they might feel I should know. Kind regards MikeWalsh
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posted by davidbirchill
01 November 2021

Blood Cancer and Booster Vaccine

Last reply: 09 November 2021 16:53
Hello I was diagnosed with a blood cancer this year and I'm due to start treatment at the end of the year. I haven't received any information about the booster vaccine and when I asked in St James I genuinely didn't understand the answer. Does anyone know if people with blood cancers fall under the bracket of immunocompromised and should we expect to be offered the third vaccine? Thanks David
4 comments
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posted by hope47
11 October 2021

Tamoxifen- Nausea & headace

Last reply: 06 November 2021 01:48
Hi, I just started Tomoxifen a month ago. Side effects not too bad so far except for a bit of nausea in the mornings. Occasionally I have really sharp shooting pains in my head. Anyone else experience similar symptoms and any remedies that might have helped? Also, apart from grapefruit is there any other foods I should avoid while on this treatment? Thank you 🙏🏻🥰
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posted by mrsb
07 October 2021

DCIS - constant sweating

Last reply: 03 November 2021 12:41
Hi all, I was diagnosed with early stage breast cancer in June 2020. I had a lumpectomy, 25 sessions of radiation treatment and am currently on Tamoxifen 20mg. I had numerous infections post surgery which delayed the healing process and I also have lymphoedema. I’m just wondering if anyone else has had issues with severe sweating? When it starts it’s from the top of my head to the tips of my toes and can last for some time and I’ve even had to change my clothes on numerous occasions because of it. I know hot flashes and sweating are a side effect of the tamoxifen but just wondering if what I’m dealing with is ‘normal’? It’s getting to the point now where I don’t even want to leave the house as I never know when it’s going to happen, how bad it’s going to be, how long it will last and I feel like I constantly smell as I can’t use any of the deodorants I used before being diagnosed. Thanks, MrsB.
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posted by lizzie.a
27 October 2021

Newly Diagnosed

Last reply: 02 November 2021 13:58
I've just been diagnosed with a neuroendocrine tumour. I've been referred to the specialist team in St. Vincents. I have received an appointment for a pep scan, at the end of November. This is about a 5 week wait and I'm wondering is this the normal wait time? I'm quite anxious at the thought of the wait and feel I'm in limbo at the moment!
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posted by Eamon R
12 May 2021

Pancreatic Cancer Support Group

Last reply: 30 October 2021 12:31
Hi All I was wondering if anyone is aware of a support group, specific to Ireland, in relation to Pancreatic Cancer ? I had the Whipple Procedure in January of this year and am currently undergoing chemo post operation. Any replies or suggestions welcome Many Thanks
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posted by turtlepower
21 October 2021

PET-CT scan wait time

Last reply: 28 October 2021 16:47
Hi everyone, my Mum has been diagnosed with invasive lobular breast cancer this week. She is waiting for her medical insurance sign off on a PET-CT so the hospital can stage her cancer (we know it is in her lymph nodes). We have been told this can take 4-6 weeks to get a scan date and all forms signed. It is being looked after by her consultant. This seems really long to me, is this normal? Thank you
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posted by michellew12
23 October 2021

Dad newly diagnosed

Last reply: 27 October 2021 16:10
Hi everyone, new to this. My dad has very recently being diagnosed with pancreatic and liver cancer. My main reason for posting is looking for advice on how to tell my daughter who is 11 and very close to him. Has always being a healthy man so this has being a very sudden and massive shock to us all. Thanks
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