Community

Are you living with a diagnosis of chronic lymphocytic leukaemia (CLL) and on the ‘watch & wait’ protocol for at least 2 years? Would you be willing to share your experience in a telephone interview? Cancer researchers at the National University of Ireland Galway are seeking participants to take part in a 30 minute telephone interview.  If you are interested in participating and would like to receive more information, please email c.dunnion.1@nuigalway.ie or phone 085 236 1365.

Hi. I am waiting to have a Stem Cell Transplant. Using my own stem cells. I would like to get some advice from someone who has had this type of transplant. I have Myeloma Thank you.

Hi Does anyone know should you shield after completIng chemo/ retuxamab infusions 1.5 years ago. In the uk it states if your not more than 2 years in remission you should shield. It’s v confusing.

Wld like to attend an acupuncture clinic and wld like a recommendation for a good one in booterstown, blackrock, stillorgan area.

Hi, My father has just been diagnosed with Peripheral T-Cell Lymphoma. Just want to speak with anyone with similar diagnosis. He is 69 years old and it seems to be in one node at the moment. Starting chemo next week. Just trying to reach out and see if anyone is in the same boat. Also wondering about the use of CBD oil in conjunction with CHOP chemotherapy, if anyone uses CBD oil or how have they found it? Thank you.

My father in law is currently in a nursing home which is under lockdown. He has advanced non hodkins and appears to be getting very breathless which is a new thing. When we speak to him he is v breathless and has had a cough. We are waiting to speak to a nurse later about his O2 levels. We are obviously very concerned now as the community palliative team have not seen him since Nov and they cannot visit him. Has anyone got any suggestions as to what we can do? thanks.

I'm 1.5 years post stem cell transplant after being treated for Acute Lymphoblastic leukaemia. Would I still be in the high risk for COVID-19?

Hi, recently diagnosed as having Megaloblastic anemia and paraprotein in my blood igM it's 22g/L awaiting bone marrow biospy and ct tap, have had some nose bleeds, bone pain, fatigue, lymph node swelling neck area, anyone with same symptoms

Has anyone undegone a stemcell transplant for Acute Myloid Leukaemia and how are they now

Hello, I'm new here and wanted to say hi. I got diagnosed with follicular non hodgkins lymphoma in September 2013. I'm a 34year old female. The diagnosis felt like a slap on my face . I'm worried of course. I have so many questions (Google is not helpful. It scares me) Is there anybody else here with the same cancer who would like to talk? Take care, Justy.