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posted by Resolute
02 June 2013

Parking at St Luke's Rathgar

Last reply: 04 June 2013 20:58
Hello everyone! I am starting Radiotherapy soon at St Luke's in Rathgar and am wondering if anyone is attending or has attended recently. I am wondering what the parking situation is there as I will have a 1.5 hours drive and I'm not sure how long to allow to get a parking place?? I would appreciate any advice Resolute
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posted by Superwhy
08 June 2013

Mammogram and ultrasound on Monday

Last reply: 23 June 2013 08:50
Have 5 out of my 6 chemo sessions done and back next week for the test. Monday I have a mammogram and ultrasound and then MRI on the thurs. will they give me any idea on Monday after the mammogram and ultrasound. Will ye keep me in ur prayers and positive vibes over the next week. Am quite nervous.
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posted by spookwoman
10 June 2013

FNA Biopsy on Parotid Tumor

Last reply: 11 June 2013 16:43
Sept last year I got a FNA biopsy and Nov I was told I had a benign growth on the Parotid salivary gland that needed to be removed asap because FNA is not 100% and the growths can turn into cancer. I am still waiting to get it removed with 2 cancellations for the operation already one in May and now the op has been put out another week to the 28th. Is it normal for a biopsy to take 2 months for a callback and is it normal to have to wait 7 months to get the tumor removed. I have been in touch with ENT to tell them that I am now having problems with turning my head and vision greying out, the corner of my mouth has a slight droop and yesterday thankfully only temp my eyebrow also dropped. I am concerned as in the last few months symptoms are getting worse and many others with the same problems have had biopsy results that that said benign were actually cancerous after the tumors were removed and examined. Any info, pointers etc would be appreciated. Sorry mind is going op is 21st.
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posted by Resolute
12 June 2013

Timing of radiothrapy after surgery

Last reply: 19 June 2013 15:35
Hello again folks! I am wondering if anyone has had radiotherapy following a lumpectomy and if so how long it was after surgery before it started?? I am now already six weeks post surgery and am still waiting to go for mapping so that they can plan my treatment?? Anything I have read on the subject suggests that it should start between four to six weeks after surgery so now I'm beginning to worry that I am more at risk of a recurrance because of the waiting??? Resolute
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posted by deefed
12 June 2013

Dip in the Nip Wicklow 22nd June any takers?

Last reply: 04 July 2013 12:41
Hi Ladies I am organising a Dip in the Nip on 22nd June in Wicklow..... if any of you fine ladies would be interested. I have chosen Leah and Lily-Mae as the recipients of fundraising beautiful little girls only 5 and 6 and have gone through so much with chemo and RT they both have a very very rare forms of cancer. Any volunteers would be very welcome so far we are around 130 women http://kickingtheshiteoutofcancer.com/dip-in-the-nip/ If you cant make it maybe you could spread the word of if you had a few euro donate at www.idonate.ie/kickingtheshiteoutofcancer I wont be the only one dipping with one boob a few other ladies too. Sorry I have not been around for a while I will be back xxxx
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posted by Josephine
12 June 2013

lymphoedema after a year

Last reply: 26 June 2013 11:43
Hi all Well tomorrow the 13th is my one year mastectomy anniversary and after a whole year I've suddenly got lymphoedema! My wrist and hand are all puffed up and sore. I was on to the physio dept and got advice re exercises and rest etc and will prob be seen next week. Also I'm going on a long haul flight in 10 days! It's last year's cancelled holiday rebooked. I'm upset about this and mainly cos I think it was all my own fault. I drove for 3 and 1/2 hours at the weekend with air con not working and I didn't drink enough water. I had a splitting headache when I got there. Then I did a repeat performance on the return trip! I've looked up some old posts and now I realise I've been foolish. I haven't been keeping up the exercises either because I suppose I felt I was so active now there was no need. What does everyone else do? Are you continuing with the exercises forever? Any advice appreciated. Jo x
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posted by jimco60
14 June 2013

My prostate cancer. The follow-up.

Last reply: 20 June 2013 20:49
I recently returned to St Vincents to attend an out-patients clinic in the Urology Dept. I had my prostate removed last September and my PSA blood test back in October was .003. My new test also showed a reassuring .003. I was delighted and felt great. My only slight complaint was that I occasionally had difficulty maintaining an erection long enough to be satifying. I had been prescribed a well known blue pill to help but it was only a 50mg strength. The cancer nurse recommended this be increased to 75mg. I live a normal life after the op and have no trouble with incontinence. I still do pelvic floor exercises on a regular basis and am maintaining a good sex life with my partner of 2years. I had my left kidney removed because of cancer 6 years ago and have no problems there either. I will be attending out patients clinics for at least the next 5 years every 6 months. This is reassuring as they can keep an eye on me.
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posted by sunshine71
16 June 2013

TAMOXIFEN AND ANKLE/FEET SWELLING

Last reply: 01 August 2013 18:01
[color=#400080:pu2xxfg2]I started taking the 'dreaded' tamoxifen about 3 weeks ago now and my ankles in particular, along with my feet are fairly swollen. There are crease lines where the swelling is on my feet/ankles. Keeping them well moisturised but they are sore and can feel then a bit 'cracked' or dry. Have a general feeling of water retention in my body and my weight on the scales is to say the least. I am going back to the oncology team and will chat with them. Mentioned it on my last visit and they said give if 4-6 weeks if I could to see would it settle itself without diuretics. Find it hard to walk at times with the swelling but trying to keep moving as know it helps. Wearing crocs to give them room to 'swell' so to speak...regular shoes very uncomfortable. Luckily not any other adverse side effects so far, just this. Anyone else find this side effect on Tamoxifen? Thanks ladies. [/color:pu2xxfg2]
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posted by bettersoon
17 June 2013

Anyone had mastectomy & chemo but no rads?

Last reply: 23 June 2013 20:03
I've had my surgery in Jan this year - right side mastectomy with immediate strattice & tissue expander reconstruction. Onco-plastic surgeon at the time said I was borderline case for having chemo, but no radiation therapy needed. I'm currently half-way through chemo. My understanding re. rads decision is that my tumor was less than 5cm (mine was 2cm), not embedded in chest wall, clear margins & v. low lymph node involvement (1 in 33). Original surgery & decisions were made in UK, NHS treatment. I came back home, to Ireland to have chemo with family support. BUT, now the team dealing with me here say that a 10yr old european study says that there MAY be some benifit to me having radiation therapy.... My UK team and other US studies would disagree, I'm concerned for my strattice which prob won't stand up to rads and won't be replaced like-for-like by HSE (they'll opt for diep etc. because I'm a public patient) and I feel that I've got no concrete reasons to do rads other than fear and a broad sweeping 'just-in-case' approach with rads in Ireland. Anybody here NOT had rads after mastectomy & why? Or, anyone given good clear reasons why they did need it and what exactly it would do to benifit your body? I meet radiation oncologist again this wk and will of course put all these questions in front of them again too Hope everyone's treatment & recovery going well xx
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posted by Bizzybee
17 June 2013

starting chemo and holiday booked

Last reply: 04 July 2013 12:27
Hi all - new to this forum and finding it very helpful, not all doom and gloom in fact quiet the opposite. Was diagnosed with breast cancer in May. Have to have eight sessions of chemo followed by mascetomy followed by radiation. I am due to start my chemo in two days time and then had a holiday booked for next week - 5 days after my chemo. What do I do - now I am only going to the UK so its not too far away. My doctor says Ill be fine go ahead as its into my second week but the nurse says I am not going to be well. Trying to keep everything as normal as possible for the children but am I mad to even consider this. What does anybody else think. We will be staying in a house with friends so its not like ill be stuck in a hotel or anything.
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