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posted by ariole
23 December 2013

Interferon

Last reply: 20 June 2017 10:02
Hi, I have to start Interferon treatment on January 6th. 4 weeks of 5 day high dose in hospital and 48 weeks of 3 day low dose at home. Anyone anything to input in relation to their experience? Thanks Ariole
17 comments
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posted by Kathleen
20 June 2017

Sun screen

A sun screen that doesn't stain clothing?
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posted by Caroline walsh
26 December 2016

Operation for mole

Last reply: 05 January 2017 15:50
Hi I am due to have operation for a freckle on my back in Feb problem is I am highly stressed and have exams in Jan my hair is coming out in clumps really did not realise how stressed I am
1 comment
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posted by annieo
08 March 2013

Post Groin Dissection

Last reply: 21 October 2015 11:50
Hi. I recently had a left inguinal/groin dissection, end of January, for Melanoma that had spread to the sentinel lymph node. Last week I heard that none of the nodes removed were positive for melanoma. I know the news was great (I am grateful) but I'm nowhere near feeling like I can just put it all behind me, smile and get on with it. Does that sound selfish? I feel that's just what is expected of me! I have little other information on my personal melanoma case, to date. I wasn't prepared with questions on the day I got the results as I wasn't expecting results that same day. I have to wait 3-4 months for my follow up appointment with surgeon. I've been told that I will be seen by a melanoma follow-up person also, but again, not for another three months. I can not believe the wait! I am very anxious about being cast aside for three months, without further explanation. I feel very let down by the system, that no-one has once sat me down and spoken to me informatively or caringly about my melanoma. It is a dangerous cancer and I have no doubt that anyone who has ever been diagnosed with it has experienced the fear. There was no melanoma nurse that I could call, no information leaflets etc. etc. etc. My experience has been purely surgical. It has been a scary time for me. I have (and do still) feel very much alone on my melanoma journey. There seems to be very little support for melanoma patients, in my area at least. There is so much I want to know. So many questions I want to ask. All that said, I have a super G.P. and have found other avenues to seek out information. As for leg lymphoedema, no-one warned me, or ever even mentioned to me that I would be at risk to develop it! (Thanks to the Irish Cancer Society for sending me on their lovely leaflet on prevention of leg lymphoedema ) I would love to hear from anyone who has had a groin dissection for melanoma. I'd be interested in hearing about your personal follow up experience, time-scales etc. I'd also love to hear advice on post-op leg care etc., Do I really have to keep my leg up all the time while sitting?? I braved the cinema last week and it was a disaster trying to keep the leg up! Thanks, Annio
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posted by karenjane
09 May 2011

Mole Check waiting list 7 years

Last reply: 16 May 2011 12:04
Good afternoon, I am looking for advice about having a mole check. I fall into the "high risk" category with red hair, fair skin and multiple moles all over my body. The crux is I am a public patient and do not hold any private health insurance (nor can afford any). I recently went to my GP to seek referral for a mole check to the Limerick Regional Hospital and was told that the waiting list for dermatology is 7 years!!! She has given me contact details for private specialists. Can anyone tell me what my options are at this stage and costs involved? Thanks for help in advance
2 comments
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posted by srt
01 May 2009

malignant melanoma

Last reply: 16 May 2009 20:11
hi guys just wondering if there is anyone to talk to about melanoma's. i just had one removed from my cheek 3 weeks ago today. it was a clark v 5.5mm deep. it was a lump under the skin that appeared last year but because i was pregnant (i lost) i had to delay getting it removed. when i did get it removed in december results didnt show melanoma but it needed to be removed further. at this stage it was february and i was pregnant again( i lost again sadly). it had started to grow back also. i was to get it removed further at the end of april but i miscarried in march so first week in april i got a cancelation to get it removed. it came back malignant a week later and i was in surgery the following morning which was good friday. i had a pet and ct scan done and they are clear and they have decided to treat me with interferon. i am so scared it will come back to the same place or somewhere else and i dont spot it in time.
2 comments
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posted by Nuns
25 February 2013

Freaking Out-

Last reply: 19 March 2013 22:12
I'm probably freaking out too much, but in a weeks time I have an appoitment with a Dermatology doctor to check a mole in my chest. In 2002 my GP at the time took around 7 moles from my chest ( kind of laser them out) but for what I remember they never did any Biopsy. One of the moles came back to grow almost straight away, but because they never told me anything about skin cancer or melanoma I did not think twice.A few years later my dad had colon cancer stage 3 , had the operation and chemio and a couple of years later they found skin cancer ( no melanoma)on his forehead. A month a go I told my new GP about the mole in my chest because it kind of changed a bit and has two different colors, black on top and tan on the bottom. As I said I'm freaking out. Been having tingly sensations under my left armpit too and the wait feels impossible. I'm the mother of a 6 year old and a 2 year old and the thoughts are running wild on my head! I know nobody can tell me anything until next monday when I go to the doctor but I have been feeling so anxious, and I do not want to freak out my family in case is nothing. thanks
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posted by silvey
30 November 2013

Should I make him go to doctor?

Last reply: 03 December 2013 08:15
This mole seemed to just appear, can't remember seeing this on my husbands back, it's about the size of a penny, and the shiny lump is about an inch below it. Just below the shiny lump you will see another blemish, he has quite a few on his back, he says it is acne. He is 50. Hubby said it's not dark, so it's ok and said he doesn't need to go to doc. Please help, so that I can show him what people think and maybe he will go. I am worried, the last time he was at the doctors was 25 years ago, and that was a medical for his job. He thinks there is nothing wrong, maybe there isn't and I'm being paranoid. Thank you http://www.flickr.com/photos/skincancer/11074920795/ http://www.flickr.com/photos/skincancer/11074928865
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posted by Babs
07 June 2014

skin graft lower R leg for a melanoma mole

Last reply: 07 June 2014 23:05
Hi i am in the 2nd week of recovery for a skin graft on my lower R leg, also had a sentinel node biopsy & the donor site was my upper R leg, it was discovered at my 1st dressing change that the graft took 80%, apparently anything above 70% is considered good as its rare to get 100% take, Is this true? The RGN that is coming out to do my dressings at home twice a week was concerned that the graft didn't look anymore improved since she had changed the dressing 3 days before, she freely admits she is not very familiar with such an extensive graft site & was concerned that there was a lot of exudate/gunk coming from around the graft site, there is no signs of infection & it appears to be normal redness, i feel an improvement, i can put my foot to the floor without too much discomfort & ive reduced the pain meds. Should i be worried the RGN wanted me to see my GP, but as the GP's secretary said she reckons the GP will just refer me back to Beaumont were it was done !! I live in Meath, Beaumont is a nightmare, i got no aftercare advice or support from them, they didn't even supply my with crutches but yet i was to have complete bed rest??? How was i to get home or to the bathroom ??? I won't be seeing the consultant that did the surgery till Mon 16th, any advice welcome,any complimentary therapies or supplements to speed up the healing process ???? Any help or advice would be greatly appreciated, feeling very let down by the Health system here !!!!
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posted by marion
19 November 2012

melanoma and "ippi" drug

Last reply: 26 November 2012 14:11
hi my name is marion i have finished "ippi" drug 3 mths now .(i had the 4 doses sailed through it tg.) my scan 4 wks after finishing drug it showed no new tumors on my lungs or liver but there are 3 tumors in lungs showing slight increase since may! will have scan in dec and back to dr in jan to see how those tumors are doing this is where i am realy frightened ,i have not spoken to any one with this cancer or who where on this drug or on it now,so i realy would like some suport and advice a bout this cancer .checking the web freeks me out so much negitive info i feel very well and very strong so any help i would be very greatful thanks.
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