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posted by burren54
26 October 2013

non hodgkins lymphona stage 2

diagnosed late 2012.told no need for treatment yet. could be 10 years. on 2 tabs a day for blood pressure fatigue and overweight. went vegen. now on half tab 2 stone lighter and not tired. intend to drop to zero tabs.
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posted by therailwayman
27 October 2013

bowel and liver cacer

Last reply: 14 November 2013 09:39
hi i was diagnosed with bowel cancer on the 12th of july 2011 about a month later i was told it had spread to my liver was a huge shock at the time is there anyone there that has been going through the same thing would be very grateful for any advice you could give me please
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posted by Mariek2212
29 October 2013

Nipple Reconstruction

Last reply: 04 November 2013 23:31
Hi I am due to have my nipple done in St Vincent's hopsital in the near future. I received a letter from the consultant's Registrar asking that I mark the night before where I want the nipple to be placed, this was his protocol, and they would discuss it with me on the morning of the procedure. I find this to be quite a bizarre request and not very helpful, on the part of the consultant and his Registrar. Has anyone else encountered this in St Vincent's or anywhere else for that matter. I am very tempted not to mark the spot as a form of protest. Mimi
4 comments
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posted by sunshine71
31 October 2013

survivors guilt..

Last reply: 02 November 2013 20:52
Today I heard of the passing of another girl I went to school with from cancer. This is the 2nd person I know who has passed from cancer (not breast cancer) since I've been diagnosed. I find it so very hard to deal with news like this especially since my own diagnosis. I remember waiting on results to see how far advanced it was. My life flashed before my eyes. I am so happy and grateful to be here and to have a good outlook but its like 'survivors guilt' when someone passes from cancer.
3 comments
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posted by Amaryllis
03 November 2013

Tamoxifen & itchiness

Last reply: 04 November 2013 12:55
I've been reading the posts about Tamoxifen - thanks as always for your great insights. I've been on it since June and apart from hot flushes every night, haven't noticed any other major side effects....except in the past week I've suddenly developed this awful vaginal itch which is driving me crazy..... Has anybody had anything similar and if so what do you do to relieve it?? Thanks Liz
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posted by Amaryllis
03 November 2013

Tamoxifen & itchiness

I've been reading the posts about Tamoxifen - thanks as always for your great insights. I've been on it since June and apart from hot flushes every night, haven't noticed any other major side effects....except in the past week I've suddenly developed this awful vaginal itch which is driving me crazy..... Has anybody had anything similar and if so what do you do to relieve it?? Thanks Liz
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posted by therailwayman
03 November 2013

tough at the moment

Last reply: 17 November 2013 02:46
hi i am feeling it very hard living with this cancer at the moment was flying for the last year an a half but over the last month or so just seem to have hit a brick wall i dont know why because the treatment is going fairly well just wondering if anyone else felt like this during their treatment
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posted by Neadi
05 November 2013

Reconstruction options

Last reply: 06 November 2013 19:38
Hi gang!! Hope all are well! Not been on Here for a while as am back to work, and life is gaining momentum bit by bit. Just wondering a few things. Am meeting my plastic surgeon tomorrow to discuss recon options. My expander failed last Xmas and I had to remove it so am completely flat on one side. I think he's going to Reccommend the diep operation. Was anyone waiting long for that op or how long dies it take from consultation to actual operation?? Also what is the recovery time and does it really hurt? I'm enjoying having some degree of a life and fun again after the horror of chemo and not really looking forward to months away again!! Thanks again Xx
4 comments
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posted by tracie33
06 November 2013

Liver GVHD post transplant - Myelofibrosis

Last reply: 19 November 2013 15:12
Hi Im wondering if anyone has experienced or is going through what I am at the moment as Im getting very down & frustrated. I am 33years old diagnosed with Myelofibrosis in March & had my bone marrow transplant. I had some GVHD which cleared & was finally discharged from St James after 2months. I then started to feel a bit weak & my skin was jaundice yellow so I knew sometthing wasnt right. Upon check up beg Oct was admitted for Liver GVHD & 1 month later Im still here. They said my Bilrubin is too high & need to wait for it to steady which so far it hasnt. Im receiving photopherisis treatment twice a week & still on lots of medication incl steriods. I cant sleep despite relaxants & sleeping tablets & I feel very low & depressed. Mainly because there seems to be very little progress & no idea how long I will be here. Its already been a month making my total 3months in hospital. Im sick of magazines dvds etc at this stage & dont know what else to do. I heard the liver is very slow repairing but just wondering if anyone else has has this GVHD & how they got on. Sorry for long explaination all new to this Thanks, T
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posted by Irish Cancer Society
06 November 2013

Multiple Myeloma Information Day

For patients and families with Multiple Myeloma there is a great information day coming up on November 14th in the Glenroyal Hotel in Maynooth. All are welcome, please register with Mary Kelly on [b:jugu4v0c]086 7804007[/b:jugu4v0c] or email marybkelly2010@gmail.com. To get a copy of the day’s programme of events please call the [b:jugu4v0c]National Cancer Helpline[/b:jugu4v0c] on [b:jugu4v0c]Freefone 1800 200 700[/b:jugu4v0c] or email helpline@irishcancer.ie.
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