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posted by fionamay23
14 February 2023

Ovary Cyst Removal

Last reply: 14 February 2023 18:41
Hi My 11 year old daughter had an ovarian cyst and one fallopian tube removed due to the cyst being twisted around the tube. This was in November 2022. She presented with severe abdominal pain and it was discovered during a laparoscopy. The gynaecologist was happy with the outcome of the procedure. I enquired if there was anything to be worried about with regards the cyst and it appeared he wasn’t concerned. He said it would be sent away to be examined but would take at least 2 months for results as it would not be deemed priority. He told me when she was being discharged to ring for results to put my mind at ease in 6-8 weeks. It’s now 14 weeks and they say there is a backlog of up to 20 weeks. I got a discharge summary sent to me in the post and there is no mention of waiting on results but says was discharged for gynaecology follow up. I rang the gynaecologist secretary and she said results were not back but the follow up would be based on these results. She also said she can only tell me if results are back and I’ll need to discuss with my own gp. So I’m a little worried and confused by it all. What is the procedure for getting results and should I be worried as it’s taking so long. My daughter is in excellent health and good form. Thank you.
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posted by Sunnyshe
10 February 2023

OncotypeDX test

Last reply: 13 February 2023 11:30
Hi guys. Just wondering if my Oncotype DX test result comes back in the high range, with a high occurrence of family female cancers (uterine, breast and ovarian cancers) is it a possibility that i may be put forward for, hysterectomy, ovary removal and double mastectomy with reconstruction, along with chemo? I'm also waiting on genetic test results. My head is telling me this would be the right thing to do, to ensure a cancer free future, but not sure if this would be a "norm" in my situation.
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posted by smiffy86
12 February 2023

Phone call for results

Hi everyone, I had uterine polyps removed and send away to be tested at the end of November. I got a letter Fri for a virtual phone call appointment with the gynecologist for Fri week and now I'm panicking, I'm thinking if all was clear they would send a letter saying that and the call might be to arrange more tests. I'm wondering if appointments are being done either way over the phone at the moment as I know the waiting lists I that department are crazy at the moment
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posted by indigoalice
01 February 2023

Breast cancer diagnosis

Last reply: 12 February 2023 11:43
Hi my name is Alice and Ive got breast cancer. Im attending St Vincents hospital for treatment. So its in the left breast and got into lymphs. Next step is CT scan then chemo, then op then radiotherapy, for now fingers and everything crossed. I am 47 years of age.I would like to ask another wou for man who had a similar diagnosis and has already travelled this road for a chat? I am very grateful to you in advance and thank you for reading my post. Alice x
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posted by ShaneK
04 February 2023

Family in denial

Last reply: 08 February 2023 16:09
Hello. My dad was recently diagnosed with stage 4 lung cancer. We have just been told that it is now terminal and his life expectancy is very short. This has come as a complete shock and my Dad and I have come to accept this diagnosis, however my sister has been in denial ever since. We also lost our mother when we were young to cancer and there is a lot of unresolved trauma so I understand why my sister is finding it so difficult to accept. My sister and I love our dad very much and we are a very close family. We our trying our best to care for him at home and keep him safe, however we are both doing this in different ways. I am trying to help my dad be as comfortable as possible and want to spend as much quality time with him as I can before he goes. I want to have the much needed and very difficult conversations with him to ensure we grant him all his wishes for whatever remaining time he has here. My sister is trying to wrap my dad up in a bubble and protect him in the hope that a miracle comes along and saves him. She is avoiding any difficult conversations and I feel my dad is scared to talk to her in fear of upsetting her. I'm worried that one day she will look back and realize she wasted all of her time with my dad clinging onto false hope instead of enjoying the time she has left with him. If she knows that I've spoken to my dad about death or end of life wishes she gets very angry thinking that I'm scaring my dad and making him loose hope on getting better. I understand she is scared and I have tried to talk to her but I think she is so far in denial the conversations may break us apart. I have never fought with my sister but we have had a couple of intense conversations the last two weeks. I worry for my Dad and I worry for my sister and I hope someone can give me advice on how to deal with this situation. I mostly want my Dad to know we will be okay and for him to be able to talk to us about his fears and what he wants for the remainder of his life
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posted by georgie76
29 January 2023

Biopsy results question

Last reply: 05 February 2023 20:46
Wondering if someone can help? I am awaiting results of a breast biopsy-2.5 weeks between biopsy and results appointment. Wondering if anyone felt lumpier after the biopsy? And if this is normal. Also wondering if the hospital (mater breast clinic) will indicate if you should bring someone with you? I know that over covid-that wasn’t happening-but has anyone recently diagnose been advised to bring a supportive person with them? Don’t want to go alone if I’m getting back news-but equally don’t want people taken days off for no reason. Thanks so much for any help y oh can give me.
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posted by Terry Kav
18 December 2018

polycycthemia vera

Last reply: 01 February 2023 21:34
Im looking to talk to someone else with polycycthemia vera.
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posted by Stephen D
18 February 2022

Polycythemia Vera Diagnosed Young.

Last reply: 16 October 2024 22:01
32 Male just diagnosed with PV. Will be beginning treatment shortly (just venesections and aspirin for now). I have really frustrated feelings at the moment. On the one hand getting a diagnosis of a rare cancer makes me upset but given the straight forward nature of the treatment and largely unaffected life expectancy ( when treated) I dont feel like I have any right to complain.
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posted by alrorek
18 January 2023

Recurrence of breast cancer

Last reply: 26 January 2023 09:38
Periods of time (how ironic as I always been irregular) It’s nearly a year after 1st diagnosis, 9 months after lumpectomy, finished 4 weeks of radio 5 months ago and now going through a follow up ultrasound because I’m afraid (it) has come back🥺
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posted by kransom
17 January 2023

Skin irritation on face

Last reply: 25 January 2023 09:36
My skin on my face seems to have gotten very bad since starting chemo. Particularly on my two cheeks it’s red with raised bumps like pimples. This wouldn’t be the norm for me as I don’t get acne or the like. I don’t know what skincare I should be using or what might help? Has anyone experienced this or would have any recommendations on skincare to use on it?
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