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posted by Superwhy
23 July 2013

Surgery next Monday.

Last reply: 01 August 2013 21:54
Any usual tips what to pack and usual info for me. Having a lumpectomy and axillary clearance.
6 comments
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posted by LeitrimLady
01 August 2013

Mirena Coil & Tamoxifen

Last reply: 13 August 2013 10:26
Hi - there seems to be a lot of conflicting advice about whether the mirena coil should be removed when taking tamoxifen. I know being PR + is one factor that may be relevant to getting it removed, but some oncologists say the release of progesterone by the Mirena is localised and not relevant. Just wondering for those with the Mirena , what has been advised on this ? Thanks as always.
3 comments
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posted by cwitch
01 August 2013

Small Cell Cancer (Lung cancer)

Last reply: 21 October 2015 11:50
Just wondering if there is anyone out there that is living with someone with small cell cancer (lung cancer). My husband has just finished chemo which went ok, scan soon to determine if radiotherapy can start on lung. This would be followed by preventative brain radiotherapy. Are there any success, long term stories to be told. How hopeful dare I be that the chemo went well & he is doing ok, even put on weight.
2 comments
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posted by Dane7
04 August 2013

Cancer Conference

Last reply: 21 October 2015 11:50
Hi Ladies Is anyone thinking of going to this in the Aviva in September? Dane
20 comments
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posted by Sunny
07 August 2013

Anastrazole

Last reply: 21 October 2015 11:50
Hi, I wonder has anyone experience of this drug, I have been on it for about 6 weeks and while I have no dramatic side effects I feel generally unwell - tired, low mood, aches and pains. I know it's important to keep taking it but I would like to know if you get used to it and feel better over time Thanks Sunny
2 comments
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posted by Ania
07 August 2013

Just had enough of the drugs!!

Last reply: 21 October 2015 11:50
Ladies, I desperately need your advice cos no one else understands!! I am 12 months into my cancer treatment, had chemo, surgery, rads and tamoxifen and I have just had enough! I'm done. I have had severe reactions consistently throughout my treatment and because I was so young I was just told I was stressed out. During chemo at varying stages I lost the ability to speak and walk, my head has been melted from all the drugs and I am just not able to make decisions, or be independent essentially, my head is just so badly fogged from everything. Anyway tamoxifen was suppose to be my last treatment, I was on it and due to severe reactions it was stopped for 6 wks and I felt great, then tried it again and only lasted 4 wks on it and my tremor came back (started with chemo but faded slowly after 6months) so it has now been stopped again. I just can't take it anymore, I seem to be really sensitive to drugs and no matter what, I suffer side effects. I just want to be normal and get back to some sort of life but I can't do that on drugs. I am going to tell my oncologist I have had enough and am refusing further treatment cos I can't take it anymore. I have had to give up my life for the last yr and am still waiting for final reconstruction in early oct but then I am off to aus to start again. As far as I am aware the tamoxifen reduces my personal risk of reoccurrence from 15% to 10% which I personally think is useless to me cos if u get cancer in ur 20's there is no way I will get a forty year free pass, if its going to come back it will and I have a tried everything to give myself the best chance but enough is enough! Ye know the pains associated with all the different medications and know that it's not easyi would like to hear your thought before I make radical decisions, any advice really appreciated!!!!
12 comments
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posted by Ania
07 August 2013

Just had enough of the drugs!!

Ladies, I desperately need your advice cos no one else understands!! I am 12 months into my cancer treatment, had chemo, surgery, rads and tamoxifen and I have just had enough! I'm done. I have had severe reactions consistently throughout my treatment and because I was so young I was just told I was stressed out. During chemo at varying stages I lost the ability to speak and walk, my head has been melted from all the drugs and I am just not able to make decisions, or be independent essentially, my head is just so badly fogged from everything. Anyway tamoxifen was suppose to be my last treatment, I was on it and due to severe reactions it was stopped for 6 wks and I felt great, then tried it again and only lasted 4 wks on it and my tremor came back (started with chemo but faded slowly after 6months) so it has now been stopped again. I just can't take it anymore, I seem to be really sensitive to drugs and no matter what, I suffer side effects. I just want to be normal and get back to some sort of life but I can't do that on drugs. I am going to tell my oncologist I have had enough and am refusing further treatment cos I can't take it anymore. I have had to give up my life for the last yr and am still waiting for final reconstruction in early oct but then I am off to aus to start again. As far as I am aware the tamoxifen reduces my personal risk of reoccurrence from 15% to 10% which I personally think is useless to me cos if u get cancer in ur 20's there is no way I will get a forty year free pass, if its going to come back it will and I have a tried everything to give myself the best chance but enough is enough! Ye know the pains associated with all the different medications and know that it's not easyi would like to hear your thought before I make radical decisions, any advice really appreciated!!!!
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posted by deefed
07 August 2013

High fever during radiation 39.2

Last reply: 07 August 2013 21:43
Hi ladies 8 more rads to go and have very high temp today. 39.2 question is, is it like chemo if your over 38.5 you should report to hospital? Any help be appreciated
2 comments
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posted by Dane7
09 August 2013

Double Mastectomy No Reconsteuction

Hi Ladies Had mastectomy last September right hand side and am due to have left mastectomy next month. Anyone in this situation not have Reconstruction done? Thanks Dane
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posted by Ania
14 August 2013

Expander implant swap

Last reply: 21 October 2015 11:50
Hi all another question for ya, I am a little worried about the exchange surgery to swap my expander for Implant. It has taken me 9 months but I am finally (just about) comfortable in my own body again, and getting used to these hard lumps of plastic in my chest,but I am afraid I won't like the final implants. Anyone who had the surgery I would appreciate any feedback, anything at all!!! Cheers thanks ladies for all the support I really would be lost without ye!! Xx
8 comments
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