Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by gailf
11 February 2019

Nerve damage

Last reply: 08 March 2019 10:29
Has anyone experienced nerve damage after lymphnode dissection? My obturator nerve was damaged causing lots of issues. 12 months post op and still no recruitment. Would love to hear from someone who experienced similar.
1 comment
Read the post
posted by Dolly
22 February 2019

Reconstruction and smoking

Last reply: 25 February 2019 11:12
Hi, I have been off cigarettes for months in the wait for breast reconstruction but recently split with my partner and caved a bit last week. I just got a date, very soon and I'm terrified they will test me prior to surgery and not proceed. Do you get checked for smoking prior to surgery. I am back off them again.
3 comments
Read the post
posted by joedu
24 November 2018

Treatment in Ireland

Last reply: 01 February 2019 11:36
My name is Yi Du, I am from China. I have been resident in Ireland for 18 years. My mother is diagnosed lung cancer 2 weeks ago, the whole family is in a huge depression and I went back to her immediately to support her. Saying “diagnosis” I mean my mother feels a chest pain one day and went to see a doctor, then she is taken to do a chest CT. The image of CT shows a big shadow in the her lung. The doctor says it’s lung cancer. In China, cancer is a death sentence, incurable illness which cost people everything to survive a bit longer. She is giving up when she heard about her illness. I convinced her and promise I’ll try my best to find a treatment for her. Then we did a pet-CT, the image shows the tumour has transferred to nearby tissue, pleur and ribs. Then we did a pneumococcal biopsy(lung puncture), but the doctors failed to take enough biopsy. We did it again and third time. I was told to get a result yesterday and they said they could not identify what type of lung cancer it is and let me wait for longer. I was very disappointed about the doctors. I decided to bring my mother to Ireland and get treatment here. I found a company named oncologica that do both target therapy and immunotherapy. I am very interested. I wonder if my mother will get routine histology biopsy taken in Dublin and give the biopsy to oncologica. I sincerely appreciated if anyone could tell me the procedure of treating cancer in Ireland. Please instruct me what should I do next. Yi
2 comments
Read the post
posted by Lambo
18 January 2019

Follow up screenings

Last reply: 23 January 2019 12:00
Hi, recently had a diagnosis of head and neck cancer, and possible metastasis due to one lymph node being positive for tumor. Primary tumor resected with follow up radiation. Can people advise in such a case what does the normal follow up screenings consist off .?
1 comment
Read the post
posted by lorr
08 January 2019

Biopsy Sample

Last reply: 23 January 2019 11:56
I have recently requested a paper review including a review of my biopsy following a diagnosis of a primary adenocarcinoma in my bladder. Hospital in Boston is carrying out review but are having difficulties with Beaumont Hospital releasing the biopsy as Beaumont say this is not normal. Does anyone know if I have a right in insisting on Beaumont releasing my biopsy as this is essential for the full review of my case?
3 comments
Read the post
posted by Justy
28 November 2013

follicular non Hodgkin's lymphoma

Last reply: 09 January 2019 20:54
Hello, I'm new here and wanted to say hi. I got diagnosed with follicular non hodgkins lymphoma in September 2013. I'm a 34year old female. The diagnosis felt like a slap on my face . I'm worried of course. I have so many questions (Google is not helpful. It scares me) Is there anybody else here with the same cancer who would like to talk? Take care, Justy.
3 comments
Read the post
posted by Imlost2019
05 January 2019

Mam has six months multiple myeloma

Last reply: 07 January 2019 11:55
Its 1.20am, ten hours since my mams consultant rang me to say that her multiple myeloma is aggressive and not responding to the treatment. She was diagnosed two years ago, had stem cell transplant and rounds of chemo but only got 11 months approx before it came back. i have one sibling, im 40 years old and i am devastated. My husband is asleep beside me right now, my four children ( under ten) are asleep. Im here frozen since i got the call. My dad doesnt know only myself and my brother. Ive one friend in my lofe who lives 3 hours away and my mother was and is my best friend. I can breathe, i cant move. Her ldh is over 700 and six months is the max she will get.
1 comment
Read the post
posted by Rebel
04 December 2018

Triple Negative BC

Last reply: 23 December 2018 22:31
Hi folks I have recently been diagnosed with stage 2 TNBC. I have had a mastectomy and am due to start chemo in early January. I’m absolutely terrified as when I google TNBC it’s so negative. I don’t know anyone who has had TNBC so any help or advice would be really appreciated
3 comments
Read the post
posted by setty58
20 December 2018

Cannabis as an Alternative Medicine

have you ever tried Cannabis as alternative medicine? I have a sleeping disorder that I can't sleep 2 nights straight. I tried to use a mask but I felt drowning but my friend told me to try cannabis and finally, I can sleep 6 hrs straight now. and I came across this article kylekushman.com/00-box-personal-humidor/ and I learned a lot of information to grow,
Read the post
posted by sophytc
06 December 2018

erratic thermometer

Last reply: 10 December 2018 10:25
I badly need some advice. I'm in the middle of chemo for breast cancer and have to monitor my temperature for signs of infection. I was advised to buy a Braun ear thermometer and it's driving me insane. The readings are wildly erratic. At one stage it read 39.1 in one ear and 36.9 in the other - which can be the diference bewteen a rush to hospital and not having to worry (my digtal oral thermometer gave a reading of 37.4). The same ear can vary hugely within seconds. I've just come out of hospital after 5 days of febilre neutropenia. My temperature was reading normal every time they took it in the hospital but as soon as I was home, my thermometer decided I was 38.4. Has anyone else had this problem? (Some on line reviews would suggest I'm not the only one) Can someone recommend a reliable ear thermomter?
1 comment
Read the post
© Irish Cancer Society 1999-2025 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.