Community

hi i am feeling it very hard living with this cancer at the moment was flying for the last year an a half but over the last month or so just seem to have hit a brick wall i dont know why because the treatment is going fairly well just wondering if anyone else felt like this during their treatment

Hi gang!! Hope all are well! Not been on Here for a while as am back to work, and life is gaining momentum bit by bit. Just wondering a few things. Am meeting my plastic surgeon tomorrow to discuss recon options. My expander failed last Xmas and I had to remove it so am completely flat on one side. I think he's going to Reccommend the diep operation. Was anyone waiting long for that op or how long dies it take from consultation to actual operation?? Also what is the recovery time and does it really hurt? I'm enjoying having some degree of a life and fun again after the horror of chemo and not really looking forward to months away again!! Thanks again Xx

Hi Im wondering if anyone has experienced or is going through what I am at the moment as Im getting very down & frustrated. I am 33years old diagnosed with Myelofibrosis in March & had my bone marrow transplant. I had some GVHD which cleared & was finally discharged from St James after 2months. I then started to feel a bit weak & my skin was jaundice yellow so I knew sometthing wasnt right. Upon check up beg Oct was admitted for Liver GVHD & 1 month later Im still here. They said my Bilrubin is too high & need to wait for it to steady which so far it hasnt. Im receiving photopherisis treatment twice a week & still on lots of medication incl steriods. I cant sleep despite relaxants & sleeping tablets & I feel very low & depressed. Mainly because there seems to be very little progress & no idea how long I will be here. Its already been a month making my total 3months in hospital. Im sick of magazines dvds etc at this stage & dont know what else to do. I heard the liver is very slow repairing but just wondering if anyone else has has this GVHD & how they got on. Sorry for long explaination all new to this Thanks, T

I noticed where I had my lump has gotten very hard. My GP has refered me back to the breast clinic. I was there and they don't seem too concerned but have organised an ultra sound to be sure. Starting to worry now. To top that off I got a very bad dose of hives on holidays in August. They took over a month to two to clear from my legs but one did appear on my right breast and hasn't gone away. The breast surgeon didn't seem too concerned but now I am really worried about this breast now. Just wondering will I ever stop worrying?? Anyone have issues like this and it turn out to be nothing? I was also told I'm brca1 positive two weeks ago and I think paranoid is what I'm becoming. Been refered to a reconstruction clinic in January and had my first consultation with a gynae about my poor ovaries.

I am six months into taking tamoxifen and i am becoming soooo emotional. I think it is all just sinking in now All along I have been telling everyone I am grand but I dont feel like my old self at all. Irregular periods, bad pain in my hip which wakes me every night when I turn in bed. Things are just catching up on me. Felt like moaning. sorry

Anyone ever experienced pain going through the nipple in left breast. Up most nights with discomfort and pain. Seeing Consultant Friday after mammagram done three weeks ago and received no results yet in Beaumont?

Had my six month check up with surgeon today , was not my own surgeon, he was happy that everything was ok . I really did not get a chance to ask about reconstruction. My own surgeon did not recommend it when I had my mastectomy because I was having radiotherapy , told me best to wait . Finished radiotherapy last week and still doing herceptin . I was just wondering is it up to me to bring up the subject of reconstruction or do you automatically go on list ? What length of time is usually left between radiotherapy and reconstruction? Another question how soon after chemo and radiotherapy should you be called back for mammogram? I did not see my oncologist during chemo so not sure what happens next ! Got through everything without to many probs so I am thankful for that but some times I think by been to quite I don't ask enough questions and am some times just rushed through appointments.

Good morning,, hope ye are all well. I havent posted too much on this site but often turn to it for info and here I am again today... I met with plastic surgeon yesterday who recommended a Diep Reconstruction in my case. While it seems to give great results, it also seems a Major piece of surgery and I am just wondering if any of you ladies out there have had this done or know of anybody who has had it done? I would very much appreciate any information on the operation itself or any advice. I was diagnosed June 2012 with Her2+ left side and had chemo (TCHL) followed by mastectomy in November 2012, No radiation as no lymph node involvement. Thanks in advance...

I would love to stay at home for longer but sadly finances require I go back. I have been on leave since feb 2013 when I was diagnosed. Work has been very good and patient . I have to go into the office tomorrow and am expecting the whole when u coming back to work question. I have only just finished radiotherepy but I still have to have herceptin till march. I am thinking slowly ease back into it in jan at a few hrs a day for maybe 3 days as week. Thanks

Hi all, would just like a bit of advice on mastectomy bras and prostheses. I got fitted a few weeks ago in one of the specialist shops and brought them both home with me that day. Maybe I was expecting too much but I thought once I had them I'd be able to go back to wearing some of my normal tops (I don't mean low cut ones) but that isn't the case. If I look down at my chest after wearing them for a little while I can clearly see the prosthesis where it has risen over the rim of the bra. It can be up to 2cms over the rim at times. Also if I lean over, the prosthesis will fall away from my chest and the fact I'm wearing it is really obvious. I assume this is caused by the weight of it and can't be helped but is the other normal? I feel like the prosthesis is too large for the bra and has no where to go except over the rim. I rang the shop earlier this week to ask them about this and they said it was normal but just want to check if other people have had the same experience? They're not cheap so I was expecting a bit more, do I just have to resign myself to wearing very high necked tops for the foreseeable future? Thanks Pamela