Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by Alisha42
13 January 2022

Implant

Last reply: 25 January 2022 10:22
Hi I got diagnosed with breast cancer 8 weeks ago and had bilateral mastectomy within four weeks when I got the biopsy done before op there was no cancer in lymnodes then after operation it was in 3 of them 4th was negative I have since had to go in and get another op to remove lymnodes in left arm and get a few tested in right arm. They also had to replace one Implant as it has completely moved I am now at home 3 days afraid to move incase the implant moves again it has been an awful lot to take in in 8 weeks can someone advise me if the implant should be ok as I’m up the walls worrying and my back is killing me because I’m not standing properly due to fear of moving the implant wrong . I know it probably sounds silly but I can’t go through another operation I’ve to start chemo in 6 /8 weeks and I’m trying just to deal with this
1 comment
Read the post
posted by Robin123
29 November 2021

Tamoxifen- first few weeks

Last reply: 04 January 2022 23:07
Hello, I am have been through mastectomy, chemo and rads. Its been a rough journey with lots of side effect during treatment and a visit to hospital for infection. Anyhow I'm now out the other side - 12 months on, and I started in Tamoxifen 2 weeks ago. Thing is I am getting bad headaches since starting this med- I know it was noted as a possibly side effect. Just wondering if anyone else went through something similar? How long will it take for the headaches to ease? I'm also more tired than usual but tbh the headaches are bothersome. Hot flushes too but nothing too bad. Thanks :)
1 comment
Read the post
posted by Mrs_H
21 November 2021

COVID and School going children

Last reply: 30 November 2021 11:54
Hello I have finished 4 x AC Chemo sessions and am starting weekly Taxol and others Chemo sessions from this week. My daughter is and there are cases of Covid in her school. The school are great and communicating with parents - so I kept herself off for the last 10 days. I also don't want her to miss out too much - and am in a quandry as to send her back in or not. What are others doing? Thanks
1 comment
Read the post
posted by Louisa
16 November 2021

Finished treatment

Last reply: 29 November 2021 14:59
Hi, I'm just finished a year of treatment for breast cancer. After a tough road everything has gone very well and my oncologist said he is very happy with my response to treatment and seems quiet positive about going forward. I am of course very relieved and happy that my treatment has gone well, however I feel somewhat lost at sea. Its like the tsunami has hit and now I'm just in open water bobbing along, also the fear of it coming back is always there. Has anybody else felt like this following treatment and does time really help heal? Thank you x
2 comments
Read the post
posted by Tee
18 November 2021

Mam newly diagnosed and terminal

Last reply: 24 November 2021 13:14
Hi I am hoping someone can help me. My mam went in for routine apt in hospital for her heart (she hasn't had one for 2 years due to covid). They found shadows on her lungs which was not like something that would be found in the lung. It was found to be breast cancer and she has spent last few weeks in hospital and was transferred to the mater and then released. We have now got word that she has apt in Tullamore hospital next week. She is on oxygen now and very weak. The original cancer was breast but now in lungs and lymp nodes. Can you please advis of what questions to ask the doctor at appointment..they have already told her that they will not be operating but that is all we know. Thanks for any advice just a bit lost
2 comments
Read the post
posted by Twinkle3
13 October 2021

Current Wait Times for Symptomatic Clinic

Last reply: 16 November 2021 20:29
I am just wondering what everyone's experience has been regarding waiting times to be seen at the Symptomatic Clinic? I discovered a lump on my breast about two weeks ago. I was seen by my GP a few days later and she agreed it needed to be assessed and sent a referral to the Clinic in Galway. I am reading about wait times of up to 8 weeks given COVID backlogs. Does anyone know if I am likely to be waiting that long? I have a very strong family history of aggressive breast cancer unfortunately so am absolutely worried sick. I also have private health insurance but not sure if this is something I can use to get an initial assessment or where? Any help would be really appreciated.
6 comments
Read the post
posted by mrsb
07 October 2021

DCIS - constant sweating

Last reply: 03 November 2021 12:41
Hi all, I was diagnosed with early stage breast cancer in June 2020. I had a lumpectomy, 25 sessions of radiation treatment and am currently on Tamoxifen 20mg. I had numerous infections post surgery which delayed the healing process and I also have lymphoedema. I’m just wondering if anyone else has had issues with severe sweating? When it starts it’s from the top of my head to the tips of my toes and can last for some time and I’ve even had to change my clothes on numerous occasions because of it. I know hot flashes and sweating are a side effect of the tamoxifen but just wondering if what I’m dealing with is ‘normal’? It’s getting to the point now where I don’t even want to leave the house as I never know when it’s going to happen, how bad it’s going to be, how long it will last and I feel like I constantly smell as I can’t use any of the deodorants I used before being diagnosed. Thanks, MrsB.
2 comments
Read the post
posted by Dilly
11 September 2021

DCIS

Last reply: 15 September 2021 22:33
Hi all, I was diagnosed with DCIS 10 years ago. I had 2 surgeries to remove it. Then I had my radiotherapy 30 sessions. Everything went like clockwork. Then my husband started having heart problems. Well long story short I start looking after him. This all happened at the same time as my surgery. Anyway I'm on a waiting list for reconstruction as I'm lopsided. Where would I get the bras and prosthetics. I can't wear anything tight. Thank you and I wish you all well on your journey.
3 comments
Read the post
posted by Freesia71
07 September 2021

Metastatic Breast Cancer

Last reply: 13 September 2021 16:30
Hi Everyone. Wanted to share my story so far to see if anyone else is in the same position as me. I am 49 and in May was initially diagnosed with breast cancer. I was scheduled for surgery and after reporting a pain/lump in my neck got referred for a CT scan. The CT showed lesions in my liver so the unfortunate diagnosis of MBC came. I was on Ibrance, zoladex and letrozole for two months. Due to high liver enzymes I've been taken off the Ibrance. I am waiting to see the oncologist to see what's next. I went back to work and want to stay in work. I am finding the whole thing as nothing short of torture as it's on my mind 24/7. I was ok whilst I was on the treatment and I thought that everything was going well. How is anyone else coping with the diagnosis of MBC?
1 comment
Read the post
posted by Mrs_H
01 September 2021

Waiting Times

Last reply: 02 September 2021 13:39
I had a biopsy on July 20th, which showed grade 2, Her2 positive cancer, stage 2. Since then - nothing has happened... I am waiting. Is that normal for COVID times?
2 comments
Read the post
© Irish Cancer Society 1999-2024 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.