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posted by Irish Cancer Society
06 March 2018

Tell your bowel cancer story

Last reply: 16 April 2020 11:40
If you or someone in your life has been affected by bowel cancer and are interested in sharing your story, consider becoming a media volunteer with the Irish Cancer Society. Sharing your story can help to raise cancer awareness, inform people about our services, appeal for volunteers, and bring reassurance to cancer patients and their families. After you express an interest in becoming a media volunteer, we would discuss with you how best to share your story, getting your permission before publishing or broadcasting.
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posted by ElleMaria
07 March 2018

Hair Integration System

Hi Everyone, As a 28 year old woman who is currently 3 months post chemo ( I did 4 rounds of TC for my IDC Stage 1 Grade 3) I am finding it difficult to adjust the idea of living sans wig. So I'm searching for an alternative. There are hair integration systems available in UK with the likes of Mark Glenn Studio where they use a breathable mess that attaches to your own hair (I shaved all of mine off during chemo and now have circa 1 inch re-growth to work with) and they bind in a hair piece which lasts for 2/3 years but needs maintenance every 6 weeks. You can shower, swim, run your hands through your hair and It wouldn't move - you treat it just as you would your own hair. Sounds good right? but I cannot find anyone in Ireland that does this. Given that there is maintenance required every 6 weeks going back and forth to LDN just wouldn't be a realistic option. Does anyone have any knowledge or experience with this type of hair solution? Thanks, Elle
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posted by annie
11 March 2018

support for rare, advanced diagnosis

Last reply: 14 March 2018 11:47
Hi there, My usually healthy, active, Dad has been diagnosed with small-cell carcinoma but not in his lung, elsewhere, which I understand is rare. The prognosis is not good. The doctors seem excited by the rarity of the diagnosis which has been confusing for my parents, as they interpreted the jovial mood as something optimistic. We are all devastated and I'm not sure how to support him. If anyone has similar experiences I would appreciate hearing them. I am struggling to cope and don't want him to have to worry about me, as well.
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posted by ShellB
13 March 2018

Choriocarcinoma

Last reply: 14 March 2018 11:46
Hiya, Im just wondering if anyone has any experience with Choriocarcinoma. My mother died from it when she was 32.Six months after giving birth to my brother prematurely.The doctors failed to detect the cancer. Its pretty difficult to get information on it, I've only found out this is what she died from as I was always told something else. So Im just curious suppose as Im now the age she was when she died and thinking of children so just curious is anyone has experiencce or information about it that they would like to share I would appreciate it. Thank you Shell x
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posted by Limerickluv
14 March 2018

Merkel Cell Carcinoma

Last reply: 22 March 2018 13:53
Hi all, My 73 year old father was diagnosed with this rare aggressive type of skin cancer in Aug 2016, and has undergone surgery , 4 rounds of chemo, 6 weeks of radiotherapy last year and is undergoing 10 more sessions of radiotherapy at the moment. Just wondering if there is anyone out there with experience of this type of cancer ? I have recently found out about immunotherapy (bavencio/ avelumab) treatment for metastatic MCC and see it is being widely used in the states. Is this something that needs to be discussed with the oncologist as to my knowledge it has never been advised as a treatment option and I only discovered by fluke online.any advise greatly appreciated
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posted by Pauline Crowle…
17 March 2018

Is there anything you can do about hot flushes

Last reply: 21 March 2018 15:21
Hi recently diagnosed with overian cancer spots on stomach chest & lung had my op 3 weeks yesterday but since then im finding it very hard to cope with very bad hotflushes which started into my second chemo,since op their 100 times worst not sleeping their coming night & day
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posted by meghanbyr_
19 March 2018

Diagnosed with cancer at the age of 19

Last reply: 21 March 2018 15:20
Hi, I’m Meghan, I’ve only just turned 19 and I’ve stomach cancer. I’m still in shock from finding out and I’ve only disclosed this to my family but I have to tell some friends and I’ve no clue how to. I’m afraid that I’m going to lose them or they’ll just become very distant with me and I understand the distancing part because it’s hard for them to take it in but I’m just worried I won’t have them to turn to. I’m starting treatment this week and I guess I could use their support. Sorry for the babble. Just sort of needed to let this out.
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posted by Whoopseydaisy
03 April 2018

Breast and underarm pain

Last reply: 06 April 2018 23:39
I have been having sharp breast pain for the past 2 months. The pain has now spread to my underarm and into my back, between my shoulder blades. I went to my GP over 3 weeks ago and she sent a referral for a mammagram but I haven't heard anything back. GP examined and couldn't find any lumps. I have rang private breast clinics to see how much it would be to see a consultant and have a mammagram. Unfortunately it's too expensive for me at the moment. My pain is getting worse and it's affecting my sleep. I'm waking up several times with the pain. If I presented myself to an A&E department would they do anything for me? Would they preform a mammagram or ultrasound? Thank you.
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posted by Realtin
08 April 2018

Her 2, treatment

Last reply: 02 May 2018 21:59
Trying to find correct thread. I was diagnosed with her2 positive. Had lumpectomy and node removal. Thank God margins clear, bloods good etc. Because it was an aggressive receptor that caused issue, chemotherapy x 6 + herceptin was recommended. Am 3 in, looking for discussion forums for those in similar circumstances..
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posted by chelsea
08 April 2018

Mammogram

Last reply: 10 April 2018 16:36
I have a lump in each breast and was sent for a mammogram last Friday to mater in dublin I was examined and then send for a mammogram and then was told I could go home that the Dr would be in contact when he looks at the scans taken which could take 2 weeks to get results is this the normal procedure. I am just turned 48 thanks
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