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Its 1.20am, ten hours since my mams consultant rang me to say that her multiple myeloma is aggressive and not responding to the treatment. She was diagnosed two years ago, had stem cell transplant and rounds of chemo but only got 11 months approx before it came back. i have one sibling, im 40 years old and i am devastated. My husband is asleep beside me right now, my four children ( under ten) are asleep. Im here frozen since i got the call. My dad doesnt know only myself and my brother. Ive one friend in my lofe who lives 3 hours away and my mother was and is my best friend. I can breathe, i cant move. Her ldh is over 700 and six months is the max she will get.

The Lymphoma Association is bringing the latest in our regional series of ‘Know Your Lymphoma’ conferences to Belfast in November. This conference will give you a great opportunity to hear the latest on lymphoma from regional lymphoma experts and ask them questions to learn more about your diagnosis. Sessions include: What is lymphoma? Breakout sessions: Choice of high grade lymphoma or low grade lymphoma The psychological impact of a lymphoma diagnosis Diet and nutrition Patient experience The role of exercise after a lymphoma diagnosis Ongoing follow up, getting the best from your review appointments New and future treatments for lymphoma Clinical trials for lymphoma Ask the expert panel: question and answer session with speaker faculty Feedback from previous 'Know Your Lymphoma' conferences: • Interesting and informative knowledge about the intricate aspects of lymphoma, it’s all quite amazing and mind boggling. • Having never been to one of these conferences before, I am pleased to say that I have found this one to be very enjoyable and useful to me. • A very worthwhile use of a days’ time! • This helped me to understand my illness far more than I did when I was diagnosed. I wish I went to something like this sooner. The webpage for the conference is www.lymphomas.org.uk/belfast and the number for the conference team is 01296 619 412 if anyone wanted to find out more or book.

Hello, I was diagnosed two years ago with Cll and am hoping to start a support group for people living with Cll. Just wondering if there are any others with Cll interested in getting involved. Be bold and drop me a line.

We have established an advocacy group for Chronic Lymphocytic Leukaemia (CLL) patients and carers. Thanks in part to the help provided by the Irish Cancer Society, on 29 April we held the first ever Public Information Day specifically for CLL patients and carers. We were overwhelmed with the support shown and the attendance on the day, with almost 140 patients and carers present! We are trying to reach out to the CLL community nationwide. Make sure you check out our website www.clli.ie, and Follow us on Facebook (www.facebook.com/cllire) and Twitter (https://twitter.com/CllIreland).

My partner is just finished his second round of chemo and has gained 2 stone in a week from fluid. His body is swollen, feet, ankles face, and he is so uncomfortable but no hair loss, other side effects are lack of taste. How long before he loses this excess weight.?

I have recently had a bone marrow transplant 8 months ago after being diagnosed with luekemia only 15 months ago. I am willing to just answer any questions that anyone may have regarding either.

Hi,new to this. Has anyone else on the site got chronic myeloid lukaemia? Would love to hear.

Hi, my name is Aoife and I was diagnosed with APML on August 15th 2010. It's a pretty rare form of leukaemia (a subset of AML) so if anyone has any questions I can answer or help with just let me know. I've been through 4 doses of chemo on Burkitt's Ward in St. James' and am about to move into the maintenance programme as an out patient. I was on the Spanish Protocol, a new version of which (LPA2005) was published in June of last year. I'm 32, irish and I've tolerated things well so far, thankfully, and have been in molecular remission since the first (induction) round. anyway, I know only a handful of folk get this each year so first hand info can be thin on the ground (I certainly found it to be) so if you, or a relative/friend have been diagnosed and you have queries or want to share experiences I reckon this might be a good place to do it. I've written a couple of blogs about my experience too, which you can read [url=http://stranded.ie/category/leukaemia-2:1h5d65ah]here>[/url:1h5d65ah]

Hi, has anyone experience of this type of cancer? My Mother is 85 and diagnosed 4 months ago. She has had repeated infections and one round of chemo(14 days) with very bad re-action. Docs have now stopped steroids (40mg a day) .She is sleeping about 20 hours a day and still they say she is doing well.No plans for further chemo. We are deeply worried but feel we are not getting enough info. Before this she was 100% brain perfect but now quite confused.Can anyone offer any info?

Hello Wondering if there is anybody out there who has been diagnosed with Hairy Cell Leumkemia? I've just been diagnosed, and will start treatment soon - so keen if there are others out there? It's a pretty ununusual cancer - informal stats show a lot less that 10 people in Ireland diagnosed each year. Up to this point - I have found this dedicated HCL forum pretty useful http://www.network54.com/Forum/263810/ Kevin