Community

[b:3cmcqnu2]Lymphoedema Ireland[/b:3cmcqnu2] Supporting people with Lymphoedema their next open day is on Saturday 20th October in St. Luke's Hospital, Rathgar, Dublin 6. The following topics will be addressed on the Open Day – Skin Care / Self Care and Compression Therapy [b:3cmcqnu2]Registration and Coffee: 10.00-10.30[/b:3cmcqnu2] [b:3cmcqnu2]My Personal Experience: 10.30-11.00[/b:3cmcqnu2] Bernadette Mc Court [b:3cmcqnu2]Clinical Nurse Specialist in Radiation Oncology Skin Care / Self Care: 11.00-12.00[/b:3cmcqnu2] - Margarite Moore [b:3cmcqnu2]Compression Therapy:12.00 – 1.30[/b:3cmcqnu2] Jean Marc Monseux - Physiotherapist, Specialised in Lymphology St. James’s Hospital [b:3cmcqnu2]Question & Answer Session[/b:3cmcqnu2] [b:3cmcqnu2]Lunch[/b:3cmcqnu2] [b:3cmcqnu2]RSVP:[/b:3cmcqnu2] info@lymphireland.co or text on [b:3cmcqnu2]087 693 4964[/b:3cmcqnu2]. This will help us to plan for catering etc. [b:3cmcqnu2]Website:[/b:3cmcqnu2] http://www.lymphireland.com for more details

Hey girls, I'm probably overreacting a little bit here but said I'd ask anyway. I've just started a bleed today quite unexpectedly. My periods stopped completely when I was on chemo. In fact I started chemo on 22nd of Feb and my last period was 23rd of Feb. I started on the tamoxifen on 1st July. So today's bleed is very very unexpected. It doesn't feel anything like a period at all, and I know logically it's highly improbable that it's anything it shouldn't be..... But that doesn't stop me from worrying a bit. I will phone my oncology nurse first thing in the morning and have her put my mind at ease. But am wondering if any of you have experience of something similar? Sarah. X

Hi ladies Just wondering if anyone else is having similar problem.Im waking up every morning at around 5 freezing cold even though i am wearing layers of pj's and am tucked up under duvet!!!Then a few minutes later i have a hot flush.I've just got myself off the sleeping tablets so this is really starting to bug me as im awake then for day!!!!Have been on tamoxifen since early june so wondering if its another joyfull side effect. Am a bit on rant mode at mo.Am coming up to a year diagnosed and am so emotional(more so than when i was told).Seem to be struggling more so now!!!!I also had a follow up surgery 3 weeks ago to fill in dips in new boob which was great till 2 days ago when i looked and realised that ive reabsorbed the fat already! Really really in the horrors every time i seem to get my mind round the last year i seem to hit a wall.I barely go anywhere by myself anymore thats when i go out from my cosy safe house.Pure madness how im feeling at this stage i should be getting back to normal. sorry to rant but need to let it out. xx W

Hi Ladies Me again!! Should have known I would have more problems since every phase of this treatment so far has raised issue after issue. Anyway had a mastectomy on 17th of Sept so 4 weeks tomorrow. Suffering with chafting and rash/redness all around scar underneath both arm pits (had auxilary clearance to right). Had a big chest so mastectomy bra with softie prosthesis leaves me very unbalanced and I think mastectomy bras come up higher under arm so digging in. So rash, redness and soreness all over that area. Has anyone had this? Any advice would be greatfully received. At my wits end ...in attempt to keep remaining boob at the same level as whoopie cushion I am cut to bits and have all this rash and redness. Cue selection of expletives..... Thanks ladies.

Good morning all , My wife has been diagnosed with invasive ductal carcinoma , stage 1 and 2 both 15mm.No node involvement . She is in for her operation on Monday the 22nd of october, full mastectomy , and skin expander. I havent got any of the er+ info yet , should i ask the doctor for this info , as my wife is not into the detail as she is trying to just hold it together , i keep a diary of all the dates and apps we are having so as i can keep a record and feed back info as she asks for it .I am just wondering what else to expect at this stage , no mention of chemo or rt yet , am I correct in thinking this will be decided when oncagene comes back 2 weeks after op.Have to say I am glad to have found this site , so much positive thinking here ,but I am terrified of whats to come and want to keep strong for her.Her surgeon is Ms Merrigan in Limerick.

Hi Everyone I am waiting to be called to have a breast reduction on my real breast as I had a mastectomy on my other breast four years ago. The operated side has a couple of indents at the edges and I was wondering if I should mention to my PS next week when I meet him for my annual check up about having lipo-modelling to fill in the dents when I am having my reduction op. Is this possible? I would be so grateful if anyone could fill me in on this procedure. ER+ PR+ Her 2+ Diagnosed age 35 in Feb 2010 Mastectomy with immediate reconstruction Chemo / Rads/ 17 Herceptin

Hi. Just wondering if anyone has used fake tan on an arm that is effected by lymphdema. This may sound like a silly question buti0 i dont know who to ask. Thanks

Just wondering has anyone else any experience of a problematic ovarian scan while on Tamoxifen? I was diagnosed in 2009 with stage 2a breast cancer, lymph negative, at age 37. Am now 42. Had mastectomy and am on the Oncotype DX trial -- no chemotherapy just tamoxifen. At a recent ultrasound the radiologist saw a normal looking "functional" cyst on one side but something solid or with solid bits on the other -- and has referred me for a blood test -- CA 125 -- to rule out ovarian cancer, after which I'm booked for another ultrasound check up at the end of August to monitor it. Both he and my gynaecologist assure me they think it looks fine but want to be scrupulous about it. I understand that solid masses on the ovaries can often be benign but I'm a bit anxious at the prospect of waiting till the end of the summer to know for sure if there's a problem or not. My periods are pretty normal on Tamoxifen and I have no symptoms whatsoever, am very healthy. Having the blood test tomorrow. Just wondered: has anyone else had any kind of similar experience? Any advice? Many thanks, K.

Hello ladies Just a quick question.I have been really tired over the last few weeks which turns out to be iron defient anaemia and no iron reserves.With no obvious reason for this,ive had hysterectomy so cant be that,im wondering should I report it to oncologist as have noticed a small bit of weight loss too. Hope all are well W

Hi all, Has anyone else had a reaction to both Tamoxifen and Femara? I seem to be extremely sensitive to both and now I'm waiting to hear what's my 3rd option. Just wondering if anyone has had any similar problems. Thanks