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posted by ptfahey
02 September 2017

Lynch Syndrome

Last reply: 15 February 2020 11:14
What is Lynch Syndrome? (Thanks to Sir John Burn Lynch Syndrome UK Conference 2015) We all inherit our DNA 50% from each parent. If we have LS then one of our repair genes is good while the other one is faulty. Think of the repair genes as two Doormen on the door at a night club. Nothing is going to get past them that shouldn’t. This is a person without LS Imagine one of the Doormen needs the toilet and walks off. We still have one doorman watching and keeping us safe. This is a person with LS Imagine the other doorman now needs to toilet and leaves. Nobody is now watching door. This is what happens when one good gene goes faulty for what ever reason. Anybody can just walk in now In brief, we only have one repair gene looking out for us and if it gets damaged in a cell we are left with no protection. See Lynch Syndrome Ireland Web Site + Facebook Page + Twitter
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posted by Tara358
05 February 2020

Annual Mammogram

Last reply: 13 February 2020 22:07
Hi everyone, I am a 10 year Breast Cancer Survivor. I was diagnosed at 35 but made it through the journey and I am now healthy and happy. I have a query and I hope someone can help me. I don't have to attend a Doctor since my 5 year all clear, when I was attending my Breast Surgeon he would always book my mammogram for the following year. But now that I don't see him, every year I am waiting to be called for my mammogram and I am not called - I have to ring the secretary to get my Dr to book it and then I have to contact the mammogram department to make sure it is booked. I thought I would be called automatically each year. Can anyone tell me what I need to do about getting annual appointment without having to contact the office each year and go through all the departments. Thanks in advance
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posted by anniembb
04 February 2020

Breast lump?

Last reply: 10 February 2020 15:20
Hi, has anyone had a lump that's above the breast almost on the chest but directly across from armpit if you get me? Thanks
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posted by ephemere
17 June 2011

infertility

Last reply: 07 February 2020 13:22
Girls, Wondering if there's anyone out there who is/was in the same boat as me? Am being advised by oncologist that my chances of fertility being there are negligible after chemo (unknown regime yet), and also with the liklihood i'll be on tamoxifen 5 yrs, and also not to have eggs harvested because of the oestrogen boost needed to do that which could feed the cancer- all largely of course because of my age, 44 (45 in january). I do know the facts of life, so no lectures about menopause and age please however the facts of MY life are mine- (we had tried, had had miscarriage, and were open to trying again until cancer struck); I'd appreciate any reply from anyone roundabout this age going through a similar issue. Going to talk to Rotunda anyway next week, though to be honest I'm not sure I have the energy;it feels hard to have to fight a different battle in a different sub-discipline in a new hospital system when I'm dealing with cancer anyway. Hmph... x
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posted by anniembb
28 January 2020

Core Biopsy Cost

Last reply: 06 February 2020 15:45
Hi, would anyone know how much a core biopsy would be in Bon Secours in Cork or any other private hospital? Just worrying about work & money. Thanks
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posted by dotgos
14 January 2020

Taxol query

Last reply: 23 January 2020 01:22
Hello all, I met with consultant today to get my plan , I had originally thought I was going on AC first and then taxol, but am now going on taxol weekly for12 weeks with herceptin infusions every 3 weeks and then herceptin injections. Could anyone please give me any advice regarding the weekly taxol , and how doable it is. Thanks very much and good luck to all of you going through treatment.
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posted by Mac78
22 January 2020

Underarm tenderness

Hi I am 2 years post bilateral mastectomy for invasive ductal carcinoma in my left breast Her+ and am BRACA 2 positve. Had 3 lymph nodes removed with one testing positive. Had chemo and rads which caused capsular contracture in my left breast. My question is that I am experiencing pain and tenderness when I touch my arm close to my underarm. Do not remember hurting myself and it only hurts to touch but not move my arm. Have an appointment with oncologist on Friday but am just wondering has anyone had a similar experience tia
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posted by Geraldine 973
12 January 2020

Teachers and getting leave

Last reply: 21 January 2020 09:45
Hi My mum recently diagnosed with stage 4 bowel cancer. We want to bring her home once she's done with hospital. Has any other teacher been in this position of caring for a parent and what did you do about getting leave from work?
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posted by Lmullin
18 January 2020

Advise needed

Last reply: 20 January 2020 16:02
I had my first smear last August and in October the results came back that i had abnormalities and HPV positive. I was sent to have a colposcopy exam in December. I was asked questions and I expressed how I have pain in my pelvis and abnormal bleeding (bleeding and pain after sex). 2 biopsys were taken and I recieved the results on Monday that it is CIN 3 and I will need LLETS treatment. However, I expressed the pain in my pelvis is now constant and I really have concern that I can feel something in my pelvis/abdomin area. Also bleeding after intercourse is worsening. The colposcopy clinic told me to contact my gp. My gp done an internal exam and said my cervix was red and I had alot of tenderness in abdomin. She sent me to A&E department in the same hospital I had my colposcopy. They checked my urine and blood pressure and all was normal. The doctor then done a quick internal exam and said yes it was red but not actively bleeding so she wouldn't worry about it. I asked what I was going to do about the pain and she said go home and take paracetamol... I rang the colposcopy clinic the following day asking if I could be put on a cancelation list for LLETS procedure. I was told no and that my procedure would be sometime the end of March and that I would get a letter with date in due course. I rang my gp yesterday as pain is still there and I'm beginning to get very concerned. She is sending me for CT scan next week. I feel like no one is taking me seriously and I know my own body and I know there is something wrong. I am left waiting until March for my treatment and there is nothing I can do about it. Has anyone else been in this position where they feel lost and let down by the health care in Ireland? I have to pay privately for the CT scan but I don't know what else to do.
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posted by Sunflower1980
16 January 2020

Second opinion

Last reply: 20 January 2020 14:06
Hi, My father was diagnosed with lung cancer less then a month ago and we were told last week that nothing can be done. He's in good form, out walking, feeling great. He only went to an appointment for his thyroid last September and this happened. As a family we want a second opinion. We asked for his test results from the hospital and was told we need to go through the system under the freedom of information act. We asked our doctor but he doesn't want to "rock the boat" with the consultant. We dont know what to do or go to to get a second opinion. Can anyone help us, give some advise on how to go about getting a second opinion, please. Also can anyone recommend an excellent lung doctor in ireland. Any advise will be very much appreciated. Thank you
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